'I was ready for it at the beginning': Parent experiences with early introduction of continuous glucose monitoring following their child's Type 1 diabetes diagnosis.
Adolescent
Adult
Blood Glucose
/ metabolism
Blood Glucose Self-Monitoring
/ methods
Child
Child, Preschool
Diabetes Mellitus, Type 1
/ blood
Early Diagnosis
Female
Follow-Up Studies
Humans
Hypoglycemic Agents
/ administration & dosage
Insulin Infusion Systems
Male
Middle Aged
Parents
Retrospective Studies
Time Factors
Young Adult
children and adolescents
devices
health care delivery
psychological aspects
Journal
Diabetic medicine : a journal of the British Diabetic Association
ISSN: 1464-5491
Titre abrégé: Diabet Med
Pays: England
ID NLM: 8500858
Informations de publication
Date de publication:
08 2021
08 2021
Historique:
revised:
01
03
2021
received:
13
11
2020
accepted:
06
03
2021
pubmed:
28
3
2021
medline:
30
3
2022
entrez:
27
3
2021
Statut:
ppublish
Résumé
This study aimed to capture the experience of parents of youth with recent onset Type 1 diabetes who initiated use of continuous glucose monitoring (CGM) technology soon after diagnosis, which is a new practice. Focus groups and individual interviews were conducted with parents of youth with Type 1 diabetes who had early initiation of CGM as part of a new clinical protocol. Interviewers used a semi-structured interview guide to elicit feedback and experiences with starting CGM within 30 days of diagnosis, and the benefits and barriers they experienced when adjusting to this technology. Groups and interviews were audio recorded, transcribed and analysed using content analysis. Participants were 16 parents (age 44.13 ± 8.43 years; 75% female; 56.25% non-Hispanic White) of youth (age 12.38 ± 4.15 years; 50% female; 50% non-Hispanic White; diabetes duration 10.35 ± 3.89 months) who initiated CGM 11.31 ± 7.33 days after diabetes diagnosis. Overall, parents reported high levels of satisfaction with starting CGM within a month of diagnosis and described a high level of reliance on the technology to help manage their child's diabetes. All participants recommended early CGM initiation for future families and were committed to continue using the technology for the foreseeable future, provided that insurance covered it. Parents experienced CGM initiation shortly after their child's Type 1 diabetes diagnosis as a highly beneficial and essential part of adjusting to living with diabetes.
Identifiants
pubmed: 33772862
doi: 10.1111/dme.14567
pmc: PMC8480902
mid: NIHMS1737303
doi:
Substances chimiques
Blood Glucose
0
Hypoglycemic Agents
0
Types de publication
Journal Article
Pragmatic Clinical Trial
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
e14567Subventions
Organisme : NIDDK NIH HHS
ID : K23 DK119470
Pays : United States
Organisme : NIDDK NIH HHS
ID : K12 DK122550
Pays : United States
Organisme : NIDDK NIH HHS
ID : R18 DK122422
Pays : United States
Organisme : NIDDK NIH HHS
ID : P30 DK116074
Pays : United States
Informations de copyright
© 2021 Diabetes UK.
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