Functional results after carpal tunnel release in mucopolysaccharidosis.


Journal

Orphanet journal of rare diseases
ISSN: 1750-1172
Titre abrégé: Orphanet J Rare Dis
Pays: England
ID NLM: 101266602

Informations de publication

Date de publication:
09 09 2021
Historique:
received: 20 07 2020
accepted: 25 07 2021
entrez: 10 9 2021
pubmed: 11 9 2021
medline: 7 10 2021
Statut: epublish

Résumé

Mucopolysaccharidosis consists of a group of diseases caused by the deficiency of lysosomal enzymes, which may lead to the compression of the median nerve in the carpal tunnel due to the accumulation of glycosaminoglycan, resulting in the hand disability. The study purpose is to present functional results of carpal tunnel release in mucopolysaccharidosis patients. Patients were selected from an enzyme replacement group in the Department of Pediatric Neurology. The legal guardians of the patients were informed about the likely functional change of the hands induced by compression of the median nerve. Clinical evaluation was performed in those patients who received their legal guardians' consent to participate and was included inspection, assessment of functional level, wrinkle test and the digital pinch function to manipulate small and large objects. Ultrasound and electromyography were performed to confirm the clinical median nerve compression. Bilateral extended opening technique was performed to access the carpal tunnel and analyze the anatomic findings of the median nerve and the flexed tendons of the fingers. After the surgical release of the carpal tunnel, the clinical evaluation was repeated. Subjective observations of the legal guardians were also considered. Seven patients underwent bilateral surgical opening of the carpal tunnel; six boys, mean age of 9.5 (5 to 13), five of them presenting Type II mucopolysaccharidosis, 1 Type I and 1 Type VI. The average follow-up was 12 months (10-13 months). The functional results observed included the improvement in the handling of small and large objects in all children who underwent decompression of the median nerve. The comparison between the pre-operative and post-operative functional levels revealed that 2 patients evolved from Level II to IV, 3 from Level III to IV, 1 from Level IV to V and 1 patient remained in Level III. Tenosynovitis around the flexor tendons and severe compression of the median nerve in the fourteen carpal tunnels were observed during the surgical procedure. In 6 wrists, partial tenosynovitis was performed. Despite the improvement in the overall function of the children' hands, we cannot conclude that only surgery was responsible for the benefit. Better designed studies are required.

Sections du résumé

BACKGROUND
Mucopolysaccharidosis consists of a group of diseases caused by the deficiency of lysosomal enzymes, which may lead to the compression of the median nerve in the carpal tunnel due to the accumulation of glycosaminoglycan, resulting in the hand disability. The study purpose is to present functional results of carpal tunnel release in mucopolysaccharidosis patients. Patients were selected from an enzyme replacement group in the Department of Pediatric Neurology. The legal guardians of the patients were informed about the likely functional change of the hands induced by compression of the median nerve. Clinical evaluation was performed in those patients who received their legal guardians' consent to participate and was included inspection, assessment of functional level, wrinkle test and the digital pinch function to manipulate small and large objects. Ultrasound and electromyography were performed to confirm the clinical median nerve compression. Bilateral extended opening technique was performed to access the carpal tunnel and analyze the anatomic findings of the median nerve and the flexed tendons of the fingers. After the surgical release of the carpal tunnel, the clinical evaluation was repeated. Subjective observations of the legal guardians were also considered.
RESULTS
Seven patients underwent bilateral surgical opening of the carpal tunnel; six boys, mean age of 9.5 (5 to 13), five of them presenting Type II mucopolysaccharidosis, 1 Type I and 1 Type VI. The average follow-up was 12 months (10-13 months). The functional results observed included the improvement in the handling of small and large objects in all children who underwent decompression of the median nerve. The comparison between the pre-operative and post-operative functional levels revealed that 2 patients evolved from Level II to IV, 3 from Level III to IV, 1 from Level IV to V and 1 patient remained in Level III. Tenosynovitis around the flexor tendons and severe compression of the median nerve in the fourteen carpal tunnels were observed during the surgical procedure. In 6 wrists, partial tenosynovitis was performed.
CONCLUSIONS
Despite the improvement in the overall function of the children' hands, we cannot conclude that only surgery was responsible for the benefit. Better designed studies are required.

Identifiants

pubmed: 34503540
doi: 10.1186/s13023-021-01982-3
pii: 10.1186/s13023-021-01982-3
pmc: PMC8427841
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

382

Informations de copyright

© 2021. The Author(s).

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Auteurs

Giana Silveira Giostri (GS)

Serviço de Cirurgia da Mão do Hospital Pequeno Príncipe, Curitiba, PR, Brazil.

Camila Deneka Arantes Souza (CDA)

Serviço de Cirurgia da Mão do Hospital Pequeno Príncipe, Curitiba, PR, Brazil. camiladeneka@gmail.com.
Ambulatório Ortopedia Pediátrica, Rua Desembargador Motta, 1070 - Água Verde,, Curitiba, PR, 80250-060, Brazil. camiladeneka@gmail.com.

Alencar Kenji Nagai (AK)

Serviço de Cirurgia da Mão do Hospital Pequeno Príncipe, Curitiba, PR, Brazil.

Mara Lucia Schmitz Ferreira Santos (MLSF)

Serviço de Neurologia Pediátrica do Hospital Pequeno Príncipe, Curitiba, PR, Brazil.

José Silvany Pacheco Sampaio (JSP)

Hospital Universitário Cajuru, Curitiba, PR, Brazil.

Flavia David João de Masi Nassif (FDJ)

PUC-PR, Curitiba, PR, Brazil.

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