A systematic review of community psychosocial group interventions for adults with intellectual disabilities and mental health conditions.
adults
community
intellectual disabilities
mental ill-health
psychosocial interventions
Journal
Journal of applied research in intellectual disabilities : JARID
ISSN: 1468-3148
Titre abrégé: J Appl Res Intellect Disabil
Pays: England
ID NLM: 9613616
Informations de publication
Date de publication:
Jan 2022
Jan 2022
Historique:
revised:
07
06
2021
received:
26
02
2021
accepted:
07
06
2021
pubmed:
3
8
2021
medline:
22
12
2021
entrez:
2
8
2021
Statut:
ppublish
Résumé
People with intellectual disabilities have a high risk of developing mental ill-health. Treatment is often neglected and diagnosis is misattributed to a person's disability. Standard psychosocial interventions can improve a person's well-being. This review aimed to understand what interventions are being delivered, any benefits, and future recommendations. Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) guidelines were followed, and the review registered with PROSPERO-CRD42020160254. Databases searched included: MEDLINE, Embase, and PsycINFO. A framework synthesis approach was used to present the findings. There are limited psychosocial interventions offered for this population. When groups are delivered having a creative element, multiple activities over a short period of time, with breaks and group rules outcomes can be improved. Adaptations and reasonable adjustments should be used specifically to a person's ability. A mixed-method design allows people to share their experiences alongside quantitative data that provides clinical information.
Sections du résumé
BACKGROUND
BACKGROUND
People with intellectual disabilities have a high risk of developing mental ill-health. Treatment is often neglected and diagnosis is misattributed to a person's disability. Standard psychosocial interventions can improve a person's well-being. This review aimed to understand what interventions are being delivered, any benefits, and future recommendations.
METHODS
METHODS
Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) guidelines were followed, and the review registered with PROSPERO-CRD42020160254. Databases searched included: MEDLINE, Embase, and PsycINFO. A framework synthesis approach was used to present the findings.
RESULTS
RESULTS
There are limited psychosocial interventions offered for this population. When groups are delivered having a creative element, multiple activities over a short period of time, with breaks and group rules outcomes can be improved.
CONCLUSIONS
CONCLUSIONS
Adaptations and reasonable adjustments should be used specifically to a person's ability. A mixed-method design allows people to share their experiences alongside quantitative data that provides clinical information.
Types de publication
Journal Article
Review
Systematic Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
3-23Informations de copyright
© 2021 John Wiley & Sons Ltd.
Références
Adams, J., Hillier-Brown, F., Moore, H., Lake, A., Araujo-Soares, V., White, M., & Summerbell, C. (2016). Searching and synthesising ‘grey literature’ and ‘grey information’ in public health: critical reflections on three case studies. Systematic Reviews, 5(1). https://doi.org/10.1186/s13643-016-0337-y
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders, 5th ed. (DSM-5). APA Publishing.
Baker, P., & Daynes, S. (2010). Outcome measurement for people with intellectual disability who present challenging behaviour. Advances in Mental Health and Intellectual Disabilities, 4(2), 13-19. https://doi.org/10.5042/amhid.2010.0314
Baker, J. K., Seltzer, M. M., & Greenberg, J. S. (2011). Longitudinal effects of adaptability on behavior problems and maternal depression in families of adolescents with autism. Journal of Family Psychology, 25(4), 601-609. https://doi.org/10.1037/a0024409
Barber, M., Jenkins, R., & Jones, C. (2000). A survivor's group for women who have a learning disability British Journal of Developmental Disabilities. British Journal of Developmental Disabilities, 46(90).
Barth, J., Munder, T., Gerger, H., Nüesch, E., Trelle, S., Znoj, H., Jüni, P., & Cuijpers, P. (2013). Comparative Efficacy of Seven Psychotherapeutic Interventions for Patients with Depression: A Network Meta-Analysis. PLoS Medicine, 10(5), e1001454. https://doi.org/10.1371/journal.pmed.1001454
Beail, N. (Ed.). (2016). Psychological therapies and people who have intellectual disabilities. British Psychological Society. Retrieved from. www.bps.org.uk/system/files/Public%20files/id_therapies.pdf
Beck, J. S. (2011). Cognitive behaviour therapy: Basics and beyond. Guildford Press.
