The culture of research communication in neonatal intensive care units: key stakeholder perspectives.


Journal

Journal of perinatology : official journal of the California Perinatal Association
ISSN: 1476-5543
Titre abrégé: J Perinatol
Pays: United States
ID NLM: 8501884

Informations de publication

Date de publication:
12 2021
Historique:
received: 14 12 2020
accepted: 22 09 2021
revised: 30 07 2021
pubmed: 20 10 2021
medline: 19 2 2022
entrez: 19 10 2021
Statut: ppublish

Résumé

To assess the perspectives of neonatologists, neonatal nurses, and parents on research-related education and communication practices in the neonatal intensive care unit (NICU). Questionnaire circulated through interest groups and administered using the internet. 323 respondents responded to the survey. 52 were neonatologists, 188 were neonatal nurses, and 83 were parents of NICU graduates. Analysis was descriptive. Differences were noted between stakeholder groups with respect to whether current medications meet the needs of sick neonates, research as central to the mission of the NICU, availability of appropriate education/training for all members of the research team, and adequacy of information provided to parents before, during, and after a research study is completed. Engagement of nurses and parents at all stages of NICU research is currently suboptimal; relevant good practices, including education, should be shared among neonatal units.

Identifiants

pubmed: 34663901
doi: 10.1038/s41372-021-01220-5
pii: 10.1038/s41372-021-01220-5
pmc: PMC8752437
doi:

Types de publication

Journal Article Research Support, U.S. Gov't, P.H.S.

Langues

eng

Sous-ensembles de citation

IM

Pagination

2826-2833

Informations de copyright

© 2021. The Author(s).

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Auteurs

Jennifer Degl (J)

Speaking for Moms and Babies, Inc., Mahopac, NY, USA.

Ronald Ariagno (R)

Stanford University, Palo Alto, CA, USA.

Judy Aschner (J)

Hackensack Meridian Health, New York, NY, USA.

Sandra Beauman (S)

CNS Consulting/National Association of Neonatal Nurses, Albuquerque, NM, USA.

Wakako Eklund (W)

Pediatrix Medical Group of TN/National Association of Neonatal Nurses, Nashville, TN, USA.

Elissa Faro (E)

Carver College of Medicine, University of Iowa, Iowa City, IA, USA.

Hiroko Iwami (H)

Osaka City General Hospital, Osaka, Japan.

Yamile Jackson (Y)

Nurtured by Design, Sugar Land, TX, USA.

Carole Kenner (C)

Council of International Neonatal Nurses, Inc., The College of New Jersey, Ewing, NJ, USA.

Ivone Kim (I)

U.S. Food & Drug Administration, Silver Spring, MD, USA.

Agnes Klein (A)

Health Canada, Ottawa, ON, Canada.

Mary Short (M)

Eli Lilly & Co, Indianapolis, IN, USA.

Keira Sorrells (K)

NICU Parent Network, Madison, MS, USA.

Mark A Turner (MA)

University of Liverpool, Liverpool, UK. Mark.Turner@liverpool.ac.uk.

Robert Ward (R)

University of Utah, Salt Lake City, UT, USA.

Scott Winiecki (S)

U.S. Food & Drug Administration, Silver Spring, MD, USA.

Christina Bucci-Rechtweg (C)

Novartis Pharmaceuticals Corporation, East Hanover, NJ, USA.

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