Acceptability of the health-related quality of life instrument EQ-5D-Y-5L among patients in child and adolescent psychiatric inpatient care.


Journal

Acta paediatrica (Oslo, Norway : 1992)
ISSN: 1651-2227
Titre abrégé: Acta Paediatr
Pays: Norway
ID NLM: 9205968

Informations de publication

Date de publication:
03 2021
Historique:
received: 07 05 2020
revised: 02 07 2020
accepted: 18 08 2020
pubmed: 21 8 2020
medline: 15 5 2021
entrez: 21 8 2020
Statut: ppublish

Résumé

The generic EuroQol 5 Dimensions Youth 5 Level (EQ-5D-Y-5L) measures health-related quality of life among children from 8 years. Respondents report their health on five dimensions with five severity levels and rate their overall health on a visual analogue scale (EQ VAS). The aim of the study was to explore acceptability of the EQ-5D-Y-5L instrument among patients in child and adolescent psychiatric inpatient care. A convenience sample of patients within a psychiatric inpatient care clinic in Region Stockholm, Sweden, was used. Follow-up questions were answered directly after filling in the EQ-5D-Y-5L. Conventional qualitative content analysis was chosen to analyse the open-ended questions on how they perceived answering the instrument. In total, 52 patients (83% girls), mean age 15.4 years (range 13-17), were included. Three themes emerged: generic content of the EQ-5D-Y-5L descriptive system; design and wording of the EQ-5D-Y-5L descriptive system and the EQ VAS; self-reporting health with the EQ-5D-Y-5L descriptive system and the EQ VAS. The inclusion of physical health dimensions was perceived as positive, but some patients considered the descriptive system too generic. The results indicate that these patients in general could self-report their health in a meaningful way with the EQ-5D-Y-5L instrument.

Identifiants

pubmed: 32815186
doi: 10.1111/apa.15547
pmc: PMC7983875
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

899-906

Informations de copyright

© 2020 The Authors. Acta Paediatrica published by John Wiley & Sons Ltd on behalf of Foundation Acta Paediatrica.

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Auteurs

Sonja Krig (S)

Health Outcomes and Economic Evaluation Research Group, Department of Learning, Informatics, Management and Ethics, Stockholm Centre for Healthcare Ethics, Karolinska Institutet, Stockholm, Sweden.

Mimmi Åström (M)

Health Outcomes and Economic Evaluation Research Group, Department of Learning, Informatics, Management and Ethics, Stockholm Centre for Healthcare Ethics, Karolinska Institutet, Stockholm, Sweden.
Equity and Health Policy Research Group, Department of Global Public Health, Karolinska Institutet, Stockholm, Sweden.
Health Care Services, Region Stockholm, Stockholm, Sweden.

Asli Kulane (A)

Equity and Health Policy Research Group, Department of Global Public Health, Karolinska Institutet, Stockholm, Sweden.

Kristina Burström (K)

Health Outcomes and Economic Evaluation Research Group, Department of Learning, Informatics, Management and Ethics, Stockholm Centre for Healthcare Ethics, Karolinska Institutet, Stockholm, Sweden.
Equity and Health Policy Research Group, Department of Global Public Health, Karolinska Institutet, Stockholm, Sweden.
Health Care Services, Region Stockholm, Stockholm, Sweden.

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