The social and physical environmental factors associated with the play of children living with life threatening/limiting conditions: A Q methodology study.
Q methodology
environment
palliative care
play
vulnerable children
Journal
Child: care, health and development
ISSN: 1365-2214
Titre abrégé: Child Care Health Dev
Pays: England
ID NLM: 7602632
Informations de publication
Date de publication:
03 2022
03 2022
Historique:
revised:
23
08
2021
received:
24
09
2020
accepted:
30
10
2021
pubmed:
23
11
2021
medline:
6
5
2022
entrez:
22
11
2021
Statut:
ppublish
Résumé
Living with a life threatening/limiting condition changes and challenges children's play. The environment is known to support participation in play, yet there is a lack of evidence highlighting its specific factors contributing to children's play. In this study, we investigated the perspectives of children living with life threatening/limiting conditions with regard to the environmental factors that are related to their engagement in play whilst receiving inpatient healthcare. Twenty-seven children took part in this study. Participants were aged between 5 and 11 years, diagnosed with life threatening/limiting conditions and were receiving care at either a children's hospital or hospice in either Kuwait or the United Kingdom. Children were asked to rank-order a Q set according to their perceived importance. The used Q set composed of social and physical environmental factors. The data were analysed using factor analysis and content analysis. Two shared viewpoints were identified, which represented children from both countries. For Factor 1, the children's need for social connectivity guided their answers regarding the environmental factors. For Factor 2, although children considered being surrounded by others important, their selections of the play conditions directed their play. For both factors, children had relatively little concern for outdoor and the type of play to engage in, with the exception of arts and crafts play activities, which were deemed important. Play settings are important to support rich, social play experiences and opportunities that match children's play preferences. Children living with life threatening/limiting conditions in Kuwait and the United Kingdom have relatively similar play needs.
Sections du résumé
BACKGROUND
Living with a life threatening/limiting condition changes and challenges children's play. The environment is known to support participation in play, yet there is a lack of evidence highlighting its specific factors contributing to children's play. In this study, we investigated the perspectives of children living with life threatening/limiting conditions with regard to the environmental factors that are related to their engagement in play whilst receiving inpatient healthcare.
METHODS
Twenty-seven children took part in this study. Participants were aged between 5 and 11 years, diagnosed with life threatening/limiting conditions and were receiving care at either a children's hospital or hospice in either Kuwait or the United Kingdom. Children were asked to rank-order a Q set according to their perceived importance. The used Q set composed of social and physical environmental factors. The data were analysed using factor analysis and content analysis.
FINDINGS
Two shared viewpoints were identified, which represented children from both countries. For Factor 1, the children's need for social connectivity guided their answers regarding the environmental factors. For Factor 2, although children considered being surrounded by others important, their selections of the play conditions directed their play. For both factors, children had relatively little concern for outdoor and the type of play to engage in, with the exception of arts and crafts play activities, which were deemed important.
CONCLUSIONS
Play settings are important to support rich, social play experiences and opportunities that match children's play preferences. Children living with life threatening/limiting conditions in Kuwait and the United Kingdom have relatively similar play needs.
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
336-346Subventions
Organisme : Kuwait University
Informations de copyright
© 2021 John Wiley & Sons, Ltd.
