The Manchester International Consensus Group recommendations for the management of gynecological cancers in Lynch syndrome.


Journal

Genetics in medicine : official journal of the American College of Medical Genetics
ISSN: 1530-0366
Titre abrégé: Genet Med
Pays: United States
ID NLM: 9815831

Informations de publication

Date de publication:
Oct 2019
Historique:
received: 22 11 2018
accepted: 06 03 2019
pubmed: 29 3 2019
medline: 18 3 2020
entrez: 29 3 2019
Statut: ppublish

Résumé

There are no internationally agreed upon clinical guidelines as to which women with gynecological cancer would benefit from Lynch syndrome screening or how best to manage the risk of gynecological cancer in women with Lynch syndrome. The Manchester International Consensus Group was convened in April 2017 to address this unmet need. The aim of the Group was to develop clear and comprehensive clinical guidance regarding the management of the gynecological sequelae of Lynch syndrome based on existing evidence and expert opinion from medical professionals and patients. Stakeholders from Europe and North America worked together over a two-day workshop to achieve consensus on best practice. Guidance was developed in four key areas: (1) whether women with gynecological cancer should be screened for Lynch syndrome and (2) how this should be done, (3) whether there was a role for gynecological surveillance in women at risk of Lynch syndrome, and (4) what preventive measures should be recommended for women with Lynch syndrome to reduce their risk of gynecological cancer. This document provides comprehensive clinical guidance that can be referenced by both patients and clinicians so that women with Lynch syndrome can expect and receive appropriate standards of care.

Identifiants

pubmed: 30918358
doi: 10.1038/s41436-019-0489-y
pii: S1098-3600(21)04493-2
pmc: PMC6774998
doi:

Types de publication

Practice Guideline Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2390-2400

Subventions

Organisme : Cancer Research UK
ID : 16892
Pays : United Kingdom
Organisme : Department of Health
ID : NIHR-CS-012-009
Pays : United Kingdom
Organisme : Cancer Research UK
ID : 27963
Pays : United Kingdom
Organisme : NCI NIH HHS
ID : P30 CA016058
Pays : United States
Organisme : Cancer Research UK
ID : 27047
Pays : United Kingdom
Organisme : Department of Health
ID : IS-BRC-1215-20007
Pays : United Kingdom
Organisme : Medical Research Council
ID : MR/M018431/1
Pays : United Kingdom
Organisme : Department of Health
ID : NF-SI- 0513-10076
Pays : United Kingdom

Investigateurs

Angel Alonso Sanchez (AA)
Mark J Arends (MJ)
James Bolton (J)
Tjalling Bosse (T)
John Burn (J)
Emma J Crosbie (EJ)
David Church (D)
Joanna M Cornes (JM)
Robin Crawford (R)
Karen Donnelly (K)
Diana Eccles (D)
Richard J Edmondson (RJ)
D Gareth Evans (DG)
Ian M Frayling (IM)
Sadaf Ghaem-Maghami (S)
Paula Gollop (P)
Selina Goodman (S)
Heather Hampel (H)
Shirley Hodgson (S)
Noah D Kauff (ND)
Henry C Kitchener (HC)
Sarah J Kitson (SJ)
Fiona Lalloo (F)
Anne Lowry (A)
Ranjit Manchanda (R)
Raymond F T McMahon (RFT)
Rhona J McVey (RJ)
Usha Menon (U)
Tracie Miles (T)
Gabriela Moeslein (G)
Pal Moller (P)
Kevin J Monahan (KJ)
Adam Rosenthal (A)
Neil A J Ryan (NAJ)
Peter Sasieni (P)
Mourad W Seif (MW)
Pauline Skarrott (P)
Naveena Singh (N)
Tristan M Snowsill (TM)
Robert Steele (R)
Astrid Stormoken (A)
Helen Stringfellow (H)
Marc Tischkowitz (M)
Andrew Wallace (A)
Luciya Whyte (L)
Nafisa Wilkinson (N)
Godfrey Wilson (G)
Jo Wilson (J)
Nick Wood (N)

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Auteurs

Emma J Crosbie (EJ)

Division of Cancer Sciences, Faculty of Biology, Medicine and Health, University of Manchester, St Mary's Hospital, Manchester, UK. Emma.crosbie@manchester.ac.uk.
Directorate of Gynaecology, St Mary's Hospital, Manchester University NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, UK. Emma.crosbie@manchester.ac.uk.
Prevention Early Detection Theme, NIHR Biomedical Research Centre, The Christie NHS Foundation Trust, Manchester, UK. Emma.crosbie@manchester.ac.uk.

