Impact of fetal alcohol spectrum disorder on families.

Caregivers Child Family Female Fetal Alcohol Spectrum Disorders / diagnosis Foster Home Care Humans Male Pregnancy Prospective Studies
adolescent health child health paediatrics

Journal

Archives of disease in childhood
ISSN: 1468-2044
Titre abrégé: Arch Dis Child
Pays: England
ID NLM: 0372434

Informations de publication

Date de publication:
08 2022
Historique:
pubmed: 18 3 2022
medline: 22 7 2022
entrez: 17 3 2022
Statut: ppublish

Résumé

To evaluate the impact of fetal alcohol spectrum disorder (FASD) on child and family functioning. Prospective survey. Multidisciplinary FASD assessment service. Caregivers of 35 children with FASD. Child-health-related functioning (Royal Alexandra Hospital for Children Measure of Function (MOF)), family impact (Impact on Family (IOF) Scale), impact on siblings and caregiver stress. Most caregivers were foster carers (74%). Children with FASD (median age 8.7 years; 54% male) were a median of 7.0 years at diagnosis. Regarding child-health-related functioning, 43% reported moderate, severe or major problems in at least one area on the MOF. IOF was moderate (60%) or high (34%). Poorer child-health-related functioning was associated with greater impact on family. Unaffected siblings received less parental attention and displayed anger or frustration about the affected child's needs. Caregivers reported frequent and high levels of stress. FASD impacts children's health, and function of the family and unaffected siblings. These novel findings highlight the need for family-oriented service development.

Identifiants

DOI: 10.1136/archdischild-2021-322703 PMID: 35296508
pubmed: 35296508
pii: archdischild-2021-322703
doi: 10.1136/archdischild-2021-322703
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

755-757

Informations de copyright

© Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

Auteurs

Natalie Lynette Phillips (NL)

Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.
Australian Paediatric Surveillance Unit, Kids Research Institute, Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.
ORCID: 0000-0001-7505-9670

Marcel David Zimmet (MD)

Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.
Australian Paediatric Surveillance Unit, Kids Research Institute, Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.

Amy Phu (A)

Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.
Australian Paediatric Surveillance Unit, Kids Research Institute, Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.

Meenakshi Rattan (M)

Department of Psychological Medicine, Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.

Yvonne Zurynski (Y)

Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.
Australian Paediatric Surveillance Unit, Kids Research Institute, Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.
ORCID: 0000-0001-7744-8717

Elizabeth J Elliott (EJ)

Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia elizabeth.elliott@health.nsw.gov.au.
Australian Paediatric Surveillance Unit, Kids Research Institute, Sydney Children's Hospitals Network, Westmead, New South Wales, Australia.

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Classifications MeSH

questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Personnel de santé › Aidants › Impact of fetal alcohol spectrum disorder on families.
questionsmedicales.fr › Personnes › Tranches d'âge › Enfant › Impact of fetal alcohol spectrum disorder on families.
questionsmedicales.fr › Sciences sociales › Sociologie › Facteurs sociologiques › Famille › Impact of fetal alcohol spectrum disorder on families.
questionsmedicales.fr › Troubles dus à des produits chimiques › Troubles dus à l'abus d'alcool › Troubles du spectre de l'alcoolisation foetale › Impact of fetal alcohol spectrum disorder on families.
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Soins aux patients › Placement en famille d'accueil › Impact of fetal alcohol spectrum disorder on families.
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Impact of fetal alcohol spectrum disorder on families.
questionsmedicales.fr › Phénomènes physiologiques des appareils urinaire et reproducteur › Phénomènes physiologiques de la reproduction › Reproduction › Grossesse › Impact of fetal alcohol spectrum disorder on families.
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Caractéristiques des études épidémiologiques › Études épidémiologiques › Études de cohortes › Études prospectives › Impact of fetal alcohol spectrum disorder on families.