Novel method to select meaningful outcomes for evaluation in clinical trials.

cystic fibrosis paediatric lung disaese rare lung diseases respiratory infection

Journal

BMJ open respiratory research
ISSN: 2052-4439
Titre abrégé: BMJ Open Respir Res
Pays: England
ID NLM: 101638061

Informations de publication

Date de publication:
10 2021
Historique:
received: 17 03 2021
accepted: 15 06 2021
entrez: 8 10 2021
pubmed: 9 10 2021
medline: 25 11 2021
Statut: ppublish

Résumé

A standardised framework for selecting outcomes for evaluation in trials has been proposed by the Core Outcome Measures in Effectiveness Trials working group. However, this method does not specify how to ensure that the outcomes that are selected are causally related to the disease and the health intervention being studied. Causal network diagrams may help researchers identify outcomes that are both clinically meaningful and likely to be causally dependent on the intervention, and endpoints that are, in turn, causally dependent on those outcomes. We aimed to (1) develop a generalisable method for selecting outcomes and endpoints in trials and (2) apply this method to select outcomes for evaluation in a trial investigating treatment strategies for pulmonary exacerbations of cystic fibrosis (CF). We conducted a series of online surveys and workshops among people affected by CF. We used a modified Delphi approach to develop a consensus list of important outcomes. A workshop involving domain experts elicited how these outcomes were causally related to the underlying pathophysiological processes. Meaningful outcomes were prioritised based on the extent to which each outcome captured separate rather than common aspects of the underlying pathophysiological process. The 10 prioritised outcomes were: breathing difficulty/pain, sputum production/clearance, fatigue, appetite, pain (not related to breathing), motivation/demoralisation, fevers/night sweats, treatment burden, inability to meet personal goals and avoidance of gastrointestinal symptoms. This proposed method for selecting meaningful outcomes for evaluation in clinical trials may improve the value of research as a basis for clinical decisions.

Sections du résumé

BACKGROUND
A standardised framework for selecting outcomes for evaluation in trials has been proposed by the Core Outcome Measures in Effectiveness Trials working group. However, this method does not specify how to ensure that the outcomes that are selected are causally related to the disease and the health intervention being studied. Causal network diagrams may help researchers identify outcomes that are both clinically meaningful and likely to be causally dependent on the intervention, and endpoints that are, in turn, causally dependent on those outcomes. We aimed to (1) develop a generalisable method for selecting outcomes and endpoints in trials and (2) apply this method to select outcomes for evaluation in a trial investigating treatment strategies for pulmonary exacerbations of cystic fibrosis (CF).
METHODS
We conducted a series of online surveys and workshops among people affected by CF. We used a modified Delphi approach to develop a consensus list of important outcomes. A workshop involving domain experts elicited how these outcomes were causally related to the underlying pathophysiological processes. Meaningful outcomes were prioritised based on the extent to which each outcome captured separate rather than common aspects of the underlying pathophysiological process.
RESULTS
The 10 prioritised outcomes were: breathing difficulty/pain, sputum production/clearance, fatigue, appetite, pain (not related to breathing), motivation/demoralisation, fevers/night sweats, treatment burden, inability to meet personal goals and avoidance of gastrointestinal symptoms.
CONCLUSIONS
This proposed method for selecting meaningful outcomes for evaluation in clinical trials may improve the value of research as a basis for clinical decisions.

Identifiants

pubmed: 34620699
pii: 8/1/e000877
doi: 10.1136/bmjresp-2021-000877
pmc: PMC8499339
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: AS receives an honorarium from Vertex as a member of the advisory board for work that is not related to this article.

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Auteurs

Charlie McLeod (C)

Infectious Diseases, Perth Children's Hospital, Nedlands, Western Australia, Australia charlie.mcleod@health.wa.gov.au.
Infectious Diseases Implementation Research, Telethon Kids Institute, Nedlands, Western Australia, Australia.

Richard Norman (R)

School of Population Health, Curtin University Bentley Campus, Bentley, Western Australia, Australia.

Jamie Wood (J)

Abilities Research Center, Department of Rehabilitation and Human Performance, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Department of Physiotherapy, Sir Charles Gairdner Hospital, Nedlands, Western Australia, Australia.

Siobhain Mulrennan (S)

Respiratory Medicine, Sir Charles Gairdner Hospital, Nedlands, Western Australia, Australia.
The Faculty of Health and Medical Sciences, The University of Western Australia, Perth, Western Australia, Australia.

Sue Morey (S)

Respiratory Medicine, Sir Charles Gairdner Hospital, Nedlands, Western Australia, Australia.

André Schultz (A)

Wal-yan Respiratory Research Centre, Telethon Kids Institute, Nedlands, Western Australia, Australia.
Department of Respiratory Medicine, Perth Children's Hospital, Nedlands, Western Australia, Australia.

Mitch Messer (M)

Wesfarmers Centre for Vaccines and Infectious Diseases, Telethon Kids Institute, Nedlands, Western Australia, Australia.

Kate Spaapen (K)

Consumer advocate, Perth, Western Australia, Australia.

Matthew Stoneham (M)

Consumer advocate, Melbourne, Victoria, Australia.

Yue Wu (Y)

School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.

Alan Smyth (A)

Evidence Based Child Health Group, School of Medicine, University of Nottingham, Nottingham, UK.

Christopher Blyth (C)

Infectious Diseases, Perth Children's Hospital, Nedlands, Western Australia, Australia.
Wesfarmers Centre for Vaccines and Infectious Diseases, Telethon Kids Institute, Nedlands, Western Australia, Australia.

Steve Webb (S)

School of Population Health and Preventive Medicine, Monash University, Clayton, Victoria, Australia.
Department of Intensive Care Medicine, St John of God Health Care, West Perth, Western Australia, Australia.

Steven Mascaro (S)

Bayesian Intelligence, Upwey, Victoria, Australia.

Owen Woodberry (O)

Bayesian Intelligence, Upwey, Victoria, Australia.

Tom Snelling (T)

School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Menzies School of Health Research, Casuarina, Northern Territory, Australia.

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Classifications MeSH