Consolidation of the clinical and genetic definition of a


Journal

Journal of medical genetics
ISSN: 1468-6244
Titre abrégé: J Med Genet
Pays: England
ID NLM: 2985087R

Informations de publication

Date de publication:
11 2022
Historique:
received: 07 12 2021
accepted: 13 01 2022
pubmed: 3 3 2022
medline: 26 10 2022
entrez: 2 3 2022
Statut: ppublish

Résumé

A neurodevelopmental syndrome was recently reported in four patients with We newly identified 17 patients with All variants were novel, distinct and heterozygous. Seven HMG-domain missense and five stop-gain variants were classified as pathogenic or likely pathogenic variant (L/PV) as they precluded SOX4 transcriptional activity in vitro. Five HMG-domain and non-HMG-domain missense variants were classified as of uncertain significance (VUS) due to negative results from functional tests. When known, inheritance was de novo or from a mosaic unaffected or non-mosaic affected parent for patients with L/PV, and from a non-mosaic asymptomatic or affected parent for patients with VUS. All patients had neurodevelopmental, neurological and dysmorphic features, and at least one cardiovascular, ophthalmological, musculoskeletal or other somatic anomaly. Patients with L/PV were overall more affected than patients with VUS. They resembled patients with other neurodevelopmental diseases, including the These findings consolidate evidence of a fairly non-specific neurodevelopmental syndrome due to

Sections du résumé

BACKGROUND
A neurodevelopmental syndrome was recently reported in four patients with
METHODS
We newly identified 17 patients with
RESULTS
All variants were novel, distinct and heterozygous. Seven HMG-domain missense and five stop-gain variants were classified as pathogenic or likely pathogenic variant (L/PV) as they precluded SOX4 transcriptional activity in vitro. Five HMG-domain and non-HMG-domain missense variants were classified as of uncertain significance (VUS) due to negative results from functional tests. When known, inheritance was de novo or from a mosaic unaffected or non-mosaic affected parent for patients with L/PV, and from a non-mosaic asymptomatic or affected parent for patients with VUS. All patients had neurodevelopmental, neurological and dysmorphic features, and at least one cardiovascular, ophthalmological, musculoskeletal or other somatic anomaly. Patients with L/PV were overall more affected than patients with VUS. They resembled patients with other neurodevelopmental diseases, including the
CONCLUSION
These findings consolidate evidence of a fairly non-specific neurodevelopmental syndrome due to

Identifiants

pubmed: 35232796
pii: jmedgenet-2021-108375
doi: 10.1136/jmedgenet-2021-108375
pmc: PMC9433470
mid: NIHMS1774026
doi:

Substances chimiques

DNA 9007-49-2
SOX4 protein, human 0
SOXC Transcription Factors 0

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1058-1068

Subventions

Organisme : NINDS NIH HHS
ID : K08 NS105865
Pays : United States
Organisme : NIAMS NIH HHS
ID : R01 AR068308
Pays : United States
Organisme : NIMH NIH HHS
ID : R01 MH074090
Pays : United States
Organisme : NIMH NIH HHS
ID : U01 MH119705
Pays : United States

Informations de copyright

© Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: AC and MJT are employees of GeneDx, Inc. Other authors have no competing interests.

Auteurs

Marco Angelozzi (M)

Surgery/Division of Orthopaedic Surgery, The Children's Hospital of Philadelphia Research Institute, Philadelphia, Pennsylvania, USA.

Anirudha Karvande (A)

Surgery/Division of Orthopaedic Surgery, The Children's Hospital of Philadelphia Research Institute, Philadelphia, Pennsylvania, USA.

Arnaud N Molin (AN)

Surgery/Division of Orthopaedic Surgery, The Children's Hospital of Philadelphia Research Institute, Philadelphia, Pennsylvania, USA.

Alyssa L Ritter (AL)

Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.

Jacqueline M M Leonard (JMM)

Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.

Juliann M Savatt (JM)

Autism & Developmental Medicine Institute, Geisinger, Danville, Pennsylvania, USA.

Kristen Douglass (K)

Autism & Developmental Medicine Institute, Geisinger, Danville, Pennsylvania, USA.

Scott M Myers (SM)

Autism & Developmental Medicine Institute, Geisinger, Danville, Pennsylvania, USA.

Mina Grippa (M)

U.O. Genetica Medica, Universita di Bologna, Bologna, Italy.

Dara Tolchin (D)

Surgery/Division of Orthopaedic Surgery, The Children's Hospital of Philadelphia Research Institute, Philadelphia, Pennsylvania, USA.

Elaine Zackai (E)

Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.

Sarah Donoghue (S)

Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.

Anna C E Hurst (ACE)

Department of Genetics, The University of Alabama at Birmingham School of Medicine, Birmingham, Alabama, USA.

Maria Descartes (M)

Department of Genetics, The University of Alabama at Birmingham School of Medicine, Birmingham, Alabama, USA.

Kirstin Smith (K)

Department of Genetics, The University of Alabama at Birmingham School of Medicine, Birmingham, Alabama, USA.

Danita Velasco (D)

Department of Pediatrics, University of Nebraska Medical Center, Omaha, Nebraska, USA.

