Mind the gap: Comparing perspectives of service providers to the needs of people with dementia living in the community.

Australia aged care community services dementia interpretive description service providers

Journal

Dementia (London, England)
ISSN: 1741-2684
Titre abrégé: Dementia (London)
Pays: England
ID NLM: 101128698

Informations de publication

Date de publication:
May 2021
Historique:
pubmed: 7 8 2020
medline: 5 8 2021
entrez: 7 8 2020
Statut: ppublish

Résumé

Research with West Australian people with dementia and their carers living in the community identified that they have a diverse range of needs. However, little is known about the needs of people with dementia and their carers from the perspectives of service providers who provide formal support. This study aimed to investigate the needs of people with dementia and their carers living in the community from the perspectives of service providers, and compare this to service recipients. This interpretive descriptive study used focus groups to collect qualitative data from service providers ( Three major themes were identified: (i) services and supports required by people with dementia and their carers should be flexible, tailored, and equitable; (ii) building capacity to support carers and people with dementia; and (iii) systems designed to care were fragmented and difficult to navigate. Service providers prioritise needs that are limited to their current capacity to provide in contrast to the holistic needs of people with dementia and their carers. There was poor alignment between the perceived needs of people with dementia and their carers and the needs prioritised by service providers in the West Australian community. This gap may reduce the ability of services to effectively support people with dementia to remain living in the community.

Identifiants

pubmed: 32755229
doi: 10.1177/1471301220947837
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1425-1441

Auteurs

Marina Ciccarelli (M)

Curtin University, Australia.

Annette Joosten (A)

Curtin University, Australia.

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Classifications MeSH