Determining diagnosis date of diabetes using structured electronic health record (EHR) data: the SEARCH for diabetes in youth study.

Adolescents Algorithms Children Diabetes mellitus Electronic health records Epidemiology Infants Surveillance Young adults

Journal

BMC medical research methodology
ISSN: 1471-2288
Titre abrégé: BMC Med Res Methodol
Pays: England
ID NLM: 100968545

Informations de publication

Date de publication:
10 10 2021
Historique:
received: 13 04 2021
accepted: 07 09 2021
entrez: 11 10 2021
pubmed: 12 10 2021
medline: 3 11 2021
Statut: epublish

Résumé

Disease surveillance of diabetes among youth has relied mainly upon manual chart review. However, increasingly available structured electronic health record (EHR) data have been shown to yield accurate determinations of diabetes status and type. Validated algorithms to determine date of diabetes diagnosis are lacking. The objective of this work is to validate two EHR-based algorithms to determine date of diagnosis of diabetes. A rule-based ICD-10 algorithm identified youth with diabetes from structured EHR data over the period of 2009 through 2017 within three children's hospitals that participate in the SEARCH for Diabetes in Youth Study: Cincinnati Children's Hospital, Cincinnati, OH, Seattle Children's Hospital, Seattle, WA, and Children's Hospital Colorado, Denver, CO. Previous research and a multidisciplinary team informed the creation of two algorithms based upon structured EHR data to determine date of diagnosis among diabetes cases. An ICD-code algorithm was defined by the year of occurrence of a second ICD-9 or ICD-10 diabetes code. A multiple-criteria algorithm consisted of the year of first occurrence of any of the following: diabetes-related ICD code, elevated glucose, elevated HbA1c, or diabetes medication. We assessed algorithm performance by percent agreement with a gold standard date of diagnosis determined by chart review. Among 3777 cases, both algorithms demonstrated high agreement with true diagnosis year and differed in classification (p = 0.006): 86.5% agreement for the ICD code algorithm and 85.9% agreement for the multiple-criteria algorithm. Agreement was high for both type 1 and type 2 cases for the ICD code algorithm. Performance improved over time. Year of occurrence of the second ICD diabetes-related code in the EHR yields an accurate diagnosis date within these pediatric hospital systems. This may lead to increased efficiency and sustainability of surveillance methods for incidence of diabetes among youth.

Sections du résumé

BACKGROUND
Disease surveillance of diabetes among youth has relied mainly upon manual chart review. However, increasingly available structured electronic health record (EHR) data have been shown to yield accurate determinations of diabetes status and type. Validated algorithms to determine date of diabetes diagnosis are lacking. The objective of this work is to validate two EHR-based algorithms to determine date of diagnosis of diabetes.
METHODS
A rule-based ICD-10 algorithm identified youth with diabetes from structured EHR data over the period of 2009 through 2017 within three children's hospitals that participate in the SEARCH for Diabetes in Youth Study: Cincinnati Children's Hospital, Cincinnati, OH, Seattle Children's Hospital, Seattle, WA, and Children's Hospital Colorado, Denver, CO. Previous research and a multidisciplinary team informed the creation of two algorithms based upon structured EHR data to determine date of diagnosis among diabetes cases. An ICD-code algorithm was defined by the year of occurrence of a second ICD-9 or ICD-10 diabetes code. A multiple-criteria algorithm consisted of the year of first occurrence of any of the following: diabetes-related ICD code, elevated glucose, elevated HbA1c, or diabetes medication. We assessed algorithm performance by percent agreement with a gold standard date of diagnosis determined by chart review.
RESULTS
Among 3777 cases, both algorithms demonstrated high agreement with true diagnosis year and differed in classification (p = 0.006): 86.5% agreement for the ICD code algorithm and 85.9% agreement for the multiple-criteria algorithm. Agreement was high for both type 1 and type 2 cases for the ICD code algorithm. Performance improved over time.
CONCLUSIONS
Year of occurrence of the second ICD diabetes-related code in the EHR yields an accurate diagnosis date within these pediatric hospital systems. This may lead to increased efficiency and sustainability of surveillance methods for incidence of diabetes among youth.

Identifiants

pubmed: 34629073
doi: 10.1186/s12874-021-01394-8
pii: 10.1186/s12874-021-01394-8
pmc: PMC8502379
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, U.S. Gov't, P.H.S.

Langues

eng

Sous-ensembles de citation

IM

Pagination

210

Subventions

Organisme : NIDDK NIH HHS
ID : R01 DK127208
Pays : United States
Organisme : NCCDPHP CDC HHS
ID : U18 DP006131
Pays : United States
Organisme : NCCDPHP CDC HHS
ID : U18 DP006138
Pays : United States
Organisme : NCCDPHP CDC HHS
ID : U18 DP006139
Pays : United States

Informations de copyright

© 2021. The Author(s).

Références

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Auteurs

Kristin M Lenoir (KM)

Department of Biostatistics and Data Science, Division of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA. klenoir@wakehealth.edu.
Division of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA. klenoir@wakehealth.edu.

Lynne E Wagenknecht (LE)

Division of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA.

Jasmin Divers (J)

Division of Health Services Research, NYU Winthrop Research Institute, NYU Long Island School of Medicine, Mineola, NY, USA.

Ramon Casanova (R)

Department of Biostatistics and Data Science, Division of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA.
Division of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA.

Dana Dabelea (D)

Department of Epidemiology, Colorado School of Public Health, University of Colorado Denver, Aurora, CO, USA.

Sharon Saydah (S)

Division of Diabetes Translation, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA, USA.

Catherine Pihoker (C)

Department of Pediatrics, University of Washington, Seattle, WA, USA.

Angela D Liese (AD)

Department of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC, USA.

Debra Standiford (D)

Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.

Richard Hamman (R)

Department of Epidemiology, Colorado School of Public Health, University of Colorado Denver, Aurora, CO, USA.

Brian J Wells (BJ)

Department of Biostatistics and Data Science, Division of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA.
Division of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, NC, USA.

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