Respiratory, birth and health economic measures for use with Indigenous Australian infants in a research trial: a modified Delphi with an Indigenous panel.
Indigenous
Infant
Measures
Respiratory
Journal
BMC pediatrics
ISSN: 1471-2431
Titre abrégé: BMC Pediatr
Pays: England
ID NLM: 100967804
Informations de publication
Date de publication:
05 08 2020
05 08 2020
Historique:
received:
18
02
2020
accepted:
23
07
2020
entrez:
8
8
2020
pubmed:
8
8
2020
medline:
15
5
2021
Statut:
epublish
Résumé
There is significant disparity between the respiratory health of Indigenous and non-Indigenous Australian infants. There is no culturally accepted measure to collect respiratory health outcomes in Indigenous infants. The aim of this study was to gain end user and expert consensus on the most relevant and acceptable respiratory and birth measures for Indigenous infants at birth, between birth and 6 months, and at 6 months of age follow-up for use in a research trial. A three round modified Delphi process was conducted from February 2018 to April 2019. Eight Indigenous panel members, and 18 Indigenous women participated. Items reached consensus if 7/8 (≥80%) panel members indicated the item was 'very essential'. Qualitative responses by Indigenous women and the panel were used to modify the 6 months of age surveys. In total, 15 items for birth, 48 items from 1 to 6 months, and five potential questionnaires for use at 6 months of age were considered. Of those, 15 measures for birth were accepted, i.e., gestational age, birth weight, Neonatal Intensive Care Unit (NICU) admissions, length, head circumference, sex, Apgar score, substance use, cord blood gas values, labour, birth type, health of the mother, number people living in the home, education of mother and place of residence. Seventeen measures from 1-to 6 months of age were accepted, i.e., acute respiratory symptoms (7), general health items (2), health care utilisation (6), exposure to tobacco smoke (1), and breastfeeding status (1). Three questionnaires for use at 6 months of age were accepted, i.e., a shortened 33-item respiratory questionnaire, a clinical history survey and a developmental questionnaire. In a modified Delphi process with an Indigenous panel, measures and items were proposed for use to assess respiratory, birth and health economic outcomes in Indigenous Australian infants between birth and 6 months of age. This initial step can be used to develop a set of relevant and acceptable measures to report respiratory illness and birth outcomes in community based Indigenous infants.
Sections du résumé
BACKGROUND
There is significant disparity between the respiratory health of Indigenous and non-Indigenous Australian infants. There is no culturally accepted measure to collect respiratory health outcomes in Indigenous infants. The aim of this study was to gain end user and expert consensus on the most relevant and acceptable respiratory and birth measures for Indigenous infants at birth, between birth and 6 months, and at 6 months of age follow-up for use in a research trial.
METHODS
A three round modified Delphi process was conducted from February 2018 to April 2019. Eight Indigenous panel members, and 18 Indigenous women participated. Items reached consensus if 7/8 (≥80%) panel members indicated the item was 'very essential'. Qualitative responses by Indigenous women and the panel were used to modify the 6 months of age surveys.
RESULTS
In total, 15 items for birth, 48 items from 1 to 6 months, and five potential questionnaires for use at 6 months of age were considered. Of those, 15 measures for birth were accepted, i.e., gestational age, birth weight, Neonatal Intensive Care Unit (NICU) admissions, length, head circumference, sex, Apgar score, substance use, cord blood gas values, labour, birth type, health of the mother, number people living in the home, education of mother and place of residence. Seventeen measures from 1-to 6 months of age were accepted, i.e., acute respiratory symptoms (7), general health items (2), health care utilisation (6), exposure to tobacco smoke (1), and breastfeeding status (1). Three questionnaires for use at 6 months of age were accepted, i.e., a shortened 33-item respiratory questionnaire, a clinical history survey and a developmental questionnaire.
CONCLUSIONS
In a modified Delphi process with an Indigenous panel, measures and items were proposed for use to assess respiratory, birth and health economic outcomes in Indigenous Australian infants between birth and 6 months of age. This initial step can be used to develop a set of relevant and acceptable measures to report respiratory illness and birth outcomes in community based Indigenous infants.
