Sexual knowledge and behaviour in 22q11.2 deletion syndrome, a complex care condition.
gender
genetics
learning disabilities
pregnancy
sex
sexually transmitted infections
Journal
Journal of applied research in intellectual disabilities : JARID
ISSN: 1468-3148
Titre abrégé: J Appl Res Intellect Disabil
Pays: England
ID NLM: 9613616
Informations de publication
Date de publication:
Jul 2022
Jul 2022
Historique:
revised:
23
04
2021
received:
26
11
2020
accepted:
18
06
2021
pubmed:
23
7
2021
medline:
22
6
2022
entrez:
22
7
2021
Statut:
ppublish
Résumé
There is limited information about sexual knowledge and behaviours in adults with complex care needs, including those with 22q11.2 deletion syndrome (22q) which represents a group predisposed to intellectual disabilities. We conducted sexual health assessments with 67 adults with 22q, examining whether those with knowledge deficits and a history of engaging in sexual activities with others would be more likely to engage in high-risk behaviours. The majority (65.7%) of adults with 22q were sexually active with others; most (70.1%) had sexual knowledge deficits. Those with intellectual disabilities were more likely (p = .0012) to have deficits in certain topics. In the sexually active subgroup, most (81.8%) engaged in high-risk sexual behaviours, regardless of intellectual disability or knowledge deficits. The results suggest a need for increased dialogue, repeated education, genetic counselling and preventive healthcare measures related to sexuality in 22q and potentially in other complex care conditions.
Sections du résumé
BACKGROUND
BACKGROUND
There is limited information about sexual knowledge and behaviours in adults with complex care needs, including those with 22q11.2 deletion syndrome (22q) which represents a group predisposed to intellectual disabilities.
METHODS
METHODS
We conducted sexual health assessments with 67 adults with 22q, examining whether those with knowledge deficits and a history of engaging in sexual activities with others would be more likely to engage in high-risk behaviours.
RESULTS
RESULTS
The majority (65.7%) of adults with 22q were sexually active with others; most (70.1%) had sexual knowledge deficits. Those with intellectual disabilities were more likely (p = .0012) to have deficits in certain topics. In the sexually active subgroup, most (81.8%) engaged in high-risk sexual behaviours, regardless of intellectual disability or knowledge deficits.
CONCLUSION
CONCLUSIONS
The results suggest a need for increased dialogue, repeated education, genetic counselling and preventive healthcare measures related to sexuality in 22q and potentially in other complex care conditions.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
966-975Subventions
Organisme : CIHR
ID : MOP-111238
Pays : Canada
Organisme : CIHR
ID : MOP-313331
Pays : Canada
Organisme : UHN CAP Research Internal Grant Competition
Organisme : CIHR
ID : MOP-111238
Pays : Canada
Organisme : CIHR
ID : MOP-313331
Pays : Canada
Informations de copyright
© 2021 John Wiley & Sons Ltd.
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