Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life.


Journal

Proceedings of the National Academy of Sciences of the United States of America
ISSN: 1091-6490
Titre abrégé: Proc Natl Acad Sci U S A
Pays: United States
ID NLM: 7505876

Informations de publication

Date de publication:
25 01 2022
Historique:
entrez: 19 1 2022
pubmed: 20 1 2022
medline: 1 3 2022
Statut: ppublish

Résumé

The field of genomics has benefited greatly from its "openness" approach to data sharing. However, with the increasing volume of sequence information being created and stored and the growing number of international genomics efforts, the equity of openness is under question. The United Nations Convention of Biodiversity aims to develop and adopt a standard policy on access and benefit-sharing for sequence information across signatory parties. This standardization will have profound implications on genomics research, requiring a new definition of open data sharing. The redefinition of openness is not unwarranted, as its limitations have unintentionally introduced barriers of engagement to some, including Indigenous Peoples. This commentary provides an insight into the key challenges of openness faced by the researchers who aspire to protect and conserve global biodiversity, including Indigenous flora and fauna, and presents immediate, practical solutions that, if implemented, will equip the genomics community with both the diversity and inclusivity required to respectfully protect global biodiversity.

Identifiants

pubmed: 35042810
pii: 2115860119
doi: 10.1073/pnas.2115860119
pmc: PMC8795560
pii:
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't Research Support, U.S. Gov't, Non-P.H.S.

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : NIAID NIH HHS
ID : R01 AI148788
Pays : United States
Organisme : NCI NIH HHS
ID : R01 CA237118
Pays : United States
Organisme : CIHR
Pays : Canada

Informations de copyright

Copyright © 2022 the Author(s). Published by PNAS.

Déclaration de conflit d'intérêts

The authors declare no competing interest.

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Auteurs

Ann M Mc Cartney (AM)

Genome Informatics Section, Computational and Statistical Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892; ann.mccartney@nih.gov.

Jane Anderson (J)

Engelberg Center for Innovation Law and Policy, New York University School of Law, New York, NY 10012.

Libby Liggins (L)

School of Natural and Computational Sciences, Massey University, 0745 Auckland, New Zealand.

Maui L Hudson (ML)

Te Kotahi Research Institute, University of Waikato, 3216 Hamilton, New Zealand.

Matthew Z Anderson (MZ)

Department of Microbiology, The Ohio State University, Columbus, OH 43210.
Department of Microbial Infection and Immunity, The Ohio State University, Columbus, OH 43210.

Ben TeAika (B)

Genomics Aotearoa, University of Otago, 9016 Dunedin, New Zealand.

Janis Geary (J)

School for the Future of Innovation in Society, Arizona State University, Tempe, AZ 85281.

Robert Cook-Deegan (R)

School for the Future of Innovation in Society, Arizona State University, Tempe, AZ 85281.

Hardip R Patel (HR)

The National Centre of Indigenous Genomics, The Australian National University, Canberra, ACT 0200, Australia.

Adam M Phillippy (AM)

Genome Informatics Section, Computational and Statistical Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892.

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