Parental Perspectives on Family Mealtimes Related to Gastrostomy Tube Feeding in Children.
Sweden
developmental disabilities
ecocultural theory
enteral nutrition
interviews
pediatrics
qualitative
stimulated recall
Journal
Qualitative health research
ISSN: 1049-7323
Titre abrégé: Qual Health Res
Pays: United States
ID NLM: 9202144
Informations de publication
Date de publication:
07 2021
07 2021
Historique:
pubmed:
6
3
2021
medline:
21
9
2021
entrez:
5
3
2021
Statut:
ppublish
Résumé
Built on the important functions daily routines serve families and child health, this study aimed to explore parents' descriptions of mealtimes and food-related challenges when living with a child using a gastrostomy feeding tube. The study was informed by ecocultural theory and based on in-depth interviews combined with stimulated recall. The interviews of 10 parents were inductively analyzed by means of qualitative content analysis. Four main categories comprised the parents' descriptions: "One situation, different functions," "On the child's terms," "Doing something to me," and "An unpredictable pattern," with one overarching theme. The analyses showed that the parents strived to establish mealtimes in line with their cultural context, although they struggled to reach a point of satisfaction. The study highlights the importance of health care professionals to address the medical aspects of caring for a child with a G-tube, but also the potential psychological and social consequences for ordinary family life.
Identifiants
pubmed: 33666118
doi: 10.1177/1049732321997133
pmc: PMC8438777
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Pagination
1596-1608Références
J Am Diet Assoc. 1999 Aug;99(8):962-6
pubmed: 10450312
Aust Occup Ther J. 2018 Feb;65(1):25-34
pubmed: 28850693
Soc Sci Med. 2006 Mar;62(5):1115-25
pubmed: 16122859
Int J Psychol. 2013;48(5):729-46
pubmed: 23848452
New Dir Child Adolesc Dev. 2006 Spring;(111):67-89
pubmed: 16646500
JAMA. 2013 Nov 27;310(20):2191-4
pubmed: 24141714
Qual Health Res. 2015 Mar;25(3):310-9
pubmed: 25205791
J Pediatr Gastroenterol Nutr. 2014 Aug;59(2):172-6
pubmed: 24709828
Qual Health Res. 2019 Jul;29(9):1345-1357
pubmed: 30499371
J Fam Psychol. 2002 Dec;16(4):381-90
pubmed: 12561283
Aliment Pharmacol Ther. 2010 Apr;31(8):788-801
pubmed: 20102353
Am J Ment Retard. 1989 Nov;94(3):216-30
pubmed: 2478170
Child Care Health Dev. 2007 Sep;33(5):539-46
pubmed: 17725775
J Pediatr Health Care. 2019 May - Jun;33(3):270-279
pubmed: 30497892
Child Care Health Dev. 2020 Nov;46(6):741-748
pubmed: 32901970
J Appl Res Intellect Disabil. 2015 Mar;28(2):133-44
pubmed: 24915837
Pediatr Neonatol. 2013 Oct;54(5):326-9
pubmed: 23721827
J Pediatr Nurs. 2012 Jun;27(3):248-55
pubmed: 22525813
Qual Health Res. 2012 May;22(5):587-94
pubmed: 21940938
Res Nurs Health. 2000 Aug;23(4):334-40
pubmed: 10940958
Disabil Rehabil. 2020 Sep;42(19):2747-2757
pubmed: 30763520
Nurse Educ Today. 2017 Sep;56:29-34
pubmed: 28651100
J Pediatr Surg. 1980 Dec;15(6):872-5
pubmed: 6780678
Qual Health Res. 2019 Jan;29(2):301-310
pubmed: 29986623
Nurse Educ Today. 2004 Feb;24(2):105-12
pubmed: 14769454
Eur J Clin Nutr. 2013 Dec;67 Suppl 2:S17-20
pubmed: 24301004
J Pediatr Gastroenterol Nutr. 2018 Nov;67(5):e89-e94
pubmed: 29851763
New Dir Child Adolesc Dev. 2006 Spring;(111):35-49
pubmed: 16646498
J Fam Psychol. 2018 Aug;32(5):643-653
pubmed: 29999346
Am J Ment Retard. 1993 Sep;98(2):185-206
pubmed: 7691095
New Dir Child Adolesc Dev. 2006 Spring;(111):1-15
pubmed: 16646496
Nutr Clin Pract. 2002 Oct;17(5):291-5
pubmed: 16215003
Int J Nurs Stud. 2020 Aug;108:103632
pubmed: 32505813
Acta Paediatr. 2018 Jun;107(6):1094-1099
pubmed: 29423918