Bosgraaf, L., Spreen, M., Pattiselanno, K., & van Hooren, S. (2020). Art therapy for psychosocial problems in children and adolescents: A systematic narrative review on art therapeutic means and forms of expression, therapist behaviour, and supposed mechanisms of change. Frontiers in Psychology, 11, 584-685. https://doi.org/10.3389/fpsyg.2020.584685
Bourne, J., Anderson-Warren, M., & Hackett, S. (2018). A systematic review to investigate dramatherapy group work with work age adults who have mental health problem. The Arts in Psychotherapy, 61, 1-9.
Bourne, J., Selman, M., & Hackett, S. (2020). Learning from support workers: Can a dramatherapy group offer a community provision to support changes in care for people with learning disabilities and mental health difficulties? British Journal of Learning Disability, 48, 1-10. https://doi.org/10.1111/bld.12312
Bouvet, C., & Coulet, A. (2016). Relaxation therapy and anxiety, self-esteem, and emotional regulation among adults with intellectual disabilities: A randomized controlled trial. Journal of Intellectual Disabilities, 20(3), 228-240. https://doi.org/10.1177/1744629515605942
Bowers, L., Alexander, J., Bilgin, H., Botha, M., Dack, C., James, K., Jarrett, M., Jeffery, D., Nijman, H., Owiti, J. A., Papadopoulos, C., Ross, J., Wright, S., & Stewart, D. (2014). Safewards: the empirical basis of the model and a critical appraisal. Journal of Psychiatric and Mental Health Nursing, 21(4), 354-364. https://doi.org/10.1111/jpm.12085
British Association of Cognitive Psychotherapy. (2021). Retrieved from http://www.babcp.com
Boyden, P., Freeman, A., & Offen, L. (2010). Setting up and running a loss and bereavement support group for adults with learning disabilities. British Journal of Learning Disabilities, 38(1), 35-40. https://doi.org/10.1111/j.1468-3156.2009.00560.x
Campbell, M., Robertson, A., & Jahoda, A. (2012). Psychological therapies for people with intellectual disabilities: Comments on a matrix of evidence for interventions in challenging behaviour. Journal of Intellectual Disability Research, 58(2), 172-188.
Clapton, N. E., Williams, J., Griffith, G. M., & Jones, R. S. P. (2018). ‘Finding the person you really are … on the inside’: Compassion focused therapy for adults with intellectual disabilities. Journal of Intellectual Disabilities, 22(2), 135-153. https://doi.org/10.1177/1744629516688581
Constantina, D., Bilge, O., & Cecilia, E,. (2015). Self-report questionnaires. https://doi.org/10.1002/9781118625392.wbecp507
Cooper, S., Smiley, E., Finlayson, J., Jackson, A., Allan, L., Williamson, A., Mantry, D., & Morrison, J. (2007). The prevalence, incidence, and factors predictive of mental ill-health in adults with profound intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 20(6), 493-501. https://doi.org/10.1111/j.1468-3148.2007.00401.x
CORE IMS Information management system. (2018). Retrieved from https://www.coreims.co.uk
Crowley, V., Rose, J., Smith, J., Hobster, K., & Ansell, E. (2008). Psycho-educational groups for people with a dual diagnosis of psychosis and mild intellectual disability. Journal of Intellectual Disabilities, 12(1), 25-39. https://doi.org/10.1177/1744629507086606
Critical Appraisal Skills Programme (CASP). (2021). Systematic Reviews. https://casp-uk.net/casp-tools-checklists/
Cuijpers, P., Donker, T., Johansson, R., Mohr, D. C., Straten, A. V., & Anderson, G. (2011). Self-guided psychological treatment for depressive symptoms: A meta-analysis. PLOS One, 6, e21274. https://doi.org/10.1371/journal.pone.0021274
Davies, S. C. (2014). Annual report of the chief medical officer 2013. Public mental health priorities: Investing in the evidence. Department of Health and Social Care Retrieved from. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/413196/CMO_web_doc.pdf
Delamothe, T. (2013). Learning from winterbourne view. BMJ, 346.
Department of Health. (2009). Valuing people now: A new three-year strategy for people with learning disabilities. Crown.
