The OneFlorida Data Trust: a centralized, translational research data infrastructure of statewide scope.
Clinical Data Research Network
data analysis
data management
data quality
data warehouse
Journal
Journal of the American Medical Informatics Association : JAMIA
ISSN: 1527-974X
Titre abrégé: J Am Med Inform Assoc
Pays: England
ID NLM: 9430800
Informations de publication
Date de publication:
15 03 2022
15 03 2022
Historique:
received:
15
07
2021
revised:
03
09
2021
accepted:
29
09
2021
pubmed:
20
10
2021
medline:
23
4
2022
entrez:
19
10
2021
Statut:
ppublish
Résumé
The OneFlorida Data Trust is a centralized research patient data repository created and managed by the OneFlorida Clinical Research Consortium ("OneFlorida"). It comprises structured electronic health record (EHR), administrative claims, tumor registry, death, and other data on 17.2 million individuals who received healthcare in Florida between January 2012 and the present. Ten healthcare systems in Miami, Orlando, Tampa, Jacksonville, Tallahassee, Gainesville, and rural areas of Florida contribute EHR data, covering the major metropolitan regions in Florida. Deduplication of patients is accomplished via privacy-preserving entity resolution (precision 0.97-0.99, recall 0.75), thereby linking patients' EHR, claims, and death data. Another unique feature is the establishment of mother-baby relationships via Florida vital statistics data. Research usage has been significant, including major studies launched in the National Patient-Centered Clinical Research Network ("PCORnet"), where OneFlorida is 1 of 9 clinical research networks. The Data Trust's robust, centralized, statewide data are a valuable and relatively unique research resource.
Identifiants
pubmed: 34664656
pii: 6401981
doi: 10.1093/jamia/ocab221
pmc: PMC8922180
doi:
Banques de données
figshare
['10.6084/M9.FIGSHARE.8063567.V1', '10.6084/M9.FIGSHARE.8063567.V2', '10.6084/M9.FIGSHARE.8063567.V3', '10.6084/M9.FIGSHARE.8063567.V4', '10.6084/M9.FIGSHARE.8063567.V5']
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Research Support, U.S. Gov't, P.H.S.
Langues
eng
Sous-ensembles de citation
IM
Pagination
686-693Subventions
Organisme : NCATS NIH HHS
ID : UL1 TR001427
Pays : United States
Organisme : CDC HHS
ID : AGR DTD 02-17-2021
Pays : United States
Organisme : Patient-Centered Outcomes Research Institute (PCORI)
ID : CDRN-1501-26692
Organisme : NCATS NIH HHS
ID : UL1TR000064
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR002736
Pays : United States
Informations de copyright
© The Author(s) 2021. Published by Oxford University Press on behalf of the American Medical Informatics Association.
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