Ethical aspects in the care of a child with infantile spinal muscular atrophy (SMA).
Adolescent
Beneficence
Child
Child, Preschool
Humans
Infant
Informed Consent
/ ethics
Palliative Care
/ ethics
Patient Education as Topic
/ ethics
Pediatrics
/ ethics
Personal Autonomy
Physician-Patient Relations
/ ethics
Professional-Family Relations
/ ethics
Spinal Muscular Atrophies of Childhood
/ diagnosis
Terminal Care
/ ethics
Therapies, Investigational
/ ethics
Truth Disclosure
/ ethics
Announcement of the diagnosis
End of life
Ethical aspects
Infantile spinal muscular atrophy
Innovative therapies
Palliative care
SMA
Journal
Archives de pediatrie : organe officiel de la Societe francaise de pediatrie
ISSN: 1769-664X
Titre abrégé: Arch Pediatr
Pays: France
ID NLM: 9421356
Informations de publication
Date de publication:
Dec 2020
Dec 2020
Historique:
entrez:
28
12
2020
pubmed:
29
12
2020
medline:
14
9
2021
Statut:
ppublish
Résumé
The pediatrician has a privileged relationship with a child with infantile spinal muscular atrophy (SMA). At all times, he/she must be the child's mentor, promoting a comprehensive approach and support in order to ensure the best possible solution for the patient's autonomy. In all circumstances, an ethical stance is essential. After a reminder on the notions of ethics of care, we will address various ethical questions encountered through three critical situations during the care of a child with infantile spinal muscular atrophy: the announcement of the diagnosis, the transmission of information on innovative therapies, and palliative care and end-of-life support. © 2020 French Society of Pediatrics. Published by Elsevier Masson SAS. All rights reserved.
Identifiants
pubmed: 33357599
pii: S0929-693X(20)30278-5
doi: 10.1016/S0929-693X(20)30278-5
pii:
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
7S50-7S53Informations de copyright
Copyright © 2020 French Society of Pediatrics. Published by Elsevier Masson SAS. All rights reserved.