Assessment of significant benefit for orphan medicinal products by European regulators may support subsequent relative effectiveness assessments by health technology assessment organizations.


Journal

Drug discovery today
ISSN: 1878-5832
Titre abrégé: Drug Discov Today
Pays: England
ID NLM: 9604391

Informations de publication

Date de publication:
07 2020
Historique:
received: 03 02 2020
revised: 08 04 2020
accepted: 15 04 2020
pubmed: 29 4 2020
medline: 31 8 2021
entrez: 29 4 2020
Statut: ppublish

Résumé

To maintain orphan drug status at the time of market authorization, orphan medicinal products (OMPs) need to be assessed for all criteria, including significant benefit, by the Committee for Orphan Medicinal Products (COMP) of the European Medicines Agency (EMA). Subsequently, health technology assessment (HTA) organizations evaluate the same OMPs in their relative effectiveness assessments (REAs). This review investigates the similarities and differences between the two frameworks for six HTA organizations, including the European Network for HTA. We discuss differences between both assessment frameworks within five domains (clinical evidence used, patient population, intervention, comparators, and outcome measures) for all drugs. Five illustrative cases studies were selected for a qualitative review.

Identifiants

pubmed: 32344040
pii: S1359-6446(20)30160-4
doi: 10.1016/j.drudis.2020.04.012
pii:
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

1223-1231

Informations de copyright

Copyright © 2020 The Authors. Published by Elsevier Ltd.. All rights reserved.

Auteurs

Rick A Vreman (RA)

Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Universiteitsweg 99, 3584 CG Utrecht, The Netherlands; The National Health Care Institute (ZIN), Willem Dudokhof 1, 1112 ZA Diemen, The Netherlands.

Angela S de Ruijter (AS)

Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Universiteitsweg 99, 3584 CG Utrecht, The Netherlands.

Anna Zawada (A)

Medical University of Warsaw, Zwirki i Wigury St. 61, 02-091 Warsaw, Poland.

Giovanni Tafuri (G)

The National Health Care Institute (ZIN), Willem Dudokhof 1, 1112 ZA Diemen, The Netherlands.

Violeta Stoyanova-Beninska (V)

Committee for Orphan Medicinal Products, European Medicines Agency, Domenico Scarlattilaan 6, 1083 HS, Amsterdam, The Netherlands; College ter Beoordeling van Geneesmiddelen/Medicines Evaluation Board (CBG-MEB), Graadt van Roggenweg 500, 3531 AH, Utrecht, The Netherlands.

Daniel O'Connor (D)

Committee for Orphan Medicinal Products, European Medicines Agency, Domenico Scarlattilaan 6, 1083 HS, Amsterdam, The Netherlands; Medicines and Healthcare products Regulatory Agency (MHRA), 10 SC, Canary Wharf, London, UK.

Frauke Naumann-Winter (F)

Committee for Orphan Medicinal Products, European Medicines Agency, Domenico Scarlattilaan 6, 1083 HS, Amsterdam, The Netherlands; Bundesinstitut für Arzneimittel und Medizinprodukte, Kurt-Georg-Kiesinger-Allee 3, 53175, Bonn, Germany.

Franziska Wolter (F)

Bundesinstitut für Arzneimittel und Medizinprodukte, Kurt-Georg-Kiesinger-Allee 3, 53175, Bonn, Germany.

Aukje K Mantel-Teeuwisse (AK)

Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Universiteitsweg 99, 3584 CG Utrecht, The Netherlands.

Hubert G M Leufkens (HGM)

Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Universiteitsweg 99, 3584 CG Utrecht, The Netherlands.

Iordanis Sidiropoulos (I)

Committee for Orphan Medicinal Products, European Medicines Agency, Domenico Scarlattilaan 6, 1083 HS, Amsterdam, The Netherlands.

Kristina Larsson (K)

Committee for Orphan Medicinal Products, European Medicines Agency, Domenico Scarlattilaan 6, 1083 HS, Amsterdam, The Netherlands.

Wim G Goettsch (WG)

Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Universiteitsweg 99, 3584 CG Utrecht, The Netherlands; The National Health Care Institute (ZIN), Willem Dudokhof 1, 1112 ZA Diemen, The Netherlands. Electronic address: w.g.goettsch@uu.nl.

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Classifications MeSH