The perception of people with cancer of starting a conversation about palliative care: A qualitative interview study.
Qualitative research
behaviour
behavioural theory
health communication
health promotion
neoplasms
palliative care
terminal care
Journal
European journal of cancer care
ISSN: 1365-2354
Titre abrégé: Eur J Cancer Care (Engl)
Pays: England
ID NLM: 9301979
Informations de publication
Date de publication:
Sep 2020
Sep 2020
Historique:
received:
23
07
2019
revised:
14
04
2020
accepted:
08
06
2020
pubmed:
3
7
2020
medline:
30
9
2021
entrez:
3
7
2020
Statut:
ppublish
Résumé
Communication and patient-centred care are important determinants for timely initiation of palliative care. Therefore, we aimed to understand and explain the behaviour "starting a conversation about palliative care with a professional carer" from the perspective of people with incurable cancer. A qualitative study using semi-structured face-to-face interviews with 25 people with incurable cancer: 13 not (yet) receiving palliative care and 12 receiving palliative care; 4 started the conversation themselves. Determinants related to the defined behaviour were matched with concepts in existing behavioural theories. Both positive and negative stances towards starting a conversation about palliative care with a professional carer were found. Influencing behavioural factors were identified, such as knowledge (e.g. about palliative care), attitude (e.g. association of palliative care with quality of life) and social influence (e.g. relationship with the professional carer). We modelled the determinants into a behavioural model. The behavioural model developed helps to explain why people with incurable cancer do or do not start a conversation about palliative care with their professional carer. By targeting the modifiable determinants of the model, promising interventions can be developed to help patients taken the initiative in communication about palliative care with a professional carer.
Types de publication
Journal Article
Langues
eng
Pagination
e13282Subventions
Organisme : Research Foundation Flanders
Organisme : Special Research Fund Ghent University
Informations de copyright
© 2020 John Wiley & Sons Ltd.
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