Comparison of Perceptions of Spiritual Care Among Patients With Life-Threatening Cancer, Primary Family Caregivers, and Hospice/Palliative Care Nurses in South Korea.
Journal
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association
ISSN: 1539-0705
Titre abrégé: J Hosp Palliat Nurs
Pays: United States
ID NLM: 100887419
Informations de publication
Date de publication:
12 2020
12 2020
Historique:
pubmed:
13
10
2020
medline:
14
7
2021
entrez:
12
10
2020
Statut:
ppublish
Résumé
This study aimed to compare perceptions of spiritual care among patients with life-threatening cancer, their primary family caregivers, and hospice/palliative care nurses.Data were collected using both structured and unstructured approaches. Structured questionnaire data were examined using statistical analysis methods, and unstructured data were examined using content analysis to compare the 3 participant groups. The questionnaire revealed that among all 3 groups, spiritual care was commonly perceived to relate to "having the opportunity for internal reflection," "finding meaning," "encouraging hope," and "listening to and being with patients." Content analysis of the unstructured data revealed 5 themes: "Caring with sincerity," "Strengthening spiritual resources," "Alleviating physical pain and discomfort" (among patients and primary family caregivers only), "Improving spiritual care service," and "Multifaceted cooperation" (among hospice/palliative care nurses only). Our findings suggest that for patients with life-threatening illnesses such as terminal cancer, spiritual care should not be limited to religious practice but should also satisfy inner existential needs, for example, by encouraging hope, providing empathy, and helping patients find meaning in their circumstances.
Identifiants
pubmed: 33044420
doi: 10.1097/NJH.0000000000000697
pii: 00129191-202012000-00018
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
532-551Références
Lopez-Sierra HE, Rodriguez-Sanchez J. The supportive roles of religion and spirituality in end-of-life and palliative care of patients with cancer in a culturally diverse context: a literature review. Curr Opin Support Palliat Care. 2015;9(1):87–95.
Ross L, Austin J. Spiritual needs and spiritual support preferences of people with end-stage heart failure and their carers: implications for nurse managers. J Nurs Manag. 2015;23(1):87–95.
Hatamipour K, Rassouli M, Yaghmaie F, Zendedel K, Majd HA. Spiritual needs of cancer patients: a qualitative study. Indian J Palliat Care. 2015;21(1):61–67.
Blaber M, Jone J, Willis D. Spiritual care: which is the best assessment tool for palliative settings?Int J Palliat Nurs. 2015;21(9):430–438.
Astrow AB, Kwok G, Sharma RK, Fromer N, Sulmasy DP. Spiritual needs and perception of quality of care and satisfaction with care in hematology/medical oncology patients: a multicultural assessment. J Pain Symptom Manage. 2018;55(1):56–64.e1.
Garssen B, Uwland-Sikkema NF, Visser A. How spirituality helps cancer patients with the adjustment to their disease. J Relig Health. 2015;54(4):1249–1265.
Harrad R, Cosentino C, Keasley R, Sulla F. Spiritual care in nursing: an overview of the measures used to assess spiritual care provision and related factors amongst nurses. Acta Biomed. 2019;90(4-S):44–45.
World Health Organization. Palliative care for older people: better practices. http://tinyurl.com/pwbkz4k. Published 2011. Accessed September 10, 2015.
Hodge DR. Administering a two-stage spiritual assessment in healthcare settings: a necessary component of ethical and effective care. J Nurs Manag. 2015;23(1):27–38.
Sun V, Kim JY, Irish TL, et al. Palliative care and spiritual well-being in lung cancer patients and family caregivers. Psychooncology. 2016;25(12):1448–1455.
Taylor EJ, Mamier I. Spiritual care nursing: what cancer patients and family caregivers want. J Adv Nurs. 2005;49(3):260–267.
Mamier I, Taylor EJ. Psychometric evaluation of the nurse spiritual care therapeutics scale. West J Nurs Res. 2015;37(5):679–694.
Polit DF, Yang F. Measurement and the Measurement of Change: A Primer for the Health Professions. Philadelphia, PA: Wolters Kluwer; 2016.
Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–115.
Sandelowski M. The problem of rigor in qualitative research. Adv Nurs Sci. 1986;8(3):27–37.
Kim YJ, Choi O, Kim B, Chun J, Kang KA. Comparison of spiritual needs between patients with progressive terminal kidney disease and their family caregivers. Korean J Hosp Palliat Care. 2020;23(1):27–38.
Tsai YC, Wang YH, Chou LN. Caring behavior exhibited by Taiwanese nurses. Int J Caring Sci. 2015;8(2):317–322.
Yao Y, Stifter J, Ezenwa MO, et al. Infomarkers for transition to goals consistent with palliative care in dying patients. Palliat Support Care. 2015;13:1427–1434.
Azarsa T, Davoodi A, Khorami Markani A, Gahramanian A, Vargaeei A. Spiritual wellbeing, attitude toward spiritual care and its relationship with spiritual care competence among critical care nurses. J Caring Sci. 2015;4(4):309–320.
Daudt H, d'Archangelo M, Duquette D. Spiritual care training in healthcare: does it really have an impact?Palliat Support Care. 2018;17:1–9.
Balboni TA, Fitchett G, Handzo GF, et al. State of the science of spirituality and palliative care research part II: screening, assessment, and interventions. J Pain Symptom Manage. 2017;54(3):441–453.
Buetow S. Person-Centered Health Care: Balancing the Welfare of Clinicians and Patients. New York, NY: Routledge; 2016.
Best M, Aldridge L, Butow P, et al. Assessment of spiritual suffering in the cancer context: a systematic literature review. Palliat Support Care. 2015;13:1335–1361.
Riahi S, Goudarzi F, Hasanvand S, et al. Assessing the effect of spiritual intelligence training on spiritual care competency in critical care nurses. J Med Life. 2018;11(4):346–354.
Snowden A, Lobb EA, Schmidt S, et al. ‘What's on your mind?’ The only necessary question in spiritual care. J Study Spirituality. 2018;8(1):19–33.
Balboni MJ, Sullivan A, Enzinger AC, et al. Nurse and physician barriers to spiritual care provision at the end of life. J Pain Symptom Manage. 2014;48(3):400–410.