Neil A J Ryan (NAJ)

Division of Cancer Sciences, Faculty of Biology, Medicine and Health, University of Manchester, St Mary's Hospital, Manchester, UK.
Division of Evolution and Genomic Medicine, University of Manchester, St Mary's Hospital, Manchester, UK.

Mark J Arends (MJ)

Division of Pathology & Centre for Comparative Pathology, Cancer Research UK Edinburgh Centre, Institute of Genetics & Molecular Medicine, University of Edinburgh, Edinburgh, UK.

Tjalling Bosse (T)

Pathology Department, Leiden University Medical Center, Leiden, the Netherlands.

John Burn (J)

Institute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, UK.

Joanna M Cornes (JM)

Patient Representative, Cambridge, UK.

Robin Crawford (R)

Department of Gynaecological Oncology, Addenbrookes Hospital, Cambridge University Hospitals NHS Foundation Trust, Cambridge, UK.

Diana Eccles (D)

Faculty of Medicine, University of Southampton, University Hospital Southampton, Southampton, UK.

Ian M Frayling (IM)

Institute of Cancer and Genetics, Cardiff University, Cardiff, UK.

Sadaf Ghaem-Maghami (S)

Department of Surgery and Cancer, Imperial College, London, UK.

Heather Hampel (H)

Division of Human Genetics, Department of Internal Medicine, The Ohio State University Comprehensive Cancer Center, Columbus, OH, USA.

Noah D Kauff (ND)

Duke Cancer Institute, Duke University Medical Center, Durham, NC, USA.

Henry C Kitchener (HC)

Division of Cancer Sciences, Faculty of Biology, Medicine and Health, University of Manchester, St Mary's Hospital, Manchester, UK.

Sarah J Kitson (SJ)

Division of Cancer Sciences, Faculty of Biology, Medicine and Health, University of Manchester, St Mary's Hospital, Manchester, UK.

Ranjit Manchanda (R)

Barts Cancer Institute, Queen Mary University of London, London, UK.

Raymond F T McMahon (RFT)

Department of Histopathology, Manchester University NHS Foundation Trust, Manchester, UK.

Kevin J Monahan (KJ)

Chelsea & Westminster Hospital NHS Trust, London, UK.

Usha Menon (U)

MRC Clinical Trials Unit at UCL, Institute of Clinical Trials and Methodology, London, UK.

Pål Møller (P)

Department of Tumor Biology, Institute of Cancer Research, The Norwegian Radium Hospital, part of Oslo University Hospital, Oslo, Norway.
Research Group Inherited Cancer, Department of Medical Genetics, Oslo University Hospital, Oslo, Norway.
Center for Hereditary Tumors, Helios University Hospital Wuppertal, University of Witten-, Herdecke, Germany.

Gabriela Möslein (G)

Center for Hereditary Tumors, Helios University Hospital Wuppertal, University of Witten-, Herdecke, Germany.

Adam Rosenthal (A)

Department of Women's Cancer, UCL EGA Institute for Women's Health, University College London, London, UK.

Peter Sasieni (P)

School of Cancer and Pharmaceutical Sciences, Kings College London, London, UK.

Mourad W Seif (MW)

Division of Cancer Sciences, Faculty of Biology, Medicine and Health, University of Manchester, St Mary's Hospital, Manchester, UK.
Directorate of Gynaecology, St Mary's Hospital, Manchester University NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, UK.

Naveena Singh (N)

Department of Cellular Pathology, Barts Health NHS Trust, London, UK.

Pauline Skarrott (P)

Lynch Syndrome UK, Linden House, 9/11 Main Street, Ingleton, Carnforth, UK.

Tristan M Snowsill (TM)

Peninsula Technology Assessment Group (PenTAG), University of Exeter, Exeter, UK.
Health Economics Group, University of Exeter, Exeter, UK.

Robert Steele (R)

Division of Cancer, Medical Research Institute, Ninewells Hospital and Medical School, Dundee, UK.

Marc Tischkowitz (M)

Academic Laboratory of Medical Genetics, University of Cambridge, Cambridge, UK.
National Institute for Health Research Cambridge Biomedical Research Centre, Cambridge, UK.

D Gareth Evans (DG)

Prevention Early Detection Theme, NIHR Biomedical Research Centre, The Christie NHS Foundation Trust, Manchester, UK.
Division of Evolution and Genomic Medicine, University of Manchester, St Mary's Hospital, Manchester, UK.
Manchester Centre for Genomic Medicine, Manchester University NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, UK.

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