Recognising values and engaging communities across cultures: towards developing a cultural protocol for researchers.
Bioethics
Community engagement
Cultural protocol
Global health
Low and middle income countries (LMIC)
Researchers from high income countries (HIC)
Journal
BMC medical ethics
ISSN: 1472-6939
Titre abrégé: BMC Med Ethics
Pays: England
ID NLM: 101088680
Informations de publication
Date de publication:
26 04 2021
26 04 2021
Historique:
received:
12
05
2020
accepted:
28
03
2021
entrez:
27
4
2021
pubmed:
28
4
2021
medline:
30
6
2021
Statut:
epublish
Résumé
Efforts to build research capacity and capability in low and middle income countries (LMIC) has progressed over the last three decades, yet it confronts many challenges including issues with communicating or even negotiating across different cultures. Implementing global research requires a broader understanding of community engagement and participatory research approaches. There is a considerable amount of guidance available on community engagement in clinical trials, especially for studies for HIV/AIDS, even culturally specific codes for recruiting vulnerable populations such as the San or Maori people. However, the same cannot be said for implementing research in global health. In an effort to build on this work, the Pakistan Institute of Living and Learning and University College London in the UK sought to better understand differences in beliefs, values and norms of local communities in Pakistan. In particular, they have sought to help researchers from high income countries (HIC) understand how their values are perceived and understood by the local indigenous researchers in Pakistan. To achieve this end, a group discussion was organised with indigenous researchers at Pakistan Institute of Living and Learning. The discussion will ultimately help inform the development of a cultural protocol for researchers from HIC engaging with communities in LMIC. This discussion revealed five common themes; (1) religious principles and rules, (2) differing concepts of and moral emphasis on autonomy and privacy, (3) importance of respect and trust; (4) cultural differences (etiquette); (5) custom and tradition (gift giving and hospitality). Based on the above themes, we present a preliminary cultural analysis to raise awareness and to prepare researchers from HIC conducting cross cultural research in Pakistan. This is likely to be particularly relevant in collectivistic cultures where social interconnectedness, family and community is valued above individual autonomy and the self is not considered central to moral thinking. In certain cultures, HIC ideas of individual autonomy, the notion of informed consent may be regarded as a collective family decision. In addition, there may still be acceptance of traditional professional roles such as 'doctor knows best', while respect and privacy may have very different meanings.
Identifiants
pubmed: 33902560
doi: 10.1186/s12910-021-00608-4
pii: 10.1186/s12910-021-00608-4
pmc: PMC8072318
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
47Subventions
Organisme : Medical Research Council
ID : MR/R022461/1
Pays : United Kingdom
Investigateurs
Nasim Chaudhry
(N)
Afshan Qureshi
(A)
Shela Minhas
(S)
Tayyeba Kiran
(T)
Ambreen Khan
(A)
Sehrish Tofique
(S)
Maryam Tahir
(M)
Munazzah Farooq
(M)
Ashfaq Ahmed
(A)
Rab Dino
(R)
Maria Usman
(M)
Nawaz Khan
(N)
Tahira Khalid
(T)
Sehrish Irshad
(S)
Rabia Sattar
(R)
Akhtar Zaman
(A)
M Asif
(M)
None Ayesha
Imrana Imrana
(I)
None Sanaullah
Shafaq Ejaz
(S)
Umair Ahsan
(U)
Zainab Bibi
(Z)
Amna Noureen
(A)
Anum Naz
(A)
Uzma Omer
(U)
None Farhatulain
Awais Khan
(A)
Suleman Shakoor
(S)
Muqaddas Asif
(M)
Maham Rasheed
(M)
Usman Arshad
(U)
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