Références
Adistie, F., Lumbantobing, V. B. M., & Maryam, N. N. A. (2019). The needs of children with terminal illness: A qualitative study. Child Care in Practice, 26, 257-271. https://doi.org/10.1080/13575279.2018.1555136
Aldiss, S., Horstman, M., O'Leary, C., Richardson, A., & Gibson, F. (2009). What is important to young children who have cancer while in hospital? Children & Society, 23(2), 85-98. https://doi.org/10.1111/j.1099-0860.2008.00162.x
Angstrom-Brannstrom, C., Dahlqvist, V., & Norberg, A. (2013). Victor and the dragon: A young child's experiences of discomfort and comfort, from diagnosis until death. Journal of Hospice & Palliative Nursing, 15(8), 464-470. https://doi.org/10.1097/NJH.0b013e3182a412ea
Arcury, T. A., Suerken, C. K., Ip, E. H., Moore, J. B., & Quandt, S. A. (2017). Residential environment for outdoor play among children in Latino farmworker families. Journal of Immigrant and Minority Health, 19(2), 267-274. https://doi.org/10.1007/s10903-016-0473-4
Ellingsen, I. T., Thorsen, A. A., & Storksen, I. (2014). Revealing children's experiences and emotions through Q methodology. Child Development Research, 2014, 9. https://doi.org/10.1155/2014/910529
Foster, M., & Whitehead, L. (2019). Using drawings to understand the child's experience of child-centred care on admission to a paediatric high dependency unit. Journal of Child Health Care, 23(1), 102-117. https://doi.org/10.1177/1367493518778389
Gallagher, K., & Porock, D. (2010). The use of interviews in Q methodology: Card content analysis. Nursing Research, 59(4), 295-300. https://doi.org/10.1097/NNR.0b013e3181e4ffff
Gerlach, A., Browne, A., & Suto, M. (2014). A critical reframing of play in relation to indigenous children in Canada. Journal of Occupational Science, 21(3), 243-258. https://doi.org/10.1080/14427591.2014.908818
Gibson, F., Aldiss, S., Horstman, M., Kumpunen, S., & Richardson, A. (2010). Children and young people's experiences of cancer care: A qualitative research study using participatory methods. International Journal of Nursing Studies, 47(11), 1397-1407. https://doi.org/10.1016/j.ijnurstu.2010.03.019
Graham, N. E., Truman, J., & Hoigate, H. (2015). Parents' understanding of play for children with cerebral palsy. American Journal of Occupational Therapy, 69(3), p1-p9. https://doi.org/10.5014/ajot.2015.015263
Hughes, F. (2010). Children, Play, and Development. Sage.
James, A., Jenks, C., & Prout, A. (1998). Theorizing Childhood. Polity Press.
Jasem, Z. (2019). Supportive Play Environment for Children Living with Life-Threatening and Life-Limiting Conditions: A Mixed-Methods Study in Kuwait and the United Kingdom. (PhD). University of Southampton.
Jasem, Z., Darlington, A.-S., Grisbrooke, J., Lambrick, D., & Randall, D. (2020). Play of children with life-threatening/limiting conditions: A scoping review. The American Journal of Occupational Therapy, 74, 1-14. https://doi.org/10.5014/ajot.2020.033456
Kirk, S., & Pritchard, E. (2012). An exploration of parents' and young people's perspectives of hospice support. Child: Care, Health and Development, 38(1), 32-40. https://doi.org/10.1111/j.1365-2214.2011.01232.x
Lam, C. B., McHale, S. M., & Crouter, A. C. (2014). Time with peers from middle childhood to late adolescence: Developmental course and adjustment correlates. Child Development, 85(4), 1677-1693. https://doi.org/10.1111/cdev.12235
Lambert, V., Coad, J., Hicks, P., & Glacken, M. (2014a). Social spaces for young children in hospital. Child: Care, Health and Development, 40(2), 195-204. https://doi.org/10.1111/cch.12016
Lambert, V., Coad, J., Hicks, P., & Glacken, M. (2014b). Young children's perspectives of ideal physical design features for hospital-built environments. Journal of Child Health Care, 18(1), 57-71. https://doi.org/10.1177/1367493512473852
Law, M., & King, G. (2014). Participation of children with physical disabilities in everyday occupations. In D. Pierce (Ed.), Occupational Science for Occupational Therapy (pp. 91-106). SLACK Incorporated.
Lima, K., & Santos, V. (2015). Play as a care strategy for children with cancer. Revista Gaúcha de Enfermagem, 36(2), 76-81. https://doi.org/10.1590/1983-1447.2015.02.51514
Lynch, H., & Moore, A. (2016). Play as an occupation in occupational therapy. British Journal of Occupational Therapy, 79(9), 519-520. https://doi.org/10.1177/0308022616664540
Mandell, N. (1991). The least-adult role in studying children. In F. Waksler (Ed.), Studying the Social Worlds of Children: Sociological Readings (pp. 38-59). Routledge Falmer.
Mandich, A., & Rodger, S. (2006). Doing, being and becoming: Their importance for children. In S. Rodger & J. Ziviani (Eds.), Occupational Therapy with Children: Understanding Children's Occupations and Enabling Participation (pp. 115-135). Blackwell Publishing.
McKeown, B., & Thomas, D. (2013). Q methodology (2nd ed.). Sage.
