Church leaders and parishioners speak out about the role of the church in advance care planning and end-of-life care.

African American Church Disparities in end-of-life care End-of-life care Palliative care

Journal

Palliative & supportive care
ISSN: 1478-9523
Titre abrégé: Palliat Support Care
Pays: England
ID NLM: 101232529

Informations de publication

Date de publication:
06 2021
Historique:
pubmed: 30 10 2020
medline: 12 10 2021
entrez: 29 10 2020
Statut: ppublish

Résumé

Despite the increased focus on improving advance care planning (ACP) in African Americans through community partnerships, little published research focused on the role of the African American church in this effort. This study examines parishioner perceptions and beliefs about the role of the church in ACP and end-of-life care (EOLC). Qualitative interviews were completed with 25 church members (parishioners n = 15, church leader n = 10). The coding of data entailed a direct content analysis approach incorporating team experts for final themes. Seven themes emerged: (1) church role on end-of-life, (2) advocacy for health and well-being, (3) health literacy in EOLC, (4) lay health training on ACP and EOLC, (5) church recognized as a trusted source, (6) use of church ministries to sustain programs related to ACP and EOLC, and (7) community resources for EOLC needs. The church has a central role in the African American Community. These findings suggest that involving African American churches in ACP and EOLC training can have a positive effect on facilitating planning and care during illness, dying, and death for their congregants.

Identifiants

pubmed: 33118897
doi: 10.1017/S1478951520000966
pii: S1478951520000966
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

322-328

Auteurs

Danetta Hendricks Sloan (DH)

Assistant Scientist, Department of Health, Behavior, and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.

Tamryn F Gray (TF)

Post-Doctoral Research Fellow, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Harvard Medical School, Boston, MA.

Darriel Harris (D)

Graduate Student, Department of Health, Behavior, and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.

Theodora Peters (T)

Marketing Outreach Coordinator, Eldercare Plus, Johns Hopkins Bayview Medical Center, Baltimore, MD.

Anne Belcher (A)

Associate Professor, Johns Hopkins University School of Education, Baltimore, MD.

Rebecca Aslakson (R)

Associate Professor, Palliative Care Section, Division of Primary Care & Population Health, Department of Medicine, Stanford University, Stanford, CA.

Janice Bowie (J)

Professor, Department of Health, Behavior, and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.

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