How can we improve patient-centered care of motor neuron disease?

Amyotrophic Lateral Sclerosis / therapy Australia Decision Making, Shared Delivery of Health Care / standards Humans Motor Neuron Disease / therapy Patient-Centered Care / standards
amyotrophic lateral sclerosis co-design guidelines patient and public involvement patient engagement policy shared decision-making

Journal

Neurodegenerative disease management
ISSN: 1758-2032
Titre abrégé: Neurodegener Dis Manag
Pays: England
ID NLM: 101517977

Informations de publication

Date de publication:
04 2020
Historique:
pubmed: 1 5 2020
medline: 16 6 2021
entrez: 1 5 2020
Statut: ppublish

Résumé

This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.

Identifiants

DOI: 10.2217/nmt-2019-0031 PMID: 32352344
pubmed: 32352344
doi: 10.2217/nmt-2019-0031
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

95-101

Auteurs

Anne Hogden (A)

Australian Institute of Health Service Management, University of Tasmania, Sydney, New South Wales, Australia.
ORCID: 0000-0002-4317-7960

Camille Paynter (C)

Centre for Neuroscience of Speech, University of Melbourne, Melbourne, Victoria, Australia.

Karen Hutchinson (K)

Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia.

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Classifications MeSH

questionsmedicales.fr › Maladies métaboliques et nutritionnelles › Maladies métaboliques › Troubles de l'homéostasie des protéines › Protéinopathies TDP-43 › Sclérose latérale amyotrophique › How can we improve patient-centered care of...
questionsmedicales.fr › Régions géographiques › Océanie › Australasie › Australie › How can we improve patient-centered care of...
questionsmedicales.fr › Activités humaines › Participation des parties prenantes › Prise de décision partagée › How can we improve patient-centered care of...
questionsmedicales.fr › Qualité, accès, évaluation des soins de santé › Prestations des soins de santé › How can we improve patient-centered care of...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › How can we improve patient-centered care of...
questionsmedicales.fr › Maladies du système nerveux › Maladies neuromusculaires › Maladies du motoneurone › How can we improve patient-centered care of...
questionsmedicales.fr › Administration des services de santé › Gestion des soins aux patients › Services de santé polyvalents › Soins de santé primaires › Soins centrés sur le patient › How can we improve patient-centered care of...