Why Quality-of-Life Data Collection and Use Should Be Standardized When Evaluating Candidates for Hand Transplantation.
Journal
AMA journal of ethics
ISSN: 2376-6980
Titre abrégé: AMA J Ethics
Pays: United States
ID NLM: 101649265
Informations de publication
Date de publication:
01 11 2019
01 11 2019
Historique:
entrez:
20
11
2019
pubmed:
20
11
2019
medline:
28
7
2020
Statut:
epublish
Résumé
This article argues for 3 mutually reinforcing interventions in the field of hand transplantation (HTx): (1) collection of qualitative data about hand transplant recipients' subjective quality of life (QoL) outcomes, (2) multicenter standardization of data collection, and (3) use of data to develop evidence-based, standardized protocols for HTx candidate evaluation and information disclosure. These interventions are needed to improve candidate evaluation and informed consent processes in HTx, wherein the highly personal nature of desired outcomes justifies holding a candidate's consent to a standard approaching authenticity rather than the usual minimal standard of being informed and voluntary.
Identifiants
pubmed: 31742546
pii: amajethics.2019.974
doi: 10.1001/amajethics.2019.974
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
E974-979Informations de copyright
© 2019 American Medical Association. All Rights Reserved.