Health Literacy as Communicative Action-A Qualitative Study among Persons at Risk in the Context of Predictive and Preventive Medicine.

communicative action critical health literacy ethnographic approach health literacy health sciences perceptions of health and disease persons at risk qualitative research shared decision making

Journal

International journal of environmental research and public health
ISSN: 1660-4601
Titre abrégé: Int J Environ Res Public Health
Pays: Switzerland
ID NLM: 101238455

Informations de publication

Date de publication:
05 03 2020
Historique:
received: 07 02 2020
revised: 26 02 2020
accepted: 27 02 2020
entrez: 11 3 2020
pubmed: 11 3 2020
medline: 21 10 2020
Statut: epublish

Résumé

Predictive and preventive medicine play an increasingly important role in public debates on health, providing cutting-edge technologies with the potential to measure and predict individual risks of getting ill. This leads to an ever-expanding definitional space between being "healthy" and being "ill", challenging the individual's everyday life, attitudes and perceptions towards the self and the process of health-related decision-making. "How do the condition of 'being at risk' and individual health literacy interrelate?" is the leading question of the current contribution. Drawing on empirical qualitative data, collected by means of narrative interviews with persons at risk in four clinical fields, a bottom-up ethnographic and health sciences perspective on health literacy (with an emphasis on critical health literacy) is employed. The findings will be embedded within theoretical approaches dealing with power relations and communication in healthcare encounters, particularly Habermas' theory of communicative action. The core outcome of our study is a concept for an overarching model of health literacy in the context of health-related risk prediction across indications, based on empirical insights gained through interpretative analysis of the four clinical domains.

Identifiants

pubmed: 32151076
pii: ijerph17051718
doi: 10.3390/ijerph17051718
pmc: PMC7084333
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Déclaration de conflit d'intérêts

The authors declare no conflict of interest. The funders had no role in the design of the study; in the collection, analyses, or interpretation of data; in the writing of the manuscript, or in the decision to publish the results.

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Auteurs

Laura Harzheim (L)

Cologne Center for Ethics, Rights, Economics, and Social Sciences of Health (CERES), University of Cologne and University Hospital of Cologne, Universitätsstraße 91, 50931 Cologne, Germany.

Mariya Lorke (M)

Cologne Center for Ethics, Rights, Economics, and Social Sciences of Health (CERES), University of Cologne and University Hospital of Cologne, Universitätsstraße 91, 50931 Cologne, Germany.

Christiane Woopen (C)

Cologne Center for Ethics, Rights, Economics, and Social Sciences of Health (CERES), University of Cologne and University Hospital of Cologne, Universitätsstraße 91, 50931 Cologne, Germany.
Research Unit Ethics, Institute for the History of Medicine and Medical Ethics, Faculty of Medicine, University of Cologne and University Hospital of Cologne, Universitätsstraße 91, 50931 Cologne, Germany.

Saskia Jünger (S)

Cologne Center for Ethics, Rights, Economics, and Social Sciences of Health (CERES), University of Cologne and University Hospital of Cologne, Universitätsstraße 91, 50931 Cologne, Germany.

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Classifications MeSH