Translation, cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for informal Carers (German ASCOT-Carer).


Journal

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
ISSN: 1573-2649
Titre abrégé: Qual Life Res
Pays: Netherlands
ID NLM: 9210257

Informations de publication

Date de publication:
Mar 2021
Historique:
accepted: 13 10 2020
pubmed: 3 11 2020
medline: 20 4 2021
entrez: 2 11 2020
Statut: ppublish

Résumé

The Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), developed in England, measures the effects of long-term care (LTC) services and carer support on informal carers' quality of life (QoL). Translations of the ASCOT-Carer into other languages are useful for national and cross-national studies. The aim of this paper was to report on the translation and cultural adaptation of the original English ASCOT-Carer into German, to assess its content validity and to test for its construct validity (convergent and discriminative/known-group validity). Translation and cultural adaptation followed the ISPOR TCA guidelines. As part of the translation and adaptation process, five cognitive debriefing interviews with informal carers were used for evaluating linguistic and content validity. In addition, a sample of 344 informal carers of older adults, who received home care services in Austria, was used for hypothesis testing as suggested by the COSMIN checklist to assess convergent and discriminative/known-group validity as part of construct validity. Cognitive interviews provided evidence that questions and response options of the German ASCOT-Carer were understood as intended. Associations between ASCOT-Carer scores/domains and related outcome measures (convergent validity) and expected groups of informal carers and the care service users they care for (discriminative validity) supported construct validity of the translated instrument. The German ASCOT-Carer instrument meets the required standards for content and construct validity which supports its usefulness for (cross-)national studies on LTC-service-related QoL-outcomes in informal carers. Research is encouraged to assess further measurement properties of the translated instrument.

Identifiants

pubmed: 33136242
doi: 10.1007/s11136-020-02682-4
pii: 10.1007/s11136-020-02682-4
pmc: PMC7952350
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

905-920

Subventions

Organisme : NORFACE Welfare State Futures programme
ID : 462-14-160
Organisme : Austrian Science Fund
ID : I 2252-G16

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Auteurs

Birgit Trukeschitz (B)

WU Vienna University of Economics and Business, Vienna, Austria. birgit.trukeschitz@wu.ac.at.

Assma Hajji (A)

WU Vienna University of Economics and Business, Vienna, Austria.

Judith Litschauer (J)

WU Vienna University of Economics and Business, Vienna, Austria.

Juliette Malley (J)

London School of Economics and Political Science, London, UK.

Adiam Schoch (A)

WU Vienna University of Economics and Business, Vienna, Austria.

Stacey Rand (S)

University of Kent, Canterbury, UK.

Ismo Linnosmaa (I)

Finnish Institute for Health and Welfare, Helsinki, Finland.
University of Eastern Finland, Kuopio, Finland.

Julien Forder (J)

University of Kent, Canterbury, UK.

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