Patient and caregiver perspectives on burnout in peritoneal dialysis.

Australia Burnout, Psychological Caregivers Hong Kong / epidemiology Humans Peritoneal Dialysis / adverse effects Renal Dialysis
Burden burnout dialysis peritoneal dialysis qualitative

Journal

Peritoneal dialysis international : journal of the International Society for Peritoneal Dialysis
ISSN: 1718-4304
Titre abrégé: Perit Dial Int
Pays: United States
ID NLM: 8904033

Informations de publication

Date de publication:
Sep 2021
Historique:
pubmed: 12 11 2020
medline: 25 11 2021
entrez: 11 11 2020
Statut: ppublish

Résumé

Peritoneal dialysis (PD) can offer patients more autonomy and flexibility compared with in-center hemodialysis (HD). However, burnout - defined as mental, emotional, or physical exhaustion that leads to thoughts of discontinuing PD - is associated with an increased risk of transfer to HD. We aimed to describe the perspectives of burnout among patients on PD and their caregivers. In this focus group study, 81 patients and 45 caregivers participated in 14 focus groups from 9 dialysis units in Australia, Hong Kong, and the United States. Transcripts were analyzed thematically. We identified two themes. For patients on PD and their caregivers, burnout was intensified by perceiving PD as an unrelenting, isolating responsibility that they had no choice but to endure, even if it held them back from doing other activities in life. More emphasis on developing strategies to adapt and build resilience could prevent or minimize burnout.

Sections du résumé

BACKGROUND BACKGROUND
Peritoneal dialysis (PD) can offer patients more autonomy and flexibility compared with in-center hemodialysis (HD). However, burnout - defined as mental, emotional, or physical exhaustion that leads to thoughts of discontinuing PD - is associated with an increased risk of transfer to HD. We aimed to describe the perspectives of burnout among patients on PD and their caregivers.
METHODS METHODS
In this focus group study, 81 patients and 45 caregivers participated in 14 focus groups from 9 dialysis units in Australia, Hong Kong, and the United States. Transcripts were analyzed thematically.
RESULTS RESULTS
We identified two themes.
CONCLUSIONS CONCLUSIONS
For patients on PD and their caregivers, burnout was intensified by perceiving PD as an unrelenting, isolating responsibility that they had no choice but to endure, even if it held them back from doing other activities in life. More emphasis on developing strategies to adapt and build resilience could prevent or minimize burnout.

Identifiants

DOI: 10.1177/0896860820970064 PMID: 33174471
pubmed: 33174471
doi: 10.1177/0896860820970064
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

484-493

Auteurs

Justin Oveyssi (J)

St. Mary's Medical Center, Long Beach, CA, USA.

Karine E Manera (KE)

Sydney School of Public Health, 4334The University of Sydney, New South Wales, Australia.
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.

Amanda Baumgart (A)

Sydney School of Public Health, 4334The University of Sydney, New South Wales, Australia.
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.

Yeoungjee Cho (Y)

Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia.
Centre for Kidney Disease Research, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia.
Australasian Kidney Trials Network at the University of Queensland, Brisbane, Australia.

Derek Forfang (D)

National Forum of ESRD Networks, San Pablo, CA, USA.

Anjali Saxena (A)

Division of Nephrology, Department of Medicine, Stanford University School of Medicine, Palo Alto, CA, USA.

Jonathan C Craig (JC)

Sydney School of Public Health, 4334The University of Sydney, New South Wales, Australia.
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.
College of Medicine and Public Health, Flinders University, Adelaide, Australia.

Samuel Ks Fung (SK)

Division of Nephrology, Department of Medicine and Geriatrics, Jockey Club Nephrology and Urology Centre, Princess Margaret Hospital, Kowloon, Hong Kong, China.

David Harris (D)

Sydney Medical School, 4334The University of Sydney, Australia.

David W Johnson (DW)

Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia.
Centre for Kidney Disease Research, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia.
Australasian Kidney Trials Network at the University of Queensland, Brisbane, Australia.

Peter G Kerr (PG)

Department of Nephrology, Monash Health, Victoria, Australia.

Achilles Lee (A)

Department of Medicine and Geriatrics, 36658Tuen Mun Hospital, Hong Kong, China.

Lorena Ruiz (L)

Lundquist Institute at Harbor-UCLA Medical Center, Torrance, CA, USA.

Matthew Tong (M)

Department of Medicine and Geriatrics, 260246Pok Oi Hospital, Yuen Long, Hong Kong, China.
ORCID: 0000-0003-4859-5181

Angela Yee-Moon Wang (AY)

Department of Medicine, Queen Mary Hospital, University of Hong Kong, Hong Kong, China.
ORCID: 0000-0003-2508-7117

Terence Yip (T)

Department of Medicine, Tung Wah Hospital, Hong Kong, China.

Allison Tong (A)

Sydney School of Public Health, 4334The University of Sydney, New South Wales, Australia.
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.

Jenny I Shen (JI)

Lundquist Institute at Harbor-UCLA Medical Center, Torrance, CA, USA.
David Geffen School of Medicine at UCLA, Los Angeles, CA, USA.
ORCID: 0000-0002-2993-403X

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Classifications MeSH

questionsmedicales.fr › Régions géographiques › Océanie › Australasie › Australie › Patient and caregiver perspectives on burnout...
questionsmedicales.fr › Phénomènes psychologiques › Stress psychologique › Épuisement psychologique › Patient and caregiver perspectives on burnout...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Personnel de santé › Aidants › Patient and caregiver perspectives on burnout...
questionsmedicales.fr › Régions géographiques › Asie › Extrême-Orient › Chine › Hong Kong › Patient and caregiver perspectives on burnout...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Patient and caregiver perspectives on burnout...
questionsmedicales.fr › Thérapeutique › Détoxication par sorption › Dialyse rénale › Dialyse péritonéale › Patient and caregiver perspectives on burnout...
questionsmedicales.fr › Thérapeutique › Détoxication par sorption › Dialyse rénale › Patient and caregiver perspectives on burnout...