'Dignity and respect': An example of service user leadership and co-production in mental health research.
adult safeguarding
co-production
mental health research
mental health service users
survivor research
user-led research
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
05 2021
05 2021
Historique:
revised:
09
08
2019
received:
26
04
2019
accepted:
22
08
2019
pubmed:
27
9
2019
medline:
19
8
2021
entrez:
27
9
2019
Statut:
ppublish
Résumé
This paper explores the methodological aspects of a user-led study investigating mental health service user experiences of targeted violence and abuse (often called 'hate crime'). 'Keeping Control' was a 16-month qualitative study, undertaken in the context of adult safeguarding reforms in England. By collecting data on service user concepts and experiences, the research sought to address a gap in research and practice knowledge relating to targeted violence, abuse and hostility against people with mental health problems. In this paper, we discuss the significance of the design and methodology used for this study, with a particular focus on the interviews with service users. The research was both user-led and carried out in collaboration with practitioners and academics, a form of research co-production. Our aim is to inform researchers, practitioners and policymakers about the value of user leadership in co-productive research with practitioners, particularly for a highly sensitive and potentially distressing topic.
Identifiants
pubmed: 31556244
doi: 10.1111/hex.12963
pmc: PMC8137502
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
10-19Subventions
Organisme : Department of Health
Pays : United Kingdom
Informations de copyright
© 2019 The Authors Health Expectations published by John Wiley & Sons Ltd.
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