Telling the Truth to Child Cancer Patients in COVID-19 Times.

Bioethics COVID-19 Cancer care Communication Disclosure Pre-adolescent child Truth-telling

Journal

Journal of bioethical inquiry
ISSN: 1872-4353
Titre abrégé: J Bioeth Inq
Pays: Netherlands
ID NLM: 101250741

Informations de publication

Date de publication:
12 2020
Historique:
received: 12 05 2020
accepted: 21 09 2020
pubmed: 11 11 2020
medline: 2 1 2021
entrez: 10 11 2020
Statut: ppublish

Résumé

A notable feature of the COVID-19 pandemic is that children are less at risk of becoming infected or, if infected, less likely to become seriously unwell, so ethical discussions have consequently focused on the adult healthcare setting. However, despite a lower risk of children becoming acutely ill with COVID-19, there nevertheless may be significant and potentially sustained effects of COVID-19 on the physical, psychological, and emotional health and well-being of children. Focusing on the context of children's cancer care, and specifically bone marrow transplant (BMT), we describe some of these effects and then address one specific ethical challenge that arises. That is the question of what and how much to tell children whose cancer treatment has been changed because of COVID-19. Drawing on our previous work on the ethical reasons for telling the truth to younger children (aged 5-12) we link different ethical reasons to the different types of information that could be given to children in this context. We argue that children should be given an explanation of the changes that they will directly experience, including some changes to the process of their actual medical treatment; but not about increased risk associated with these changes, unless they specifically ask for this information.

Identifiants

pubmed: 33169257
doi: 10.1007/s11673-020-10052-5
pii: 10.1007/s11673-020-10052-5
pmc: PMC7651796
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

797-801

Subventions

Organisme : Australian Research Council
ID : DP170102906
Pays : International

Références

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Auteurs

Lynn Gillam (L)

Children's Bioethics Centre, Royal Children's Hospital, Melbourne, Australia. Lynn.gillam@rch.org.au.
Melbourne School of Population and Global Health, The University of Melbourne, 50 Flemington Road, Parkville, Victoria, 3052, Australia. Lynn.gillam@rch.org.au.

Merle Spriggs (M)

Children's Bioethics Centre, Royal Children's Hospital, Melbourne, Australia.
Melbourne School of Population and Global Health, The University of Melbourne, 50 Flemington Road, Parkville, Victoria, 3052, Australia.
Honorary Research Fellow, Murdoch Children's Research Institute, Melbourne, Australia.

Clare Delany (C)

Children's Bioethics Centre, Royal Children's Hospital, Melbourne, Australia.
Department of Medical Education, Melbourne Medical School, The University of Melbourne, 50 Flemington Road, Parkville, Victoria, 3052, Australia.
Peter MacCallum, Cancer Centre, Melbourne, Australia.

Rachael Conyers (R)

Children's Cancer Centre, The Royal Children's Hospital, Melbourne, Australia.
Department of Paediatrics, University of Melbourne, 50 Flemington Road, Parkville, Victoria, 3052, Australia.
Cardiac Regeneration, Cell Biology, Murdoch Children's Research Institute, Melbourne, Australia.

Maria McCarthy (M)

Department of Paediatrics, University of Melbourne, 50 Flemington Road, Parkville, Victoria, 3052, Australia.
Psycho-oncology Program, The Royal Children's Hospital, Melbourne, Australia.
Brain and Mind, Murdoch Children's Research Institute, Melbourne, Australia.

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Classifications MeSH