The impact of the emergence of COVID-19 on women's prenatal genetic testing decisions.
Journal
Prenatal diagnosis
ISSN: 1097-0223
Titre abrégé: Prenat Diagn
Pays: England
ID NLM: 8106540
Informations de publication
Date de publication:
07 2021
07 2021
Historique:
revised:
28
12
2020
received:
10
11
2020
accepted:
10
01
2021
pubmed:
12
2
2021
medline:
6
8
2021
entrez:
11
2
2021
Statut:
ppublish
Résumé
We conducted a study to examine the impact of COVID on patients' access and utilization of prenatal genetic screens and diagnostic tests at the onset of the COVID-19 pandemic in the United States. We conducted telephone interviews with 40 patients to examine how the pandemic affected prenatal genetic screening and diagnostic testing decisions during the initial months of the pandemic in the United States. An interview guide queried experiences with the ability to access information about prenatal genetic testing options and to utilize the tests when desired. Audio recordings were transcribed and coded using NVivo 12. Analysis was conducted using Grounded Theory. The pandemic did not alter most participants' decisions to undergo prenatal genetic testing. Yet, it did impact how participants viewed the risks and benefits of testing and timing of testing. There was heightened anxiety among those who underwent testing, stemming from the risk of viral exposure and the fear of being alone if pregnancy loss or fetal abnormality was identified at the time of an ultrasound-based procedure. The pandemic may impact patients' access and utilization of prenatal genetic tests. More research is needed to determine how best to meet pregnant patients' decision-making needs during this time.
Identifiants
pubmed: 33569794
doi: 10.1002/pd.5902
pmc: PMC8014673
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1009-1017Subventions
Organisme : NHGRI NIH HHS
ID : R01 HG010092
Pays : United States
Organisme : NHGRI NIH HHS
ID : R01HG010092
Pays : United States
Organisme : NHGRI NIH HHS
ID : R01HG010092
Pays : United States
Informations de copyright
© 2021 John Wiley & Sons Ltd.
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