Risdiplam treatment has not led to retinal toxicity in patients with spinal muscular atrophy.


Journal

Annals of clinical and translational neurology
ISSN: 2328-9503
Titre abrégé: Ann Clin Transl Neurol
Pays: United States
ID NLM: 101623278

Informations de publication

Date de publication:
01 2021
Historique:
received: 23 07 2020
revised: 07 10 2020
accepted: 07 10 2020
pubmed: 25 11 2020
medline: 9 10 2021
entrez: 24 11 2020
Statut: ppublish

Résumé

Evaluation of ophthalmologic safety with focus on retinal safety in patients with spinal muscular atrophy (SMA) treated with risdiplam (EVRYSDI®), a survival of motor neuron 2 splicing modifier associated with retinal toxicity in monkeys. Risdiplam was approved recently for the treatment of patients with SMA, aged ≥ 2 months in the United States, and is currently under Health Authority review in the EU. Subjects included patients with SMA aged 2 months-60 years enrolled in the FIREFISH, SUNFISH, and JEWELFISH clinical trials for risdiplam. Ophthalmologic assessments, including functional assessments (age-appropriate visual acuity and visual field) and imaging (spectral domain optical coherence tomography [SD-OCT], fundus photography, and fundus autofluorescence [FAF]), were conducted at baseline and every 2-6 months depending on study and assessment. SD-OCT, FAF, fundus photography, and threshold perimetry were evaluated by an independent, masked reading center. Adverse events (AEs) were reported throughout the study. A total of 245 patients receiving risdiplam were assessed. Comprehensive, high-quality, ophthalmologic monitoring assessing retinal structure and visual function showed no retinal structural or functional changes. In the youngest patients, SD-OCT findings of normal retinal maturation were observed. AEs involving eye disorders were not suggestive of risdiplam-induced toxicity and resolved with ongoing treatment. Extensive ophthalmologic monitoring conducted in studies in patients with SMA confirmed that risdiplam does not induce ophthalmologic toxicity in pediatric or adult patients with SMA at the therapeutic dose. These results suggest that safety ophthalmologic monitoring is not needed in patients receiving risdiplam, as also reflected in the United States Prescribing Information for risdiplam.

Identifiants

pubmed: 33231373
doi: 10.1002/acn3.51239
pmc: PMC7818230
doi:

Substances chimiques

Azo Compounds 0
Neuromuscular Agents 0
Pyrimidines 0
Risdiplam 76RS4S2ET1

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

54-65

Informations de copyright

© 2020 The Authors. Annals of Clinical and Translational Neurology published by Wiley Periodicals LLC on behalf of American Neurological Association.

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Auteurs

Robert C Sergott (RC)

Department of Neuro-Ophthalmology, Wills Eye Hospital, Philadelphia, USA.
Annesley EyeBrain Center, Thomas Jefferson University, Philadelphia, USA.

Giulia M Amorelli (GM)

Paediatric Neurology and Nemo Center, Catholic University and Policlinico Gemelli, Rome, Italy.

Giovanni Baranello (G)

The Dubowitz Neuromuscular Centre, NIHR Great Ormond Street Hospital Biomedical Research Centre, Great Ormond Street Institute of Child Health University College London, & Great Ormond Street Hospital Trust, London, UK.
Developmental Neurology Unit, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.

Emmanuel Barreau (E)

Institute of Myology, Paris, France.

Shannon Beres (S)

Department of Neurology, Department of Ophthalmology, Stanford University, Palo Alto, California, USA.

Steven Kane (S)

Columbia University Medical Center, New York, USA.

Eugenio Mercuri (E)

Paediatric Neurology and Nemo Center, Catholic University and Policlinico Gemelli, Rome, Italy.

Lorenzo Orazi (L)

Paediatric Neurology and Nemo Center, Catholic University and Policlinico Gemelli, Rome, Italy.

Melissa SantaMaria (M)

Annesley EyeBrain Center, Thomas Jefferson University, Philadelphia, USA.

Gemma Tremolada (G)

Neuro-Ophthalmology Center, Ophthalmology Department, IRCCS Istituto Auxologico Italiano, Milan, Italy.

Diletta Santarsiero (D)

Neuro-Ophthalmology Center, Ophthalmology Department, IRCCS Istituto Auxologico Italiano, Milan, Italy.

Agnieszka Waskowska (A)

Department of Developmental Neurology, Medical University of Gdańsk, Gdańsk, Poland.

Shigeko Yashiro (S)

Department of Ophthalmology, National Center for Global Health and Medicine (NCGM), Tokyo, Japan.

Nora Denk (N)

Roche Pharma Research and Early Development, Pharmaceutical Sciences, Roche Innovation Center Basel, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Sabine Fürst-Recktenwald (S)

Pharma Development Neurology, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Marianne Gerber (M)

Pharma Development, Safety, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Ksenija Gorni (K)

PDMA Neuroscience and Rare Disease, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Birgit Jaber (B)

Pharma Development, Safety, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Bjoern Jacobsen (B)

Roche Pharma Research and Early Development, Pharmaceutical Sciences, Roche Innovation Center Basel, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Lutz Mueller (L)

Roche Pharma Research and Early Development, Pharmaceutical Sciences, Roche Innovation Center Basel, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Stephane Nave (S)

Roche Pharma Research and Early Development, Pharmaceutical Sciences, Roche Innovation Center Basel, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Renata S Scalco (RS)

Pharma Development Neurology, F. Hoffmann-La Roche Ltd, Basel, Switzerland.

Stefania B Marzoli (SB)

Neuro-Ophthalmology Center, Ophthalmology Department, IRCCS Istituto Auxologico Italiano, Milan, Italy.

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