Palliative care for people living with cardiac disease.

cardiac implantable electronic devices communication grown‑up congenital heart disease heart failure palliative care

Journal

Kardiologia polska
ISSN: 1897-4279
Titre abrégé: Kardiol Pol
Pays: Poland
ID NLM: 0376352

Informations de publication

Date de publication:
24 04 2020
Historique:
entrez: 28 4 2020
pubmed: 28 4 2020
medline: 28 4 2021
Statut: ppublish

Résumé

Many cardiovascular diseases lead to heart failure, which is a progressive syndrome causing significant distress and limiting the quality of life, despite optimal cardiologic treatment. It is estimated that about 26 000 people in Poland suffer from advanced heart failure, and this number is growing. That is why palliative care (PC) dedicated to people living with end‑stage cardiac diseases should be urgently implemented in Poland. Well‑organized PC may not only relieve symptoms and improve quality of life in people living with cardiac diseases not responding to treatment but also support patients and their families during the dying process. Palliative care in patients with cardiac diseases should be continued during the end-of-life period. It should be implemented regardless of prognosis, and adjusted to patients' needs. Two approaches to PC are presented in this expert opinion. The first one (generic) is provided by all medical professionals incorporating PC principles into the usual patient care. The second approach, namely, specialized PC, is ensured by a multiprofessional team or at least a PC specialist who received appropriate training in PC. The model of needs-based (not prognosis-based) implementation of PC is discussed in this paper. Symptom control, support in decision-making, and sensitive, open communication are considered integral elements of PC interventions. Medical professionals developing PC in Poland should think about groups of patients with special needs like those with valvular heart disease, grown‑up congenital heart disease, and pulmonary arterial hypertension, as well as elderly people. This consensus document presents main recommendations for future PC organization in Poland. Among others, we suggest changing the Polish National Health Fund reimbursement rules regarding PC and improving cardiologist education on PC.

Identifiants

pubmed: 32336071
doi: 10.33963/KP.15276
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

364-373

Auteurs

Piotr Z Sobański (PZ)

Palliative Care Unit and Competence Center, Department of Internal Medicine, Spital Schwyz, Schwyz, Switzerland

Grażyna Brzezińska Rajszys (G)

Department of Cardiology and Laboratory of Cardiovascular Interventions,The Children’s Memorial Health Institute, Warsaw, Poland

Tomasz Grodzicki (T)

Department of Internal Medicine and Gerontology, Jagiellonian University Medical College, Kraków, Poland

Piotr Jakubów (P)

Anaesthesiology and Intensive Care Unit, Department of Cardiac Surgery, Medical University of Białystok, Białystok, Poland

Piotr Jankowski (P)

1st Department of Cardiology and Hypertension, Institute of Cardiology, Jagiellonian University Medical College, Kraków, Poland

Marcin Kurzyna (M)

Department of Pulmonary Circulation, Thromboembolic Diseases and Cardiology, Centre of Postgraduate Medical Education, Warsaw, Poland

Jadwiga Nessler (J)

Department of Coronary Disease and Heart Failure, Institute of Cardiology, Jagiellonian University Medical College, Kraków, Poland

Andrzej Przybylski (A)

Faculty of Medicine, University of Rzeszów, Rzeszów, Poland

Anna Ratajska (A)

Faculty of Psychology, Kazimierz Wielki University, Bydgoszcz, Poland

Lidia Tomkiewicz Pająk (L)

Department of Cardiac and Vascular Diseases, Institute of Cardiology, Jagiellonian University Medical College, Kraków, Poland

Izabella Uchmanowicz (I)

Department of Clinical Nursing, Faculty of Health Sciences, Wroclaw Medical University, Wrocław, Poland

Tomasz Pasierski (T)

Chair of the Expert Group; Department of Medical Ethics and Palliative Medicine, Warsaw Medical University, Warsaw, Poland. tpasierski@wum.edu.pl

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