Advance Care Planning Among Older Adults of Turkish Origin in Belgium: Exploratory Interview Study.

Advance care planning ethnicity minority group older adult qualitative study

Journal

Journal of pain and symptom management
ISSN: 1873-6513
Titre abrégé: J Pain Symptom Manage
Pays: United States
ID NLM: 8605836

Informations de publication

Date de publication:
08 2021
Historique:
received: 02 09 2020
revised: 15 11 2020
accepted: 19 12 2020
pubmed: 2 1 2021
medline: 7 8 2021
entrez: 1 1 2021
Statut: ppublish

Résumé

Although conversations about future medical treatment and end-of-life care are considered to be important, ethnic minorities are much less engaged in advance care planning (ACP). To explore ACP knowledge, experiences, views, facilitators, and barriers among older adults of Turkish origin in Belgium. This qualitative study was based on constant comparative analysis of semistructured interview content. Participants were 33 older adults (aged 65-84 years; mean, 71.7 years; median, 74.5 years) of Turkish origin living in Belgium. Despite unfamiliarity with the term ACP in this sample, several participants had engaged in some ACP behaviors. Respondents considered ACP to be useful and were ready to engage in conversations about it. The most commonly mentioned facilitator was the provision of tailored information about ACP. Other facilitators included concerns about future care needs, increasing awareness among respondents' children about the advantages of ACP, and respondents' desire to avoid "burdening" their children. The most commonly mentioned barrier was respondents' lack of knowledge about ACP. Other barriers were language issues, a lack of urgency about ACP discussion, reliance on familial support, and older adults' fear of triggering negative emotions in themselves and their children. The provision of tailored information about ACP to older adults of Turkish origin in Belgium and the promotion of awareness about the importance of ACP among their children (when patients desire), as well as the use of professional interpreters, could facilitate ACP engagement in this population.

Identifiants

pubmed: 33385478
pii: S0885-3924(20)30968-4
doi: 10.1016/j.jpainsymman.2020.12.017
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

252-259

Informations de copyright

Copyright © 2020 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Auteurs

Hakki Demirkapu (H)

Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel, Brussels, Belgium. Electronic address: hakki.demirkapu@vub.be.

Lieve Van den Block (L)

End-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Brussels, Belgium.

Stéphanie De Maesschalck (S)

Department of Family Medicine and Primary Health Care, Ghent University, Ghent, Belgium.

Aline De Vleminck (A)

End-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Brussels, Belgium.

F Zehra Colak (FZ)

Centre for Migration and Intercultural Studies, University of Antwerp, Antwerp, Belgium.

Dirk Devroey (D)

Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel, Brussels, Belgium.

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Classifications MeSH