Evaluation of neurodevelopmental symptoms in 10 cases of neonatal ichthyosis and sclerosing cholangitis syndrome.


Journal

Pediatric dermatology
ISSN: 1525-1470
Titre abrégé: Pediatr Dermatol
Pays: United States
ID NLM: 8406799

Informations de publication

Date de publication:
Jul 2022
Historique:
revised: 12 02 2022
received: 31 10 2021
accepted: 27 02 2022
pubmed: 20 3 2022
medline: 27 8 2022
entrez: 19 3 2022
Statut: ppublish

Résumé

Neonatal ichthyosis and sclerosing cholangitis (NISCH) syndrome is an extremely rare entity with only 19 patients described in the literature. We report an extended family with the disorder and investigate the association of neurodevelopmental symptoms. Patients with CLDN1 mutations, and specifically « the Moroccan» c.200_201delTT deletion, may be an increased risk for neurodevelopmental symptoms such as learning disabilities, mental retardation, and language delay.

Identifiants

pubmed: 35304779
doi: 10.1111/pde.14976
doi:

Substances chimiques

Claudin-1 0

Types de publication

Case Reports

Langues

eng

Sous-ensembles de citation

IM

Pagination

590-593

Subventions

Organisme : The Belgian Kids' Fund for Pediatric Research

Informations de copyright

© 2022 Wiley Periodicals LLC.

Références

Nagtzaam IF, van Geel M, Driessen A, et al. Bile duct paucity is part of the neonatal ichthyosis-sclerosing cholangitis phenotype. Br J Dermatol. 2010;163(1):205-207. (PMID: 20645982).
Baala L, Hadj-Rabia S, Hamel-Teillac D, et al. Homozygosity mapping of a locus for a novel syndromic ichthyosis to chromosome 3q27-q28. J Invest Dermatol. 2002;119(1):70-76. (PMID: 12164927).
Hadj-Rabia S, Baala L, Vabres P, et al. Claudin-1 gene mutations in neonatal sclerosing cholangitis associated with ichthyosis: a tight junction disease. Gastroenterology. 2004;127(5):1386-1390. (PMID: 15521008).
Feldmeyer L, Huber M, Fellmann F, et al. Confirmation of the origin of NISCH syndrome. Hum Mutat. 2006;27(5):408-410. (PMID: 16619213).
Kirchmeier P, Sayar E, Hotz A, et al. Novel mutation in the CLDN1 gene in a Turkish family with neonatal ichthyosis sclerosing cholangitis (NISCH) syndrome. Br J Dermatol. 2014;170(4):976-978. (PMID: 24641442).
Youssefian L, Vahidnezhad H, Saeidian AH, et al. Gene-Targeted Next-Generation Sequencing Identifies a Novel CLDN1 Mutation in a Consanguineous Family With NISCH Syndrome. Am J Gastroenterol. 2017;112(2):396-398. (PMID: 28154377).
Nagtzaam IF, Peeters VPM, Vreeburg M, et al. Novel CLDN1 mutation in ichthyosis-hypotrichosis-sclerosing cholangitis syndrome without signs of liver disease. Br J Dermatol. 2018;178(3):e202-e203. (PMID: 28906553).
Szepetowski S, Lacoste C, Mallet S, et al. NISCH syndrome, a rare cause of neonatal cholestasis: a case report. Arch Pediatr Organe off Soc Francaise Pediatr. 2017;24(12):1228-1234. (PMID: 29146216).
Paganelli M, Stephenne X, Gilis A, et al. Neonatal ichthyosis and sclerosing cholangitis syndrome: extremely variable liver disease severity from claudin-1 deficiency. J Pediatr Gastroenterol Nutr. 2011;53(3):350-354. (PMID : 21865982).
Grosse B, Cassio D, Yousef N, et al. Claudin-1 involved in neonatal ichthyosis sclerosing cholangitis syndrome regulates hepatic paracellular permeability. Hepatol Baltim Md. 2012;55(4):1249-1259. (PMID : 22030598).
Sweeney MD, Sagare AP, Zlokovic BV. Blood-brain barrier breakdown in Alzheimer disease and other neurodegenerative disorders. Nat Rev Neurol. 2018;14(3):133-150. (PMID: 29377008).
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Auteurs

Deborah Salik (D)

Department of Dermatology, Hôpital Universitaire des Enfants Reine Fabiola, Université Libre de Bruxelles (ULB), Brussels, Belgium.

Smail Hadj-Rabia (S)

Department of Dermatology, Reference Center for Genodermatoses and Rare Skin Diseases (MAGEC), Paris, France.
Institut Imagine, Université Descartes, Sorbonne Paris Cité, Hôpital Necker-Enfants Malades, Paris, France.

Daniel Hohl (D)

Department of Dermatology, University Hospital Center of Lausanne, Lausanne, Switzerland.

Hassan Vahidnezhad (H)

Department of Dermatology and Cutaneous Biology, Sidney Kimmel Medical College, and Jefferson Institute of Molecular Medicine, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.

Leila Youssefian (L)

Department of Dermatology and Cutaneous Biology, Sidney Kimmel Medical College, and Jefferson Institute of Molecular Medicine, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.

Adèle Rakosi (A)

Department of Dermatology, University Hospital Center of Lausanne, Lausanne, Switzerland.

Chantal Dangoisse (C)

Department of Dermatology, Hôpital Universitaire des Enfants Reine Fabiola, Université Libre de Bruxelles (ULB), Brussels, Belgium.

Martina Marangoni (M)

Department of Genetics, Hôpital Erasme, ULB Center of Human Genetics, Université Libre de Bruxelles (ULB), Brussels, Belgium.

Catheline Vilain (C)

Department of Genetics, Hôpital Erasme, ULB Center of Human Genetics, Université Libre de Bruxelles (ULB), Brussels, Belgium.
Department of Genetics, Hôpital Universitaire des Enfants Reine Fabiola, ULB Center of Human Genetics, Université Libre de Bruxelles (ULB), Brussels, Belgium.
Interuniversity Institute of Bioinformatics in Brussels, Université Libre de Bruxelles, Brussels, Belgium.

Guillaume Smits (G)

Department of Genetics, Hôpital Erasme, ULB Center of Human Genetics, Université Libre de Bruxelles (ULB), Brussels, Belgium.
Department of Genetics, Hôpital Universitaire des Enfants Reine Fabiola, ULB Center of Human Genetics, Université Libre de Bruxelles (ULB), Brussels, Belgium.
Interuniversity Institute of Bioinformatics in Brussels, Université Libre de Bruxelles, Brussels, Belgium.

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