'You're only there on the phone'? A qualitative exploration of community, affect and agential capacity in HIV self-testing using a smartphone app.
HIV
affect
care
digital health
mHealth
Journal
Sociology of health & illness
ISSN: 1467-9566
Titre abrégé: Sociol Health Illn
Pays: England
ID NLM: 8205036
Informations de publication
Date de publication:
03 2021
03 2021
Historique:
revised:
17
12
2020
received:
24
03
2020
accepted:
18
12
2020
pubmed:
27
2
2021
medline:
27
10
2021
entrez:
26
2
2021
Statut:
ppublish
Résumé
Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self-monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of feelings and emotion, yet little research on mHealth for HIV care focuses on affect and HIV testing practices. Furthermore, most of the literature exploring affect and care relations with the introduction of mHealth is limited to the European and Australian context. This article explores affective dimensions of HIV self-testing using a smartphone app strategy in Cape Town, South Africa and Montréal, Canada. This study is based on observation notes, 41 interviews and 1 focus group discussion with study participants and trained HIV healthcare providers from two quantitative studies evaluating the app-based self-test strategy. Our paper reveals how fear, apathy, judgement, frustration and comfort arise in testing encounters using the app and in previous testing experiences, as well as how this relates to care providers and test materials. Attending to affective aspects of this app-based self-testing practice makes visible certain affordances and limitations of the app within the therapeutic encounter and illustrates how mHealth can contribute to HIV care.
Identifiants
pubmed: 33634889
doi: 10.1111/1467-9566.13242
pmc: PMC8451867
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
591-606Subventions
Organisme : CIHR
ID : HHP 137872
Pays : Canada
Informations de copyright
© 2021 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL).
Références
Sex Transm Infect. 2017 Jul;93(Suppl 3):
pubmed: 28736392
AIDS Behav. 2020 Feb;24(2):467-474
pubmed: 31049809
Lancet. 2008 Aug 9;372(9637):475-88
pubmed: 18687461
PLoS One. 2015 Oct 28;10(10):e0141453
pubmed: 26509894
BMC Public Health. 2019 Jan 29;19(1):123
pubmed: 30696422
Dev World Bioeth. 2015 Dec;15(3):257-66
pubmed: 25130207
BMC Health Serv Res. 2017 Jun 17;17(1):408
pubmed: 28623923
Sociol Health Illn. 2019 May;41(4):806-820
pubmed: 30714162
Sociol Health Illn. 2017 May;39(4):629-642
pubmed: 28326556
AIDS Behav. 2015 Jun;19 Suppl 2:81-9
pubmed: 25572830
BMC Infect Dis. 2019 Aug 8;19(1):699
pubmed: 31391003
Soc Sci Med. 2017 Jun;183:97-105
pubmed: 28475904
Med Soc (Berkeley). 1996;:1-466
pubmed: 11619509
BMC Public Health. 2018 Sep 27;18(1):1146
pubmed: 30261856
Nurse Educ Today. 2019 Aug;79:111-116
pubmed: 31121340
Curr HIV/AIDS Rep. 2015 Jun;12(2):256-61
pubmed: 25929959
BMC Health Serv Res. 2018 Dec 3;18(1):916
pubmed: 30509261
Sociol Health Illn. 2018 Feb;40(2):243-255
pubmed: 29464775
J Acquir Immune Defic Syndr. 2017 May 1;75(1):35-44
pubmed: 28225437
J Med Internet Res. 2018 Nov 27;20(11):e10258
pubmed: 30465709
PLoS One. 2014 Sep 02;9(9):e106325
pubmed: 25180575
Curr HIV/AIDS Rep. 2015 Mar;12(1):173-90
pubmed: 25626718