Andrew Schmanski (A)

Department of Pediatrics, University of Nebraska Medical Center, Omaha, Nebraska, USA.

Amy Crunk (A)

GeneDx Inc, Gaithersburg, Maryland, USA.

Mari J Tokita (MJ)

GeneDx Inc, Gaithersburg, Maryland, USA.

Iris M de Lange (IM)

Department of Medical Genetics, University Medical Centre Utrecht Brain Centre, Utrecht, The Netherlands.

Koen van Gassen (K)

Department of Medical Genetics, University Medical Centre Utrecht Brain Centre, Utrecht, The Netherlands.

Hannah Robinson (H)

Exeter Genomics Laboratory, Royal Devon and Exeter NHS Foundation Trust, Exeter, UK.

Katie Guegan (K)

Exeter Genomics Laboratory, Royal Devon and Exeter NHS Foundation Trust, Exeter, UK.

Mohnish Suri (M)

Clinical Genetics, Nottingham University Hospitals NHS Trust, Nottingham, UK.

Chirag Patel (C)

Genetic Health Queensland, Royal Brisbane and Women's Hospital, Herston, Queensland, Australia.

Marie Bournez (M)

Centres de référence Anomalies du Développement et Syndrome Malformatifs, Centre Hospitalier Universitaire de Dijon, Dijon, France.

Laurence Faivre (L)

Centre de Génétique, Centre Hospitalier Universitaire de Dijon Hôpital d'Enfants, Dijon, France.

Frédéric Tran-Mau-Them (F)

Genetics of Developmental Disorders, INSERM - Bourgogne Franche-Comté University, UMR 1231 GAD Team, Dijon, France.
Functional Unit 6254 Innovation in Genomic Diagnosis of Rare Diseases, CHU Dijon Bourgogne, Dijon, France.

Janice Baker (J)

Genomics and Genetic Medicine, Children's Minnesota, Minneapolis, Minnesota, USA.

Noelle Fabie (N)

Genomics and Genetic Medicine, Children's Minnesota, Minneapolis, Minnesota, USA.

K Weaver (K)

Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.

Amelle Shillington (A)

Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.

Robert J Hopkin (RJ)

Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.

Daniela Q C M Barge-Schaapveld (DQCM)

Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands.

Claudia Al Ruivenkamp (CA)

Laboratory for Diagnostic Genome Analyses, Department of Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands.

Regina Bökenkamp (R)

Department of Pediatric Cardiology, Leiden University Medical Center, Leiden, The Netherlands.

Samantha Vergano (S)

Division of Medical Genetics and Metabolism, Children's Hospital of The King's Daughters, Norfolk, Virginia, USA.

Maria Noelia Seco Moro (MN)

Clinical Analysis Department, Hospital Universitario de Móstoles, Mostoles, Spain.

Aranzazu Díaz de Bustamante (A)

Department of Genetics, Hospital Universitario de Móstoles, Mostoles, Spain.

Vinod K Misra (VK)

Department of Pediatrics, Division of Genetic, Genomic, and Metabolic Disorders, Children's Hospital of Michigan, Detroit, Michigan, USA.
Discipline of Pediatrics, Central Michigan University, Mount Pleasant, Michigan, USA.

Kelly Kennelly (K)

Department of Pediatrics, Children's Hospital of Michigan, Detroit, Michigan, USA.

Caleb Rogers (C)

Department of Molecular and Medical Genetics, Oregon Health & Science University School of Medicine, Portland, Oregon, USA.

Jennifer Friedman (J)

Department of Pediatrics, University of California San Diego, San Diego, California, USA.
Division of Genetics/Dysmorphology and Institute for Genomic Medicine, Rady Children's Hospital, San Diego, California, USA.
Department of Neurosciences, University of California San Diego, San Diego, California, USA.
Division of Neurology, Rady Children's Hospital, San Diego, California, USA.

Kristen M Wigby (KM)

Department of Pediatrics, University of California San Diego, San Diego, California, USA.
Division of Genetics/Dysmorphology and Institute for Genomic Medicine, Rady Children's Hospital, San Diego, California, USA.

Jerica Lenberg (J)

Division of Genetics/Dysmorphology and Institute for Genomic Medicine, Rady Children's Hospital, San Diego, California, USA.

Claudio Graziano (C)

Department of Pediatrics, University of California San Diego, San Diego, California, USA claudio.graziano2@auslromagna.it AhrensNicklasR@chop.edu lefebvrev1@chop.edu.
Division of Genetics/Dysmorphology and Institute for Genomic Medicine, Rady Children's Hospital, San Diego, California, USA.
Department of Neurosciences, University of California San Diego, San Diego, California, USA.
Division of Neurology, Rady Children's Hospital, San Diego, California, USA.
U.O. Genetica Medica, AUSL della Romagna Rimini, Cesena, Italy.

Rebecca C Ahrens-Nicklas (RC)

Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA claudio.graziano2@auslromagna.it AhrensNicklasR@chop.edu lefebvrev1@chop.edu.

Veronique Lefebvre (V)

Surgery/Division of Orthopaedic Surgery, The Children's Hospital of Philadelphia Research Institute, Philadelphia, Pennsylvania, USA claudio.graziano2@auslromagna.it AhrensNicklasR@chop.edu lefebvrev1@chop.edu.

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