Two sides of a coin: differential response to COVID-19 distancing measures in children with narcolepsy.
COVID-19
education
homeschooling
lockdown
narcolepsy
Journal
Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine
ISSN: 1550-9397
Titre abrégé: J Clin Sleep Med
Pays: United States
ID NLM: 101231977
Informations de publication
Date de publication:
01 Apr 2021
01 Apr 2021
Historique:
pubmed:
10
12
2020
medline:
27
4
2021
entrez:
9
12
2020
Statut:
ppublish
Résumé
Narcolepsy is a chronic neurological sleep disorder, debuting before age 15 years in one-third of patients. Narcolepsy has a negative influence on quality of life, with daily functioning being affected by concomitant cognitive, behavioral, and social problems. In December 2019, a new coronavirus emerged worldwide, causing the severe respiratory disease COVID-19. In the Netherlands, a partial lockdown was implemented that included the closure of schools. Here we present 3 illustrative case reports that teach important lessons for the treatment of pediatric narcolepsy. We observed significant consequences of the partial lockdown measures on daytime functioning, well-being, and school performance, both negative and positive. The consequences of the lockdown led to valuable insights for further treatment, substantiating the importance of personalizing education. Involvement of specialized student counselors, flexibility in the way that education is delivered, and enhancement of environmental factors could help in guiding young patients with narcolepsy through challenges at school.
Identifiants
pubmed: 33295278
doi: 10.5664/jcsm.9040
pmc: PMC8020707
doi:
Types de publication
Case Reports
Langues
eng
Sous-ensembles de citation
IM
Pagination
859-862Informations de copyright
© 2021 American Academy of Sleep Medicine.
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