'Smiles and laughter and all those really great things': Nurses' perceptions of good experiences of care for inpatient children and young people with intellectual disability.
Paediatrics
brilliant care
child life therapy
children
healthcare quality
hospital
intellectual disability
nurses/midwives/nursing
patient experience
young people
Journal
Journal of advanced nursing
ISSN: 1365-2648
Titre abrégé: J Adv Nurs
Pays: England
ID NLM: 7609811
Informations de publication
Date de publication:
Sep 2022
Sep 2022
Historique:
revised:
11
02
2022
received:
01
10
2021
accepted:
23
03
2022
pubmed:
23
4
2022
medline:
24
8
2022
entrez:
22
4
2022
Statut:
ppublish
Résumé
To understand what constitutes a good experience of care for inpatient children and young people with intellectual disability as perceived by nursing staff. Interpretive qualitative study. Focus groups with clinical nursing staff from speciality neurological/neurosurgical and adolescent medicine wards across two specialist tertiary children's hospitals in Australia were conducted between March and May 2021. Data analysis followed interpretative analysis methods to develop themes and codes which were mapped to a conceptual model of safe care. Six focus groups with 29 nurses of varying experience levels were conducted over 3 months. Themes and codes were mapped to the six themes of the conceptual model: use rapport, know the child, negotiate roles, shared learning, build trust and relationships, and past experiences. The analysis revealed two new themes that extended the conceptual model to include; the unique role of a paediatric nurse, and joy and job satisfaction, with a third contextual theme, impacts of COVID-19 pandemic restrictions. With the perspectives of paediatric nurses incorporated into the model we have enhanced our model of safe care specifically for inpatient paediatric nursing care of children and young people with intellectual disability. Including perceptions of paediatric nurses confirmed the position of the child with intellectual disability being at the centre of safe care, where care is delivered as a partnership between nursing staff, child or young person and their parents/family and the hospital systems and processes. The enhanced model offers a specialized framework for clinical staff and health managers to optimize the delivery of safe care for children and young people with intellectual disability in hospital.
Identifiants
pubmed: 35451515
doi: 10.1111/jan.15256
pmc: PMC9544709
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
2933-2948Subventions
Organisme : Australian Government Research Training Program
Organisme : Maridulu Budyari Gumal, Sydney Partnership for Health, Education, Research and Enterprise (SPHERE) Translational Research Fellowship Scheme
Organisme : University of New South Wales
Commentaires et corrections
Type : CommentIn
Informations de copyright
© 2022 The Authors. Journal of Advanced Nursing published by John Wiley & Sons Ltd.
Références
Health Expect. 2015 Oct;18(5):796-808
pubmed: 23800327
Intellect Dev Disabil. 2011 Apr;49(2):59-85
pubmed: 21446871
Res Nurs Health. 2000 Aug;23(4):334-40
pubmed: 10940958
J Pediatr Nurs. 2015 Jan-Feb;30(1):78-86
pubmed: 25450442
J Child Health Care. 2019 Dec;23(4):639-651
pubmed: 31359791
J Intellect Disabil. 2014 Dec;18(4):291-304
pubmed: 25249376
Health Soc Care Community. 2010 Nov;18(6):624-32
pubmed: 20561077
BMC Health Serv Res. 2014 Oct 25;14:505
pubmed: 25344333
J Pediatr Nurs. 2009 Apr;24(2):164-70
pubmed: 19268238
BMJ. 1995 Jul 8;311(6997):109-12
pubmed: 7613363
J Adv Nurs. 2017 Jan;73(1):217-227
pubmed: 27532230
J Adv Nurs. 2001 Feb;33(3):288-95
pubmed: 11251715
Dev Med Child Neurol. 2022 Mar;64(3):314-322
pubmed: 34562021
Health Expect. 2019 Dec;22(6):1199-1212
pubmed: 31560839
J Intellect Disabil. 2014 Jun 19;18(3):221-237
pubmed: 24951491
BMJ Qual Saf. 2016 Mar;25(3):190-201
pubmed: 26590198
J Intellect Disabil. 2018 Mar;22(1):18-32
pubmed: 27645205
Qual Saf Health Care. 2002 Jun;11(2):148-52
pubmed: 12448807
BMC Med Res Methodol. 2013 Sep 18;13:117
pubmed: 24047204
J Health Organ Manag. 2015;29(6):750-77
pubmed: 26394256
Qual Health Res. 2015 Sep;25(9):1212-22
pubmed: 26184336
Matern Child Health J. 2012 Feb;16(2):297-305
pubmed: 21318293
Hum Resour Health. 2020 Feb 11;18(1):9
pubmed: 32046721
Res Dev Disabil. 2011 Mar-Apr;32(2):419-36
pubmed: 21236634
BMC Nurs. 2018 Dec 03;17:51
pubmed: 30524202
J Intellect Dev Disabil. 2011 Jun;36(2):137-43
pubmed: 21609299
BMJ Paediatr Open. 2018 Jan 29;2(1):e000201
pubmed: 29637187
Qual Saf Health Care. 2009 Dec;18(6):424-8
pubmed: 19955451
Nurs Ethics. 2013 Aug;20(5):528-38
pubmed: 23329781
J Adv Nurs. 2022 Sep;78(9):2933-2948
pubmed: 35451515
BMC Health Serv Res. 2018 Mar 23;18(1):203
pubmed: 29566681
JBI Libr Syst Rev. 2012;10(57):3917-3935
pubmed: 27820513
J Pediatr Nurs. 2015 Jan-Feb;30(1):143-59
pubmed: 25458112
J Nurs Scholarsh. 2012 Jun;44(2):171-9
pubmed: 22554300