Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis.
PIMD
ageing
disability
knowledge
parents
Journal
Journal of applied research in intellectual disabilities : JARID
ISSN: 1468-3148
Titre abrégé: J Appl Res Intellect Disabil
Pays: England
ID NLM: 9613616
Informations de publication
Date de publication:
Nov 2020
Nov 2020
Historique:
received:
03
07
2019
revised:
21
02
2020
accepted:
28
03
2020
pubmed:
6
5
2020
medline:
19
8
2021
entrez:
6
5
2020
Statut:
ppublish
Résumé
Parents' knowledge of their child with profound intellectual and multiple disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this study was to explore the nature and transferability of this knowledge. We conducted an interpretative synthesis, searched PubMed, CINAHL, Philosopher's Index and PsycINFO and included fourteen studies. Parents' knowledge was based on their long-lasting and special bond with their child and described as an intuition, a gut feeling, a sixth sense and a sense of knowing. Parents applied their knowledge as experts in interpreting their child's intended communication, well-being and pain, and as advocates opposing the more objectivist approach of medical professionals. Showing by example and passing on narratives were seen as important ways of transferring this knowledge. Suggestions are made on how to apply and retain parents' knowledge to improve care and support for people with PIMD.
Sections du résumé
BACKGROUND
BACKGROUND
Parents' knowledge of their child with profound intellectual and multiple disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this study was to explore the nature and transferability of this knowledge.
METHOD
METHODS
We conducted an interpretative synthesis, searched PubMed, CINAHL, Philosopher's Index and PsycINFO and included fourteen studies.
RESULTS
RESULTS
Parents' knowledge was based on their long-lasting and special bond with their child and described as an intuition, a gut feeling, a sixth sense and a sense of knowing. Parents applied their knowledge as experts in interpreting their child's intended communication, well-being and pain, and as advocates opposing the more objectivist approach of medical professionals. Showing by example and passing on narratives were seen as important ways of transferring this knowledge.
CONCLUSIONS
CONCLUSIONS
Suggestions are made on how to apply and retain parents' knowledge to improve care and support for people with PIMD.
Identifiants
pubmed: 32367663
doi: 10.1111/jar.12740
pmc: PMC7687241
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
1141-1150Subventions
Organisme : ZonMw
ID : 845004009
Informations de copyright
© 2020 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.
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