Identifiants
pubmed: 32758202
doi: 10.1186/s12887-020-02255-x
pii: 10.1186/s12887-020-02255-x
pmc: PMC7409441
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
368Subventions
Organisme : National Health and Medical Research Council
ID : APP1116084
Pays : International
Références
Front Pediatr. 2017 Oct 31;5:228
pubmed: 29164080
Midwifery. 2014 Apr;30(4):447-55
pubmed: 23786990
J Paediatr Child Health. 2020 Jul;56(7):1066-1071
pubmed: 32096321
Cochrane Database Syst Rev. 2015 Dec 22;(12):CD010078
pubmed: 26690977
Med J Aust. 2002 Aug 19;177(4):200-4
pubmed: 12175325
J Clin Epidemiol. 2003 Jul;56(7):629-35
pubmed: 12921931
J Clin Epidemiol. 2000 Aug;53(8):793-9
pubmed: 10942861
Eur Respir J. 2001 Feb;17(2):254-8
pubmed: 11334128
BMC Psychiatry. 2009 Aug 03;9:47
pubmed: 19646284
Aust J Rural Health. 2002 Jun;10(3):147-53
pubmed: 12081507
Chest. 2016 Jan;149(1):106-19
pubmed: 26356242
BJOG. 2011 Dec;118(13):1557-67
pubmed: 21895950
Pediatr Pulmonol. 1999 Jan;27(1):5-13
pubmed: 10023785
PLoS One. 2015 Jun 19;10(6):e0130994
pubmed: 26091283
PLoS One. 2014 Nov 05;9(11):e111249
pubmed: 25372606
Med J Aust. 2010 May 17;192(10):586-90
pubmed: 20477735
Med J Aust. 2008 May 19;188(10):588-91
pubmed: 18484933
BMC Health Serv Res. 2019 Aug 13;19(1):561
pubmed: 31409413
J Paediatr Child Health. 2020 Jan;56(1):55-60
pubmed: 31054237
Lancet Child Adolesc Health. 2020 Jun;4(6):425-434
pubmed: 32450122
Int J Tuberc Lung Dis. 2009 Sep;13(9):1174-82
pubmed: 19723410
BMJ Open. 2018 Jun 27;8(6):e023861
pubmed: 29950481
Arch Dis Child. 2007 Oct;92(10):861-5
pubmed: 17502330
Health Expect. 2015 Oct;18(5):1151-66
pubmed: 23731468
Respirology. 2018 Oct;23(10):927-934
pubmed: 29641841
Eur Respir J. 1995 Mar;8(3):483-91
pubmed: 7789502
BMC Med Res Methodol. 2016 May 20;16:56
pubmed: 27206853
Eur Respir J. 2016 Jul;48(1):115-24
pubmed: 26965294
PLoS One. 2011;6(6):e20476
pubmed: 21694759
Med J Aust. 2006 Apr 17;184(8):398-403
pubmed: 16618239
Pediatr Clin North Am. 2009 Dec;56(6):1303-21
pubmed: 19962023
Value Health. 2011 Dec;14(8):1101-8
pubmed: 22152180
Front Pediatr. 2015 Feb 13;3:9
pubmed: 25741502
Qual Health Res. 2016 Apr;26(5):613-25
pubmed: 25488936
Arch Dis Child. 2000 Apr;82(4):327-32
pubmed: 10735844
BMC Pediatr. 2015 May 14;15:56
pubmed: 25971445
Med J Aust. 2009 May 18;190(10):574-9
pubmed: 19450207
BMJ Open. 2019 Jun 11;9(6):e028397
pubmed: 31189682
Int J Pediatr Otorhinolaryngol. 2016 Jul;86:224-32
pubmed: 27260611
J Clin Epidemiol. 2014 Apr;67(4):401-9
pubmed: 24581294
Prim Care Respir J. 2012 Jun;21(2):145-52
pubmed: 22273629
Eur Respir J. 1998 Feb;11(2):462-6
pubmed: 9551755
J Paediatr Child Health. 2019 Jul;55(7):833-843
pubmed: 30444010