The agentic Self and uncontrollable body: Young people's management of chronic illness at university.


Journal

Health (London, England : 1997)
ISSN: 1461-7196
Titre abrégé: Health (London)
Pays: England
ID NLM: 9800465

Informations de publication

Date de publication:
05 2021
Historique:
pubmed: 23 11 2019
medline: 26 10 2021
entrez: 23 11 2019
Statut: ppublish

Résumé

Young people's experiences of living with a long-term health condition have been largely investigated from the perspective of developing autonomy and optimal self-management of treatment regimens. Little existing research explores how young people adjust to the experience of chronic illness within everyday social contexts. Drawing on sociocultural theories of healthism, in this article, we examine the everyday strategies students employed to manage their health condition at university. Data were drawn from a qualitative study with 16 undergraduate students in Australia. Findings from interviews highlight how participants took up discourses of the (hard-working, diligent) Self to discursively position themselves as 'health conscious' and 'in control'. This positioning was maintained through separating the controlled Self from the (uncontrollable) body. The unpredictability of the body posed a threat to young people's abilities to maintain control and denied them opportunities to exercise personal agency. Yet, participants also described a number of subversive strategies in order to take back control and resist the experience of ill health. These potential agentic practices often held unintended consequences, including loss of optimal medical control or (self) exclusion from university life - offering new insights into the differing ways young people concomitantly take-up, rework and resist the pursuit of healthism to 'successfully' manage their health conditions.

Identifiants

pubmed: 31755315
doi: 10.1177/1363459319889088
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

357-375

Auteurs

Grace Spencer (G)

Anglia Ruskin University, UK; The University of Sydney, Australia.

Sophie Lewis (S)

UNSW Sydney, Australia.

Megan Reid (M)

The University of Sydney, Australia.

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Classifications MeSH