'You're only there on the phone'? A qualitative exploration of community, affect and agential capacity in HIV self-testing using a smartphone app.


Journal

Sociology of health & illness
ISSN: 1467-9566
Titre abrégé: Sociol Health Illn
Pays: England
ID NLM: 8205036

Informations de publication

Date de publication:
03 2021
Historique:
revised: 17 12 2020
received: 24 03 2020
accepted: 18 12 2020
pubmed: 27 2 2021
medline: 27 10 2021
entrez: 26 2 2021
Statut: ppublish

Résumé

Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self-monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of feelings and emotion, yet little research on mHealth for HIV care focuses on affect and HIV testing practices. Furthermore, most of the literature exploring affect and care relations with the introduction of mHealth is limited to the European and Australian context. This article explores affective dimensions of HIV self-testing using a smartphone app strategy in Cape Town, South Africa and Montréal, Canada. This study is based on observation notes, 41 interviews and 1 focus group discussion with study participants and trained HIV healthcare providers from two quantitative studies evaluating the app-based self-test strategy. Our paper reveals how fear, apathy, judgement, frustration and comfort arise in testing encounters using the app and in previous testing experiences, as well as how this relates to care providers and test materials. Attending to affective aspects of this app-based self-testing practice makes visible certain affordances and limitations of the app within the therapeutic encounter and illustrates how mHealth can contribute to HIV care.

Identifiants

pubmed: 33634889
doi: 10.1111/1467-9566.13242
pmc: PMC8451867
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

591-606

Subventions

Organisme : CIHR
ID : HHP 137872
Pays : Canada

Informations de copyright

© 2021 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL).

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Auteurs

Ricky Janssen (R)

Department of Health, Ethics and Society, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.

Nora Engel (N)

Department of Health, Ethics and Society, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.

Nitika Pant Pai (N)

Division of Clinical Epidemiology, Department of Medicine, McGill University and Research Institute of the McGill University Health Centre, Montréal, QC, Canada.

Aliasgar Esmail (A)

Division of Pulmonology, Department of Medicine, Centre for Lung Infection and Immunity, University of Cape Town, Cape Town, South Africa.

Keertan Dheda (K)

Division of Pulmonology, Department of Medicine, Centre for Lung Infection and Immunity, University of Cape Town, Cape Town, South Africa.
Faculty of Infectious and Tropical Diseases, Department of Immunology and Infection, London School of Hygiene and Tropical Medicine, London, UK.

Réjean Thomas (R)

Clinique Médicale L'Actuel, Montréal, QC, Canada.

Anja Krumeich (A)

Department of Health, Ethics and Society, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.

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