Department of Health. (2015). Transforming care for people with learning disabilities - Next steps [online] Retrieved from https://www.england.nhs.uk/wpcontent/uploads/2015/01/transform-care-nxt-stps.pdf
Department of Health. (2015) Stopping over medication of people with a learning disability, autism, or both (STOMP) Retrieved from https://www.england.nhs.uk/learning-disabilities/improving-health/stomp/
Department of Health. (2016). The five year forward view for mental health [online] Retrieved from https://www.england.nhs.uk/wp-content/uploads/2016/02/Mental-Health-Taskforce-
Department of Health. (2017). Transforming care agenda. Retrieved from https://www.england.nhs.uk/wp-content/uploads/2017/02/model-service-spec-2017.pdf
Department of Health. (2018). Learning disabilities: Applying all our health [online]. Retrieved from https://www.gov.uk/government/publications/learning-disability-applying-all-our-health/learning-disabilities-applying-all-our-health
Department of Health. (2020) COVID-19: Deaths of people with learning disabilities [online] Retrieved from https://www.gov.uk/government/publications/covid-19-deaths-of-people-with-learning-disabilities
Devine, D. (2018). Can cognitive behavioural therapy (CBT) work for those with learning disabilities? Learning Disability Today (15th October), https://www.learningdisabilitytoday.co.uk/can-cognitive-behavioural-therapy-cbt-work-for-those-with-learning-disabilities
Dixon-Woods, M., Agarwal, S., Jones, D., Young, B., & Sutton, A. (2005) Synthesising qualitative and quantitative evidence: A review of possible methods. Journal of Health Services Research & Policy Jan;10(1):45-53. doi: https://doi.org/10.1177/135581960501000110. PMID: 15667704.
Douglass, S., Palmer, K., & O'Connor, C. (2007). Experiences of running an anxiety management group for people with a learning disability using a cognitive behavioural intervention. British Journal of Learning Disabilities, 35(4), 245-252. https://doi.org/10.1111/j.1468-3156.2007.00443.x
Emerson, E., Glover, G., Turner, S., Greig, R., Hatton, C., Baines, S., Copeland, A., Evison, F., Roberts, H., Robertson, J., & Welch, V. (2012). Improving health and lives: The learning disabilities public health observatory. Advances in Mental Health and Intellectual Disabilities, 6, 26-32. https://doi.org/10.1108/20441281211198835
England, M. J., Butler, A. S., & Gonzalez, M. L. (2015). Psychosocial Interventions for Mental and Substance Use Disorders A Framework for Establishing Evidence-Based Standards, Sept 18. Washington, DC: National Academies Press.
Glover. (2020) Deaths of people identified as having learning disabilities with COVID-19 in England in the spring of 2020. Retrieved from https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/933612/COVID-19__learning_disabilities_mortality_report.pdf
Glover, G., Williams, R., & Oyinlola, J. (2020). An observational cohort study of numbers and causes of preventable general hospital admissions in people with and without intellectual disabilities in England. Journal of Intellectual Disability Research, 64(5), 331-344. https://doi.org/10.1111/jir.12722
Gopalakrishnan, S., & Ganeshkumar, P. (2013 Jan). Systematic reviews and meta-analysis: Understanding the best evidence in primary healthcare. Journal of Family Medicine and Primary Care, 2(1), 9-14. https://doi.org/10.4103/2249-4863.109934 PMID: 24479036; PMCID: PMC3894019.
Graham, Y., Gerrard, D., Laight, S., Brown, R., Keith, S., & Hayes, C. (2020). More than medication: Evaluating the role of the pharmacist independent prescriber in a community team for learning disabilities and behaviour deemed to be challenging. British Journal of Learning Disabilities ISSN 1354-4187, 48, 232-241.
Gustafsson, J. E., Allodi, M., Åkerman, B. A., Eriksson, C., Augustine, L., Fischbein, S., Granlund, M., Gustafsson, P. A., Ljungdahl, S., Ogden, T., & Persson, R. (2010). School learning and mental health: A systematic review. Sweden: The Health Committee: The Royal Swedish Society of Sciences.
Hackett, S., Ashby, L., Parker, K., Goody, S., & Power, N. (2017). UK art therapy practice-based guidelines for children and adults with learning disabilities. International Journal of Art Therapy, 22(2), 84-94. https://doi.org/10.1080/17454832.2017.1319870
Hartley, S. L., Esbensen, A. J., Shalev, R., Vincent, L. B., Mihaila, I., & Bussanich, P. (2015). Cognitive behavioral therapy for depressed adults with mild intellectual disability: A pilot study. Journal of Mental Health Research in Intellectual Disabilities, 8(2), 72-97. https://doi.org/10.1080/19315864.2015.1033573
Heslop, P., Lauer, E., & Hoghton, M. (2015). Mortality in people with intellectual disabilities. The Journal for Applied Research in Intellectual disability, 28(5), 367-372.
