Familial disclosure by genetic healthcare professionals: a useful but sparingly used legal provision in France.
bioethics
breast cancer
family communication
genetics
hemochromatosis
law
Journal
Journal of medical ethics
ISSN: 1473-4257
Titre abrégé: J Med Ethics
Pays: England
ID NLM: 7513619
Informations de publication
Date de publication:
12 2019
12 2019
Historique:
received:
15
10
2018
revised:
17
06
2019
accepted:
03
08
2019
pubmed:
30
8
2019
medline:
21
10
2020
entrez:
30
8
2019
Statut:
ppublish
Résumé
Familial disclosure of genetic information is an important, long-standing ethical issue that still gives rise to much debate. In France, recent legislation has created an innovative and unprecedented procedure that allows healthcare professionals (HCPs), under certain conditions, to disclose relevant information to relatives of a person carrying a deleterious genetic mutation. This article will analyse how HCPs in two medical genetics clinics have reacted to these new legal provisions and show how their reticence to inform the patients' relatives on their behalf leads them to use this option sparingly.
Identifiants
pubmed: 31462451
pii: medethics-2018-105212
doi: 10.1136/medethics-2018-105212
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
811-816Informations de copyright
© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.
Déclaration de conflit d'intérêts
Competing interests: None declared.