Providing home hospice care for LGBTQ+ patients and caregivers: Perceptions and opinions of hospice interdisciplinary care team providers.


Journal

Palliative & supportive care
ISSN: 1478-9523
Titre abrégé: Palliat Support Care
Pays: England
ID NLM: 101232529

Informations de publication

Date de publication:
02 2023
Historique:
pubmed: 20 5 2022
medline: 25 2 2023
entrez: 19 5 2022
Statut: ppublish

Résumé

Hospice patients and caregivers who are members of sexual and gender minority groups (i.e., LGBTQ+) have reported experiencing unmet needs at end of life (EOL). Negative experiences often stem from challenging interactions with healthcare providers due to ineffective or poor communication and providers' heteronormative assumptions and biases. Few studies, however, examine hospice care team (HCT) providers' knowledge, experience, and opinions related to EOL care for LGBTQ+ patients and caregivers despite this being identified as a gap in competency and education. We sought to examine HCT providers' perceptions regarding (1) awareness of LGBTQ+ patients and caregivers; (2) knowledge of specific or unique needs; and (3) opinions on best care and communication practices. Six focus groups conducted with HCT providers ( Participants were mostly white and non-Hispanic ( Many HCT members were unaware of specific issues impacting the EOL experiences of LGBTQ+ patients and caregivers, or how these experiences may inform important care and communication needs at EOL.

Identifiants

pubmed: 35586976
doi: 10.1017/S1478951522000657
pii: S1478951522000657
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural

Langues

eng

Sous-ensembles de citation

IM

Pagination

3-11

Subventions

Organisme : NINR NIH HHS
ID : F31 NR018987
Pays : United States
Organisme : NINR NIH HHS
ID : T32 NR013456
Pays : United States

Auteurs

Kristin G Cloyes (KG)

College of Nursing, University of Utah, Salt Lake City, UT.

Miranda Jones (M)

College of Nursing, University of Utah, Salt Lake City, UT.

Caroline Gettens (C)

School of Nursing, Simmons University, Boston, MA.

Sarah E Wawrzynski (SE)

College of Nursing, University of Utah, Salt Lake City, UT.

Sara Bybee (S)

College of Nursing, University of Utah, Salt Lake City, UT.

Djin L Tay (DL)

College of Nursing, University of Utah, Salt Lake City, UT.

Maija Reblin (M)

Health Outcomes & Behavior, Moffitt Cancer Center, Tampa, FL.

Lee Ellington (L)

College of Nursing, University of Utah, Salt Lake City, UT.

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Classifications MeSH