McNamara-Goodger, K., & Feudtner, C. (2012). History and epidemiology. In A. Goldman, R. Hain, & S. Liben (Eds.), Oxford Textbook of Palliative Care for Children (2nd ed.) (pp. 3-12). Oxford University Press. https://doi.org/10.1093/med/9780199595105.003.0001
Moore, A., & Lynch, H. (2018). Understanding a child's conceptualisation of well-being through an exploration of happiness: The centrality of play, people and place. Journal of Occupational Science, 25(1), 124-141. https://doi.org/10.1080/14427591.2017.1377105
Mufti, G. E. R., Towell, T., & Cartwright, T. (2015). Pakistani children's experiences of growing up with beta-thalassemia major. Qualitative Health Research, 25(3), 386-396. https://doi.org/10.1177/1049732314552663
Nabors, L., Cunningham, J. F., Lang, M., Wood, K., Southwick, S., & Stough, C. O. (2018). Family coping during hospitalization of children with chronic illnesses. Journal of Child and Family Studies, 27(5), 1482-1491. https://doi.org/10.1007/s10826-017-0986-z
Nabors, L., & Liddle, M. (2017). Perceptions of hospitalization by children with chronic illnesses and siblings. Journal of Child and Family Studies, 26(6), 1681-1691. https://doi.org/10.1007/s10826-017-0688-6
Nabors, L., Liddle, M., Graves, M. L., Kamphaus, A., & Elkins, J. (2019). A family affair: Supporting children with chronic illnesses. Child: Care, Health and Development, 45(2), 227-233. https://doi.org/10.1111/cch.12635
Parham, L. (2008). Play and Occupational Therapy. In L. Parham & L. Fazio (Eds.), Play in Occupational Therapy for Children (2nd ed.) (pp. 3-39). Mosby Elsevier. https://doi.org/10.1016/B978-032302954-4.10001-7
Robnett, R. D., & Susskind, J. E. (2010). Who cares about being gentle? The impact of social identity and the gender of one's friends on children's display of same-gender favoritism. Sex Roles, 63(11-12), 820-832. https://doi.org/10.1007/s11199-010-9843-x
Roopnarine, J. (2011). Cultural variations in beliefs about play, parent-child play, and children's play: meaning for childhood development. In A. Pellegrini (Ed.), The Oxford Handbook of the Development of Play (pp. 19-40). University Press.
Rubin, K., Fein, G., & Vandenberg, B. (1983). Play. In P. Ussen (Ed.), Handbook of Child Psychology (Vol. 4). Socialization, personality, and social development. (pp. 693-774). John Wiley & Sons.
Schmolck, P. (2015). PQ Method Manual. http://schmolck.org/qmethod/pqmanual.htm
Shaw, K. L., Brook, L., Mpundu-Kaambwa, C., Harris, N., Lapwood, S., & Randall, D. (2015). The Spectrum of Children's palliative care needs: A classification framework for children with life-limiting or life-threatening conditions. BMJ Supportive & Palliative Care, 5(3), 249-258. https://doi.org/10.1136/bmjspcare-2012-000407
Sturgess, J. (2003). A model describing play as a child-chosen activity-Is this still valid in contemporary Australia? Australian Occupational Therapy Journal, 50(2), 104-108. https://doi.org/10.1046/j.1440-1630.2003.00362.x
Verschoren, L., Annemans, M., van Steenwinkel, I., & Heylighen, A. (2015). Designing child-sized hospital architecture: Beyond preferences for colours and themes. Paper presented at the International Conference on Engineering Design. https://lirias.kuleuven.be/bitstream/123456789/486010/2/ICED15_Verschoren.pdf
Watts, S., & Stenner, P. (2012). Doing Q Methodological Research: Theory, Method and Interpretation. Sage.
Weinberger, N., Butler, A. G., McGee, B., Schumacher, P. A., & Brown, R. L. (2017). Child life specialists' evaluation of hospital playroom design: A mixed method inquiry. Journal of Interior Design, 42(2), 71-91. https://doi.org/10.1111/joid.12097
Wilson, M. E., Megel, M. E., Enenbach, L., & Carlson, K. L. (2010). The voices of children: Stories about hospitalization. Journal of Pediatric Health Care, 24(2), 95-102. https://doi.org/10.1016/j.pedhc.2009.02.008
Witt, S., Escherich, G., Rutkowski, S., Kappelhoff, G., Frygner-Holm, S., Russ, S., Bullinger, M., & Quitmann, J. (2019). Exploring the potential of a pretend play intervention in young patients with leukemia. Journal of Pediatric Nursing, 44, e98-e106. https://doi.org/10.1016/j.pedn.2018.11.010