Patient and public involvement in the build-up of COVID-19 testing in Sweden.
COVID-19 pandemic
COVID-19 testing
Sweden
patient and public involvement
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
04 2022
04 2022
Historique:
revised:
11
02
2022
received:
06
06
2021
accepted:
18
02
2022
pubmed:
9
3
2022
medline:
1
4
2022
entrez:
8
3
2022
Statut:
ppublish
Résumé
Patient and public involvement in healthcare can be particularly challenging during crises such as the COVID-19 pandemic. The aims of the study, which focuses on COVID-19 testing in Sweden, were to explore (1) how, or to what extent, patients and members of the public were involved in decisions about the organization of COVID-19 testing during the first year of pandemic and (2) whether this was seen as feasible or desirable by regional and national stakeholders. A qualitative interview study was conducted with key organizational stakeholders at three national agencies and within three Swedish regions (n = 16). There had been no patient and public involvement activities in the area of COVID-19 testing. The regions had, however, tried to respond to demands or critiques from patients and the public along the way and to adapt the services to respond to their preferences. The need for rapid decision-making, the uncertainty about whom to involve, as well as a hesitation about the appropriateness of involving patients and the public contributed to the lack of involvement. Future studies on patient and public involvement during crises should address what structures need to be in place to carry out involvement successfully during crises and when to use activities with varying degrees of power or decision-making authority for patients and members of the public. Fifteen members of the public contributed with short reflections on the study findings.
Sections du résumé
BACKGROUND
Patient and public involvement in healthcare can be particularly challenging during crises such as the COVID-19 pandemic.
OBJECTIVE
The aims of the study, which focuses on COVID-19 testing in Sweden, were to explore (1) how, or to what extent, patients and members of the public were involved in decisions about the organization of COVID-19 testing during the first year of pandemic and (2) whether this was seen as feasible or desirable by regional and national stakeholders.
METHODS
A qualitative interview study was conducted with key organizational stakeholders at three national agencies and within three Swedish regions (n = 16).
RESULTS
There had been no patient and public involvement activities in the area of COVID-19 testing. The regions had, however, tried to respond to demands or critiques from patients and the public along the way and to adapt the services to respond to their preferences. The need for rapid decision-making, the uncertainty about whom to involve, as well as a hesitation about the appropriateness of involving patients and the public contributed to the lack of involvement.
CONCLUSION
Future studies on patient and public involvement during crises should address what structures need to be in place to carry out involvement successfully during crises and when to use activities with varying degrees of power or decision-making authority for patients and members of the public.
PATIENT OR PUBLIC CONTRIBUTION
Fifteen members of the public contributed with short reflections on the study findings.
Identifiants
pubmed: 35257448
doi: 10.1111/hex.13463
pmc: PMC8957722
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
541-548Subventions
Organisme : The Swedish Research Council for Health, Working Life and Welfare
ID : 2018-01578
Informations de copyright
© 2022 The Authors. Health Expectations published by John Wiley & Sons Ltd.
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