Beyond the Patient: A Mixed-Methods Inquiry Into Family Members' Involvement in the Treatment of Parkinson's Disease to Target Third-Party Disability.


Journal

American journal of speech-language pathology
ISSN: 1558-9110
Titre abrégé: Am J Speech Lang Pathol
Pays: United States
ID NLM: 9114726

Informations de publication

Date de publication:
27 01 2021
Historique:
pubmed: 31 12 2020
medline: 25 6 2021
entrez: 30 12 2020
Statut: ppublish

Résumé

Purpose Family members of people with Parkinson's disease (PD) may experience third-party disability, manifesting as difficulty managing communication breakdowns and changed relationships influenced by communication disorders. This study examined family involvement in therapy to address third-party disability from the perspective of family members of people with PD and speech-language pathologists (SLPs). Method A mixed-methods design was used with two phases of data collection. In Phase 1 qualitative interviews, nine family members shared their perspectives about their involvement in therapy. In Phase 2, a survey was developed from Phase 1 data to gather data from SLPs (

Identifiants

pubmed: 33375821
doi: 10.1044/2020_AJSLP-20-00168
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

169-185

Auteurs

Helen Mach (H)

Department of Rehabilitation Medicine, University of Washington, Seattle.

Carolyn Baylor (C)

Department of Rehabilitation Medicine, University of Washington, Seattle.

Rebecca Hunting Pompon (R)

Department of Communication Sciences and Disorders, University of Delaware, Newark.

Kathryn Yorkston (K)

Department of Rehabilitation Medicine, University of Washington, Seattle.

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Classifications MeSH