Development and field testing of a decision aid to facilitate shared decision making for adults newly diagnosed with attention-deficit hyperactivity disorder.
attention-deficit hyperactivity disorder
decision aid
pre-post test
shared decision making
treatment decision making
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
02 2022
02 2022
Historique:
revised:
04
10
2021
received:
22
12
2020
accepted:
14
11
2021
pubmed:
3
12
2021
medline:
16
3
2022
entrez:
2
12
2021
Statut:
ppublish
Résumé
The number of individuals who are diagnosed with attention-deficit hyperactivity disorder (ADHD) during adulthood has increased in recent years. However, there is still no decision aid (DA) to help adults newly diagnosed with ADHD make decisions regarding further treatments. This study aimed to describe the development process of a DA for adults newly diagnosed with ADHD and its field testing during the shared decision-making (SDM) process in a clinical setting. The development process involved the creation of a DA prototype using the International Patient Decision Aid Standards criteria and revision of the prototype through the stakeholders' reviews. The field testing of the DA compared scores before and after the SDM process on the service users' knowledge scale, decisional conflict scale and the Conners Adult ADHD Rating Scales. The developed DA contained options of watchful waiting with own coping skills and pharmacological treatment, which consisted of several kinds of drug options. Fifteen adults newly diagnosed with ADHD participated in the field testing. The participant decision-making quality outcomes such as their knowledge and decisional conflict improved after the SDM process. ADHD severity did not change. A DA for adults with ADHD was systematically developed following the international criteria. Field testing indicated that the DA could serve as a tool to facilitate the SDM process. Further research on this DA is necessary before its routine implementation. During the development process of the DA, the service users who had already been diagnosed with ADHD reviewed the DA prototype and provided feedback, which improved the final version of the DA.
Sections du résumé
BACKGROUND
The number of individuals who are diagnosed with attention-deficit hyperactivity disorder (ADHD) during adulthood has increased in recent years. However, there is still no decision aid (DA) to help adults newly diagnosed with ADHD make decisions regarding further treatments.
OBJECTIVE
This study aimed to describe the development process of a DA for adults newly diagnosed with ADHD and its field testing during the shared decision-making (SDM) process in a clinical setting.
METHODS
The development process involved the creation of a DA prototype using the International Patient Decision Aid Standards criteria and revision of the prototype through the stakeholders' reviews. The field testing of the DA compared scores before and after the SDM process on the service users' knowledge scale, decisional conflict scale and the Conners Adult ADHD Rating Scales.
RESULTS
The developed DA contained options of watchful waiting with own coping skills and pharmacological treatment, which consisted of several kinds of drug options. Fifteen adults newly diagnosed with ADHD participated in the field testing. The participant decision-making quality outcomes such as their knowledge and decisional conflict improved after the SDM process. ADHD severity did not change.
CONCLUSION
A DA for adults with ADHD was systematically developed following the international criteria. Field testing indicated that the DA could serve as a tool to facilitate the SDM process. Further research on this DA is necessary before its routine implementation.
PATIENT OR PUBLIC CONTRIBUTION
During the development process of the DA, the service users who had already been diagnosed with ADHD reviewed the DA prototype and provided feedback, which improved the final version of the DA.
Identifiants
pubmed: 34856044
doi: 10.1111/hex.13393
pmc: PMC8849269
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
366-373Informations de copyright
© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.
Références
BMC Med Inform Decis Mak. 2013;13 Suppl 2:S1
pubmed: 24624947
J Am Acad Child Adolesc Psychiatry. 2012 Oct;51(10):990-1002.e2
pubmed: 23021476
Patient Educ Couns. 2013 Oct;93(1):95-101
pubmed: 23669153
JAMA. 1984 Dec 7;252(21):2990-4
pubmed: 6502860
Med Decis Making. 2014 Aug;34(6):699-710
pubmed: 23963501
BMC Med Inform Decis Mak. 2014 Mar 19;14:19
pubmed: 24642051
J Perinatol. 2017 Jun;37(6):728-734
pubmed: 28358384
Br J Psychiatry. 2009 Mar;194(3):204-11
pubmed: 19252145
Int J Soc Psychiatry. 2017 Dec;63(8):763-772
pubmed: 29067837
J Pediatr Orthop. 2015 Dec;35(8):831-7
pubmed: 25551784
Community Ment Health J. 2018 Jan;54(1):1-6
pubmed: 28378300
Med Decis Making. 1995 Jan-Mar;15(1):25-30
pubmed: 7898294
Soc Sci Med. 1997 Mar;44(5):681-92
pubmed: 9032835
BMC Psychiatry. 2020 Jul 16;20(1):373
pubmed: 32677922
Psychiatr Q. 2013 Sep;84(3):313-27
pubmed: 23076765
Health Expect. 2022 Feb;25(1):366-373
pubmed: 34856044
Psychol Med. 2006 Feb;36(2):159-65
pubmed: 16420712
World Psychiatry. 2017 Jun;16(2):146-153
pubmed: 28498575
BMC Med Inform Decis Mak. 2013 Apr 17;13:50
pubmed: 23594514
Cochrane Database Syst Rev. 2017 Apr 12;4:CD001431
pubmed: 28402085