Dignity in life and care: the perspectives of Swedish patients in a palliative care context.


Journal

International journal of palliative nursing
ISSN: 2052-286X
Titre abrégé: Int J Palliat Nurs
Pays: England
ID NLM: 9506762

Informations de publication

Date de publication:
02 Apr 2019
Historique:
entrez: 24 4 2019
pubmed: 24 4 2019
medline: 18 12 2019
Statut: ppublish

Résumé

How patients preserve their sense of dignity in life is an important area of palliative care that remains to be explored. To describe patients' perspectives of what constitutes a dignified life within a palliative care context. Twelve palliative care patients were interviewed about their views on living with dignity. Data were analysed using qualitative content analysis. What constitutes a dignified life during end-of-life care was captured by the theme 'I may be ill but I am still a human being' and presented under the categories 'preserving my everyday life and personhood', 'having my human value maintained by others through 'coherence' and 'being supported by society at large'. Patients' sense of dignity can be preserved by their own attitudes and behaviours, by others and through public support. Health professionals need to adopt a dignity-conserving approach, for which awareness of their own attitudes and behaviours is crucial.

Sections du résumé

BACKGROUND BACKGROUND
How patients preserve their sense of dignity in life is an important area of palliative care that remains to be explored.
AIMS OBJECTIVE
To describe patients' perspectives of what constitutes a dignified life within a palliative care context.
METHODS METHODS
Twelve palliative care patients were interviewed about their views on living with dignity. Data were analysed using qualitative content analysis.
RESULTS RESULTS
What constitutes a dignified life during end-of-life care was captured by the theme 'I may be ill but I am still a human being' and presented under the categories 'preserving my everyday life and personhood', 'having my human value maintained by others through 'coherence' and 'being supported by society at large'.
CONCLUSION CONCLUSIONS
Patients' sense of dignity can be preserved by their own attitudes and behaviours, by others and through public support. Health professionals need to adopt a dignity-conserving approach, for which awareness of their own attitudes and behaviours is crucial.

Identifiants

pubmed: 31013197
doi: 10.12968/ijpn.2019.25.4.193
doi:

Types de publication

Journal Article

Langues

eng

Pagination

193-201

Auteurs

Tove Bylund-Grenklo (T)

Senior Lecturer, Department of Caring Science, University of Gävle, and (affiliated) Department of Oncology Pathology, Karolinska Institutet, Stockholm, Sweden.

Carina Werkander-Harstäde (C)

Senior Lecturer, Department of Health and Caring Sciences, Linnaeus University, Växjö, and Center for Collaborative Palliative Care, Department of Health and Caring Sciences, Linnaeus University, Växjö, Sweden.

Anna Sandgren (A)

Associate Professor, Department of Health and Caring Sciences, Linnaeus University, Växjö and Center for Collaborative Palliative Care, Department of Health and Caring Sciences, Linnaeus University, Växjö, Sweden.

Eva Benzein (E)

Professor, Department of Health and Caring Sciences, Linnaeus University, Kalmar and Center for Collaborative Palliative Care, Department of Health and Caring Sciences, Linnaeus University, Växjö, Sweden.

Ulrika Östlund (U)

Associate Professor, Research Supervisor, Centre for Research and Development, Uppsala University/Region Gävleborg, Gävle; (affiliated) Faculty of Medicine and Health, School of Health Sciences, Örebro University; and (affiliated) Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.

Articles similaires

[Redispensing of expensive oral anticancer medicines: a practical application].

Lisanne N van Merendonk, Kübra Akgöl, Bastiaan Nuijen
1.00
Humans Antineoplastic Agents Administration, Oral Drug Costs Counterfeit Drugs

Smoking Cessation and Incident Cardiovascular Disease.

Jun Hwan Cho, Seung Yong Shin, Hoseob Kim et al.
1.00
Humans Male Smoking Cessation Cardiovascular Diseases Female
Humans United States Aged Cross-Sectional Studies Medicare Part C
1.00
Humans Yoga Low Back Pain Female Male

Classifications MeSH