Exploration of motivation to participate in a study of cancer-related cognitive impairment among patients with newly diagnosed aggressive lymphoma: a qualitative sub-study.
Aggressive lymphoma
Cancer-related cognitive impairment
Motivation
Participation
Qualitative
Journal
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
ISSN: 1433-7339
Titre abrégé: Support Care Cancer
Pays: Germany
ID NLM: 9302957
Informations de publication
Date de publication:
Feb 2022
Feb 2022
Historique:
received:
22
05
2021
accepted:
28
08
2021
pubmed:
9
9
2021
medline:
7
1
2022
entrez:
8
9
2021
Statut:
ppublish
Résumé
Cancer-related cognitive impairment (CRCI) is a recognised adverse consequence of cancer and its treatment. This qualitative sub-study was undertaken as part of a larger prospective longitudinal study in which recruitment and retention were very high. The aim was to gain an understanding of participants reasons for ongoing participation, at a time of heightened stress related to a new diagnosis of aggressive lymphoma and the rapid commencement of treatment. This qualitative descriptive sub-study included semi-structured interviews with twenty-seven participants. Interviews were recorded and transcribed, and a thematic descriptive approach was used to analyse the data. Twenty-seven interviews were completed. Four themes described participants' motivation to consent and continue with the study. These included ease of participation, personal values, self-help and valued additional support. Participants understood the requirements of the study, and data collection occurring during hospital visits was perceived to be convenient. Interviewees confirmed that the study fulfilled desire to "help others". Although testing was intense and challenging, it provided feedback on current functioning and was described by some as a "welcome distraction" and enjoyable. Finally, interaction with the study nurse was perceived as an additional beneficial oversight and support. Achieving sustained participation in a prospective study with patients undergoing treatment is facilitated where the logistical demands of data collection are minimised; a clinician from the service is included; the tasks are seen as inherently interesting; and care is taken to provide empathic support throughout. Australian New Zealand Clinical Trials Registry ACTRN12619001649101.
Identifiants
pubmed: 34495384
doi: 10.1007/s00520-021-06527-9
pii: 10.1007/s00520-021-06527-9
pmc: PMC8727392
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1331-1339Subventions
Organisme : Victorian Cancer Agency
ID : Olivia Newton-John Cancer Wellness and Research Centre Supportive Care Research PhD scholarship
Commentaires et corrections
Type : ErratumIn
Informations de copyright
© 2021. The Author(s).
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