Multidisciplinary Care of Neurosurgical Patients with Genetic Syndromes.

Neurosurgical patients with genetic syndromes often receive care from multidisciplinary teams. Successful models range from multiple providers in one clinic space seeing a patient together to specialists located at different institutions working together. Collaboration and bidirectional communication are key. Multidisciplinary care improves outcomes and patient satisfaction. Choosing the goal of the clinic, using ancillary staff, and obtaining institutional buy-in are important initial first steps to establishing a multidisciplinary team clinic. Multidisciplinary teams can leverage technology to expand care via telehealth in multidisciplinary clinics and more vitally communication between providers on the team.

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Déclaration de conflit d'intérêts

Disclosure The following is a list of grants and funding. There are no conflicts of interest related to this article. R. Savarirayan is a paid consultant to BioMarin, Pfizer, QED, Ascendis. J. Hoover-Fong is a paid advisor to Biomarin, Pfizer, and Ascendis and receives grants from Biomarin. K. White is a paid consultant for BioMarin and receives grants from BioMarin, Ultragenyx, Pfizer, and Ascendis. M.B. Bober is a paid consultant for Biomarin, Pfizer, Ascendis, QED, Medlife Discoveries, and Alexion and receives research funding from Biomarin, Shire, Pfizer, Ascendis, QED, and Medlife Discoveries. A. Duker receives research funding from Potentials Foundation and Walking with Giants Foundation. J.M. Legare is a paid consultant for BioMarin and Ascendis and receives research funding from BioMarin and Ascendis.