'I don't feel like I'm in this on my own': Peer support for mothers of children with intellectual disability and challenging behaviour.


Journal

Journal of intellectual disabilities : JOID
ISSN: 1744-6309
Titre abrégé: J Intellect Disabil
Pays: England
ID NLM: 101229024

Informations de publication

Date de publication:
Sep 2019
Historique:
pubmed: 26 4 2019
medline: 13 2 2020
entrez: 26 4 2019
Statut: ppublish

Résumé

This article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents. There were three process-related themes: the role of a paid coordinator, diversity of engagement strategies and matching of peer support partners. Mothers appreciated the opportunities provided to engage in a range of strategies tailored to individual preferences, time and capacity constraints, supported by the paid coordinator. One-to-one peer support proved difficult to sustain given the challenges mothers faced in their day-to-day lives.

Identifiants

pubmed: 31018752
doi: 10.1177/1744629519843012
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

344-358

Auteurs

Susan Collings (S)

UNSW Sydney, Australia.
The University of Sydney, Australia.

Leanne Dowse (L)

UNSW Sydney, Australia.

Ariella Meltzer (A)

UNSW Sydney, Australia.

Louisa Smith (L)

UNSW Sydney, Australia; University of Wollongong, Australia.

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Classifications MeSH