Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data.


Journal

Palliative medicine
ISSN: 1477-030X
Titre abrégé: Palliat Med
Pays: England
ID NLM: 8704926

Informations de publication

Date de publication:
Oct 2021
Historique:
pubmed: 1 6 2021
medline: 15 1 2022
entrez: 31 5 2021
Statut: ppublish

Résumé

Hospital admissions among people dying with dementia are common. It is not known whether identification of palliative care needs could help prevent unnecessary admissions. To examine the proportion of people with dementia identified as having palliative care needs in their last year of life, and the association between identification of needs and primary, community and hospital services in the last 90 days. Retrospective cohort study using Discover, an administrative and clinical dataset from 365 primary care practices in London with deterministic individual-level data linkage to community and hospital records. People diagnosed with dementia and registered with a general practitioner in North West London (UK) who died between 2016 and 2019. The primary outcome was multiple non-elective hospital admissions in the last 90 days of life. Secondary outcomes included contacts with primary and community care providers. We examined the association between identification of palliative care needs with outcomes. Among 5804 decedents with dementia, 1953 (33.6%) were identified as having palliative care needs, including 1141 (19.7%) identified before the last 90 days of life. Identification of palliative care needs before the last 90 days was associated with a lower risk of multiple hospital admissions (Relative Risk 0.70, 95% CI 0.58-0.85) and more contacts with the primary care practice, community nurses and palliative care teams in the last 90 days. Further investigation of the mechanisms underlying the association between identification of palliative care needs and reduced hospital admissions could help reduce reliance on acute care for this population.

Sections du résumé

BACKGROUND BACKGROUND
Hospital admissions among people dying with dementia are common. It is not known whether identification of palliative care needs could help prevent unnecessary admissions.
AIM OBJECTIVE
To examine the proportion of people with dementia identified as having palliative care needs in their last year of life, and the association between identification of needs and primary, community and hospital services in the last 90 days.
DESIGN METHODS
Retrospective cohort study using Discover, an administrative and clinical dataset from 365 primary care practices in London with deterministic individual-level data linkage to community and hospital records.
SETTING/PARTICIPANTS METHODS
People diagnosed with dementia and registered with a general practitioner in North West London (UK) who died between 2016 and 2019. The primary outcome was multiple non-elective hospital admissions in the last 90 days of life. Secondary outcomes included contacts with primary and community care providers. We examined the association between identification of palliative care needs with outcomes.
RESULTS RESULTS
Among 5804 decedents with dementia, 1953 (33.6%) were identified as having palliative care needs, including 1141 (19.7%) identified before the last 90 days of life. Identification of palliative care needs before the last 90 days was associated with a lower risk of multiple hospital admissions (Relative Risk 0.70, 95% CI 0.58-0.85) and more contacts with the primary care practice, community nurses and palliative care teams in the last 90 days.
CONCLUSIONS CONCLUSIONS
Further investigation of the mechanisms underlying the association between identification of palliative care needs and reduced hospital admissions could help reduce reliance on acute care for this population.

Identifiants

pubmed: 34053356
doi: 10.1177/02692163211019897
pmc: PMC8532216
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1691-1700

Subventions

Organisme : Medical Research Council
ID : MC_PC_19007
Pays : United Kingdom

Commentaires et corrections

Type : CommentIn

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Auteurs

Javiera Leniz (J)

Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.

Irene J Higginson (IJ)

Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.

Deokhee Yi (D)

Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.

Zia Ul-Haq (Z)

Discover-Now, Imperial College Health Partners, London, UK.

Amanda Lucas (A)

Discover-Now, Imperial College Health Partners, London, UK.

Katherine E Sleeman (KE)

Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.

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Classifications MeSH