Leamy, M., Bird, V., Le Boutillier, C., Williams, J., & Slade, M. (2011). Conceptual framework for personal recovery in mental health: Systematic review and narrative synthesis. The British Journal of Psychiatry: The Journal of Mental Science, 199, 445-452. https://doi.org/10.1192/bjp.bp.110.083733
Leaning, B., & Watson, T. (2006). From the inside looking out - an Intensive Interaction group for people with profound and multiple learning disabilities. British Journal of Learning Disabilities, 34(2), 103-109. https://doi.org/10.1111/j.1468-3156.2005.00374.x
Lunsky, Y., Balogh, R., Durbin, A., Selick, A., Volpe, T., & Lin, E. (2018). The mental health of adults with developmental disabilities in Ontario: Lessons from administrative health. Data Healthcare Quarterly, 21(1), 6-9. https://doi.org/10.12927/hcq.2018.25521
MacDonald, J., Sinason, V., & Hollins, S. (2003). An interview study of people with learning disabilities' experience of, and satisfaction with, group analytic therapy. Psychology and Psychotherapy: Theory, Research and Practice, 76(4), 433-453. https://doi.org/10.1348/147608303770584764
MacMahon, P., Stenfert Kroese, B., Jahoda, A., Stimpson, A., Rose, N., Rose, J., Townson, J., Hood, K., & Willner, P. (2015). ‘It's made all of us bond since that course…’ - a qualitative study of service users' experiences of a CBT anger management group intervention. Journal of Intellectual Disability Research, 59(4), 342-352. https://doi.org/10.1111/jir.12144
Maheswaran, H., Weich, S., & Powell, J. (2012). Evaluating the responsiveness of the Warwick Edinburgh mental well-being scale (WEMWBS): Group and individual level analysis. Health Qual Life Outcomes, 10, 156. https://doi.org/10.1186/1477-7525-10-156
Martin, G., Costello, H., Leese, M., Slade, M., Bouras, N., Higgins, S., & Holt, G. (2005). An exploratory study of assertive community treatment for people with intellectual disability and psychiatric disorders: conceptual, clinical, and service issues. Journal of Intellectual Disability Research, 49(7), 516-524. https://doi.org/10.1111/j.1365-2788.2005.00709.x
Marwood, H., & Hewitt, O. (2013). Evaluating an anxiety group for people with learning disabilities using a mixed methodology. British Journal of Learning Disabilities, 41(2), 150-158. https://doi.org/10.1111/j.1468-3156.2012.00749.x
McCabe, M. P., McGillivray, J. A., & Newton, D. C. (2006). Effectiveness of treatment programmes for depression among adults with mild/moderate intellectual disability. Journal of Intellectual Disability Research, 50(4), 239-247. https://doi.org/10.1111/j.1365-2788.2005.00772.x
McGrath, L., Jones, R., & Hastings, R. P. (2010). Outcomes of anti-bullying intervention for adults with intellectual disabilities. Research in Developmental Disabilities, 31(2), 376-380. https://doi.org/10.1016/j.ridd.2009.10.006
McNamara, N., Coyne, I., Ford, T., Paul, M., Singh, S., & McNicholas, F. (2017). Exploring social identity change during mental healthcare transition. European Journal of Social Psychology, 47(7), 889-903.
Mencap (2015) Changing attitudes to learning disability: A review of the evidence. Retrieved from https://www.mencap.org.uk/sites/default/files/2016-08/Attitudes_Changing_Report.pdf
Mencap. (2019). What is a learning disability? [online] Retrieved from https://www.mencap.org.uk/learning-disability-explained/what-learning-disability
Mindham, J., & Espie, C. A. (2003) Glasgow anxiety scale for people with an intellectual disability (GAS-ID): Development and psychometric properties of a new measure for use with people with mild intellectual disability. The Journal of Intellectual Disability Research 47(1), 22-30.
Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. BMJ, 339, b2535-b2535. https://doi.org/10.1136/bmj.b2535
National Hearing Voices Network (2021) Retrieved from https://www.hearing-voices.org
National Institute for Health and Care Excellence (2016). Mental health problems in people with learning disabilities: Prevention, assessment, and management | Guidance and guidelines Retrieved from https://www.nice.org.uk/guidance/ng54
Nouwens, P. J. G., Lucas, R., Smulders, N. B. M., Embregts, P. J. C. M., & Van Nieuwenhuizen, C. (2017). Identifying classes of persons with mild intellectual disability or borderline intellectual functioning: A latent class analysis. BMC Psychiatry, 17, 257. https://doi.org/10.1186/s12888-017-1426-8
Novaco, R. W. (2003). The Novaco anger scale and provocation inventory (NAS-PI) manual. Western Psychological Services.
Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaff, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E. W., Mayo-Wilson, E., McDonald, S., McGuinness, L. A., Stewart, L. A., Thomas, J., Tricco, A. C., Welch, V. A., Whiting, P., & Moher, D. (2021). The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ, n71. https://doi.org/10.1136/bmj.n71
Randle-Phillips, C., Farquhar, S., & Thomas, S. (2016). Adapting and evaluating a tree of life group for women with learning disabilities. British Journal of Learning Disabilities, 44(4), 301-308. https://doi.org/10.1111/bld.12166
Read, S., & Papakosta-Harvey, V. (2004). Using Workshops on Loss for Adults with Learning Disabilities. Journal of Learning Disabilities, 8(2), 191-208. https://doi.org/10.1177/1469004704042707
Ritchie, J., & Lewis, J. (Eds.). (2003). Qualitative research practice: A guide for social science students & researchers. Sage.
Rubin, H. J., & Rubin, I. S. (2012). Qualitative interviewing: The art of hearing data. Sage.
Sinclair, S. J., Blais, M. A., Gansler, D. A., Sandberg, E., Bistis, K., & LoCicero, A. (2010). Psychometric properties of the Rosenberg self-esteem scale: Overall and across demographic groups living within the United States. Evaluation & the Health Professions, 33(1), 56-80. https://doi.org/10.1177/0163278709356187
Smith, J., & Firth, J. (2011). Qualitative data analysis: Application of the framework approach. Nurse Researcher, 18(2), 52-62.
Stalder-Lüthy, F., Messerli-Bürgy, N., Hofer, H., Frischknecht, E., Znoj, H., & Barth, J. (2013). Effect of psychological interventions on depressive symptoms in long-term rehabilitation after an acquired brain injury: A systematic review and meta-analysis. Archives of Physical Medicine and Rehabilitation, 94(7), 1386-1397.
Thomas, B. H., Ciliska, D., Dobbins, M., & Micucci, S. (2004). A process for systematically reviewing the literature: Providing the research evidence for public health nursing interventions. Worldviews on Evidence Based Nursing, 1(3), 176-184 PMID: 17163895.
Thompson, M., Tiwari, A., Fu, R., Moe, E., & Buckley, D. I. (2012). A framework to facilitate the use of systematic reviews and meta-analyses in the design of primary research studies [internet]. Agency for Healthcare Research and Quality (US).
Tomlins, R., & Cawley, J. (2016). ‘I didn't know other people existed who hear voices…’ - qualitative perceptions of a hearing voices group for people with learning disabilities. British Journal of Learning Disabilities, 44(3), 204-212. https://doi.org/10.1111/bld.12138
Valenzuela, M. J., & Sachdev, P. (2007). Assessment of complex mental activity across the lifespan: development of the Lifetime of Experiences Questionnaire (LEQ). Psychological Medicine, 37(7), 1015-1025. https://doi.org/10.1017/s003329170600938x
Wellman, J., Barter, B., & Steele, A. (Oct 2015). Group top-up therapy for service users. Learning Disability Practice, 18(8), 33-38.
Whelan, A., Haywood, P., & Galloway, S. (2007). Low self-esteem: group cognitive behaviour therapy. British Journal of Learning Disabilities, 35(2), 125-130. https://doi.org/10.1111/j.1468-3156.2007.00418.x
Willner, P., Brace, N., & Phillips, J. (2005). Assessment of anger coping skills in individuals with intellectual disabilities. Journal of Intellectual Disability Research, 49(5), 329-339. https://doi.org/10.1111/j.1365-2788.2005.00668.x
Willner, P., Rose, J., Jahoda, A., Stenfert Kroese, B., Felce, D., MacMahon, P., Stimpson, A., Rose, N., Gillespie, D., Shead, J., Lammie, C., Woodgate, C., Townson, J. K., Nuttall, J., Cohen, D., & Hood, K. (2013). A cluster randomised controlled trial of a manualised cognitive behavioural anger management intervention delivered by supervised lay therapists to people with intellectual disabilities. Health Technol Assess, 17(21). https://doi.org/10.3310/hta17210
World Health Organisation (WHO). (2021). Coronavirus. https://www.who.int/health-topics/coronoavirus#tab=tab_1